posted
Okay, this is going to seem like a really stupid question to some but I'm going to ask anyway. :-)
I am on very low dose tindamax, 125mg per day building to 750mg per day. I also take herbs and a beta blocker to control my heart rate and anxiety.
I haven't taken my tindamax in 48 hours. I have an event to go to tonight with my husband. It' the first time in eons I will be out, dressed nice and in adult company.
Is it okay if I have 1 drink? Will this have some crazy effect on me? My husband is hosting the event and I would like to enjoy myself just a little bit!
That may sound selfish but I haven't had a drink in months! It would be nice just to forget about this stupid disease for a few hours!
Anyone that has any experience, I would greatly appreciate it! If it's too dangerous, of course I won't chance it, but I just want 1!!!! It'll be the first in 9 months!
Posts: 132 | From Central New Jersey | Registered: Feb 2012
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
No no no!
Tindimax and flagyl, when mixed with even the smallest amount of alcohol are VERY damaging to the liver! Some docs go so far as to use the term, "pickle" when describing what happens to the liver when tindimax and flagyl are combined with alcohol.
Lyme damages the liver in so many ways. Even if one wasn't on a cyst-buster, alcohol overloads the liver.
If you decide to imbibe tonight, you may find yourself with an instant hangover, even before the drink is finished.
That would be a terrible way to spend the evening, especially as it's your hubby's event.
Ginger ale in champagne glasses looks like the real thing.
Cranberry juice and club soda with lime in a martini glass looks like an exotic drink.
You may also find you get totally tanked after half a drink; lyme just taxes our livers so much, it is hard to predict how our bodies will react to alcohol.
But with tindimax...alcohol is a very unhealthy choice to make.
I'm sorry to be a party pooper and I don't want to sound like a teotaller.
I miss a Kiwi-Tini as much as the next girl. Sigh.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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gmb
Unregistered
posted
Besides what Greta said. Tindamax and Flagyl can cause a antibuse type response when mixed with Alcohol and make you very ill (vomit). 48 hrs should be enough time to reduce the risk, but is it time to experiment?
Not all people have an antibuse type response to drinking while on Tini and Flagyl. Your mileage may differ.
posted
Thanks gmb! I thought I might be able to sneak one in since it's been a little over 48 hours and my dose is so low.
Just wanted to live a little for once.
But I don't think I want to chance it. :-/
Posts: 132 | From Central New Jersey | Registered: Feb 2012
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Even one drink with lyme &/or during treatment is to be avoided. There is no "just one" or "just this time" - alcohol can have serious effects, immediately and for days later -- and bombard a treatment plan.
Lyme damages the liver, there is no way around that. Treatment stresses the liver. Even with the best liver support, a little alcohol can make one feel so - sooo - much sicker and put the liver in to a spin.
Alcohol damages the liver and, with lyme, your liver may not recover from even one drink enough to recover your treatment costs for a month or two. There is now way to know how long it would take the liver to bounce back from even one drink - but more than a day, or a week (for someone with lyme who is doing Rx treatment).
It can affect glucose levels worse in someone with lyme and also affect the nerve fibers in the brain (and elsewhere) in serious ways. It's just not worth it.
Don't even dance with any ideas that you can get away with it. Please. Don't let any thoughts about that play with your mind.
Once in remission for about 6 months, most find that the alcohol intolerance will let up and it's safe to proceed cautiously. The liver needs that time to heal after treatment. Until then, let the power of getting your body back to health be the driving force.
Just being able to dress up, go out with friends and be among the living will likely have you feeling good. One drink can ruin all that, big time. Be sure your body will have a clean chance at enjoying the full evening. -
[ 11-15-2013, 05:06 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
In addition to points made in that blog entry above:
Clearance time for Tindamax out of YOUR body could be slower than what is typical. If trying to dance with the clock on this, it may not be so accurate. Those with lyme, due to the liver dysfunction, often have differences in Rx "clearance" metabolism times.
BALANCE. SPEECH. The ability to keep upright, walk, talk, make sense. The inner ear does all that and more.
It's important to remember that lyme can really affect balance & inner ear function. Even a little alcohol can further dismantle balance to toss you off the tracks and, quite literally, off your pretty feet.
Even a little bit can have us appearing like an out of control sloppy drunk when that internal balance control goes haywire, even from what for most might have been just the slightest nudge. -
[ 11-15-2013, 05:02 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Now, I find when I know I can't or should not do something, I can become miffed about that and then go down hill in all kinds of ways with that thought process.
So . . . it can help to focus on what you can do by adhering to a commitment of eating and drinking delicious things that will nourish your body.
Key words: "delicious" & "nutritious"
Thinking ahead, know where you are going and study the choices you will have. If they have a website, check it out. Call them, even, at a less busy time and talk to someone who can help you plan in advance your choices in line with "dietary restrictions."
It helps to remember that such "restrictions" translate to "ways to be ABLE TO enjoy life better"
Dis-ci-pline, is best thought of as "tis-a-PLAN" - an "action plan" for our BENEFIT.
You may have to take some things with you to make this work. Even TEA BAGS, STEVIA.
Remember, there are choices and there will still be lots of flavor and fun for you, in ways that will keep you feeling good enough and able to walk out at the end of the evening under your own speed, and - if not feeling - at least looking nearly as fresh as when you entered. -
[ 11-15-2013, 04:55 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Jessi, I am also on Tindamax and struggle with that decision as well. It feels like Lyme has stolen enough!
After my last LLMD appt, I got one little glass of wine because the appointment went so poorly. I got completely drunk. Not a fun drunk...I was passing out and had a worsening of my symptoms. I wasn't even on Tindamax when this happened.
Alcohol is soooo much more potent in most lyme patients. Just be careful! Although, I think you can drink 48 hours later.
-------------------- You name it, I've got it. Full-time medical anomaly. Posts: 432 | From Southeast | Registered: Aug 2011
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posted
Thanks Keebler for all the info! Life+Lyme, I'm sorry that happened to you. I can completely sympathize with the strong desire just to partake in something so silly just to feel normal for a moment.
But thanks to all of you, I went to the event and drank club soda all night. The funniest part of it all is that I woke up feeling like I had a hangover. lol
But I'm happy to report I behaved and abstained. Thanks everyone for your support and reminders! Without them I may have caved. We all suffer enough with this stupid disease, so sense in adding to it.
Wishing you all health and a blessed weekend!
Posts: 132 | From Central New Jersey | Registered: Feb 2012
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