posted
it seems als symptoms can be from lyme and babs clindimycin + flagil seems to work the best on it
-------------------- LSG Scott Posts: 487 | From Boston, Cape Cod, Mass | Registered: Aug 2009
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Mathias
Frequent Contributor (1K+ posts)
Member # 5298
posted
Mycoplasma fermentans can cause ALS symptoms. I had it in my CNS and was diagnosed after a spinal tap. I was 1 limb away from an ALS diagnosis. I even had twitching in my tongue. Fortunately I found an LLMD who treated me with the right abx. It's been a long road to recovery with many setbacks.
-------------------- Mathias Posts: 1242 | From New Jersey | Registered: Feb 2004
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Protomxzoa and Ralstonia.
Dr. F said 6 out of 6 patients had PR and 5 out of 6 had Ralstonia.
Babesia also causes it. In the book Cure Unknown, Pam W. tells of a doctor diagnosed with ALS. His friends arranged a last hurray photo safari to Africa for him. He noticed his energy improved while on the trip. Everyone thought it was the adrenaline of seeing the animals.
It turned out it was the anti-malarial drugs he was taking that was making him better. When he went off the drugs he got worse. His son made the connection and he went back on them and recovered.
He opened a clinic in Colorado to treat ALS patients with lyme. He said his patients needed to be ambulatory or treatment would overwhelm them.
There may be other infections as well. Best to get tested for everything and begin treatment as soon as possible.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Mom died of ALS. It was horrible. I have many of her symptoms...trembling, speech, swallowing, unbalance, etc. But doc assures me I'm not getting it. He does think there is a genetic link. Mom's niece, my cousin, also died of ALS.
Weird thing is how fast Mom got it. She had follow up surgery for hip replacement and was stammering when she came out of anesthesia and went downhill quickly. My husband said he'd bet anything she had had Lyme for years.
There does seem to be a link. I get better testing, diagnostic care in CA than she had. And we know more now.
I get my blood tested every 3 mos at National Jewish Hospital in Denver. My doc says they are best infectious disease analysts in the US.
-------------------- DOCTOR: "I don't think you are sick." PATIENT: "We are all entitled to our opinions. I don't think you are a doctor." Posts: 697 | From Northern California | Registered: Jul 2009
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posted
farraday -- Others may also be interested in my question -- what tests are you having done every 3 months at Nat'l Jewish Hospital in Denver?
vv -- Pretty sure Dr M closed his clinic in Colorado due to health issues. The clinic is apparently still operating under other physicians -- see link provided by LSG SCott.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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