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» LymeNet Flash » Questions and Discussion » Medical Questions » Lyme remission! POTS and Mast Cell disorder

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Author Topic: Lyme remission! POTS and Mast Cell disorder
Aimee
LymeNet Contributor
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I used to frequent this board when I was acutely ill with Lyme disease. I currently have put Lyme into remission and have been symptom free from Lyme and confections for over a year. I treated with oral antibiotics for three years and then IV antibiotics for seven months.

During the course of my Lyme treatment I was also diagnosed with POTS and something called Mast Cell Activation Syndrome (MCAS). My physicians and I believe the POTS and MCAS were triggered by the Lyme infection. Since treating the MCAS I have seen a stabilization and improvement in my POTS symptoms.

For those of you suffering from POTS or sensitivities/allergies to the antibiotics used to treat your Lyme disease or chronic Lyme that is refractory to antibiotics I encourage you to investigate MCAS to see if it may be a possible issue for you. Many of the symptoms of Lyme and MCAS are the same so it can be tricky to discern the difference.

There were times when I didn't think I would ever put Lyme into remission. I hope it is an encouragement to someone who has struggled for years that it is possible. While I do have collateral damage from Lyme in the form of POTS and MCAS I am thankful to no longer need antibiotics and to have identified these remaining conditions and to have treatment in place for those.

If you have any questions please pm me as I don't frequent this board any longer. Praying for you all, keep fighting and researching and pushing for the treatment you need to get well!

Posts: 239 | From Virginia | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
Kudzuslipper
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Congrats Aimee!
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lax mom
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What did you take for MCAS? Zyrtec and Zantac? or something else?

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Lymetoo
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Also wondering what the treatment is for MCAS.

So glad you are doing so much better! [Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

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Kudzuslipper
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Me too!
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ukcarry
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Great news, Aimee. Good luck to you!

Yes, it would be interesting to know more about the diagnosis and treatment of MCAS.

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