LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Alinia for Bartonella

 - UBBFriend: Email this page to someone!    
Author Topic: Alinia for Bartonella
lymeboy
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
I am thinking of taking Alinia along with my Salt-C protocol. My Bart SX are surely my worst. Is this safe? Will taking a drug like Alinia be safe/effective along with Salt-C?
I'm also going to buy some Hottuynia powder for Bart as well. Would anyone reccommend against mixing the Hottuynia right in with the Salt-C mixture?

Are either of these acceptable adjuncts for Salt-C?

IP: Logged | Report this post to a Moderator
xrunnerx2012
LymeNet Contributor
Member # 39306

Icon 1 posted      Profile for xrunnerx2012     Send New Private Message       Edit/Delete Post   Reply With Quote 
My doc mentioned the possibility of putting me on Alinia soon for my Bart symptoms. What are your symptoms?


Not sure if Salt/C would interact with the medicine, however.

Posts: 251 | From Baltimore | Registered: Oct 2012  |  IP: Logged | Report this post to a Moderator
lymeboy
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Foot pain, hand pain, Joint pain. Tooth pain, jaw pain. Headaches, insomnia, anxiety. Fleeting neurological symptoms.
IP: Logged | Report this post to a Moderator
seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

Icon 1 posted      Profile for seibertneurolyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
I thought Alinia was for babs? Never heard that it worked on bart also.

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149

Icon 1 posted      Profile for Catgirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
I wouldn't take it with salt/c (it gave me kidney pain). But I could take it while off salt/c. I know it's helpful for proto (proto has some overlapping bart like symptoms). Not sure about taking it for bart.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

Posts: 5418 | From earth | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
lymeboy
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Yea, I'm suspecting proto. Especially with the jaw/dental issues. But the foot pain really has me wondering. My diet is a bit fatty. I'm getting ready to drop a lot of the fat from my diet. But I do love my avocados!
Right now, the only thing I have is Alinia, that could possibly be hitting Bart. Perhaps I should try to tough it out til the Hottuynia gets here and go with that.
Salt/c IS working I believe, in case anyone is thinking about it. It seems to be doing exactly what the book says, and I'm following pretty closely. The key with this tx is to stay the course and let the "chinese water torture" slowly kill off the bugs. Takes a while.

IP: Logged | Report this post to a Moderator
marypart
LymeNet Contributor
Member # 27012

Icon 1 posted      Profile for marypart     Send New Private Message       Edit/Delete Post   Reply With Quote 
I tested positive for Bart and Erlichia. I swear Alinia was my best drug.. it really seemed to make me feel better.

I never had any problems with it.

My son also took it.

I don't remember how long we took it or how much, but I remember that it seemed to really help me.

--------------------
Son, 26, Dx Lyme 4/10, Babs 8/10
Had serious arthritis, all gone.
Currently on Valtrex
Daughter, 26,bullseye 7/11
arthritis in knees, cured and off all meds. .
Self:Lyme, bart, sxs gone, no longer treating.

Posts: 496 | From Washington, DC | Registered: Jul 2010  |  IP: Logged | Report this post to a Moderator
Cattail
LymeNet Contributor
Member # 24357

Icon 1 posted      Profile for Cattail     Send New Private Message       Edit/Delete Post   Reply With Quote 
Lymeboy, just FYI. I have those same symptoms and they are not Bart for me. In fact, I had been on Bart meds almost a year and those things just kept getting worse of developed new symptoms that are in your list. My LLND thinks mold, I thnk Proto / parasites. I just wanted to throw that out there for anyone.
Posts: 319 | From Mass | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149

Icon 1 posted      Profile for Catgirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
It's possible that stuff people take for bart, like alinia which does hit proto, or even stuff for babs/parasites, is actually hitting proto. The symptoms can overlap.

Lymeboy, pain on the bottom of my feet has been bart on me. Pain on top of my feet is either lyme, proto, or parasites. A-bart has gotten rid of my anxiety, sore soles, and sore spots on my extremities. If you don't like Byron White herbs, you can always try Cowdens. These are less expensive than the meds, and work for some people.

If you love avocados, just eat less of them. There is a fine line for people with proto. I occasionally eat a little avocado. I can't eat it every day though. We need restorative fats. The only way I was able to find my fine line was through trial and error. The more fat I eat, the worse I feel. If I start to lose weight, I eat just a little more fat. It's a balancing act.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

Posts: 5418 | From earth | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
Cattail
LymeNet Contributor
Member # 24357

Icon 1 posted      Profile for Cattail     Send New Private Message       Edit/Delete Post   Reply With Quote 
Always great info Catgirl. Thank you.
Posts: 319 | From Mass | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
lymeboy
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
When I took Alinia a few months back, I was taking the recommended 1000 mg twice/day. That seems pretty high.

Catgirl, could you fill me in on your dosage? Is it the same? If I plan on taking it longer, should I cut the dose in half?

It seems like 2000 mg /day is way too high long term...

IP: Logged | Report this post to a Moderator
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149

Icon 1 posted      Profile for Catgirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks Cattail (you're welcome)!

Lymeboy, I take one 500 mg tablet twice per day (so 1000 mg a day). I take this dose for the parasite protocol, but I've seen people on here who take alinia for proto (not sure what their dosage is). I also can't tolerate salt/c while on alinia (maybe it's just me).

Check this out. I think it's the parasite protocol (not sure though):

http://protomyxzoa.org/wp-content/uploads/2013/05/Protomyxzoa_rheumatica.pdf

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

Posts: 5418 | From earth | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
lymeboy
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
This is great info, thank you for the link, Catgirl!

DOes anyone know where I can purchase A-Bart without a doctor? I'm without a LLMD for the forseeable future. Can someone help?
How about bab-2?

IP: Logged | Report this post to a Moderator
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157

Icon 1 posted      Profile for nefferdun     Send New Private Message       Edit/Delete Post   Reply With Quote 
I believe the sore soles of the feet , especially if it is in the AM when you first get up, is bartonella. I have both PR and bart.

When I couldn't get treatment from a doctor and I realized what I had, I took the Alinia because that is what I had on hand, which was for PR. It did help. I switched to Bactrim because that is what got me over bart the last time.

If you believe you have PR, the low fat diet is critical. You can fudge on it a little bit if you buy a fat binder, like Proactol. One avocado has about 32 grams of fat, twice as much fat as you should have for the whole day.

One fat binder will keep you from absorbing about 10 grams of fat (my best guesstimate) so you could have 1/4 of an avocado. I know the feeling. I was in heaven when I got the binders and could have an avocado sandwich with sprouts.

You might want to consider making liposomal vitamin C so you can get more into your body without getting diarrhea. I don't know if anyone has ever put salt in a liposome so I wouldn't recommend that.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

Posts: 4676 | From western Montana | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
lymeboy
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
the Lowfat diet is going to be a huge transition for me. I eat meat daily and a good deal of fat. I am on the thin side with what I eat now. Switching will require more starch, and I really need to watch the yeast. So I've been balking at lowfat. I could definitely stand to drop some of my fat intake though.

I really don't know what my problem is. I can get to 80-85% and remain there for a while, then backslide a bit.
I have bad tooth pain, jaw pain. My last checkup rvealed no cavities. All of the overlapping sx between Bart and PR, I have as well. sleep disturbance... everything. But I have sole pain. It is worse in the mornings.

Drugs like LEvaquin knocked all my Bart sx out, but they would return within 6 months or so. Avelox seemed to knock it out for good, but it seems to have returned. I can't shake the damn Bart.
I also had drenching night sweats for about a month. This was a few months ago. I never had sweats to this degree. I was soaking through 3-4 shirts every night.

I think I have Bart and PR as well. I have no doc to help me through. I think at this point, I need to explore herbs and detox anyway. I have done the abx long enough. I don't really know how to proceed though. The Bart just beats me down sometimes and makes me want to stop trying...

IP: Logged | Report this post to a Moderator
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149

Icon 1 posted      Profile for Catgirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
Lymeboy, you are welcome!

It does sound like you have both bart and proto. Being off abx will also help you with yeast, so you will be able to eat more carbs (I eat a ton), plus veggies & greens help keep the yeast down. And of course parasite meds will help with proto.

I also really like what Nefferdun is doing too (haven't tried it yet).

[ 05-27-2014, 08:20 PM: Message edited by: faithful777 ]

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

Posts: 5418 | From earth | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
glm1111
Frequent Contributor (5K+ posts)
Member # 16556

Icon 1 posted      Profile for glm1111     Send New Private Message       Edit/Delete Post   Reply With Quote 
Lymeboy.

It may not be a good idea to exclude fat from your diet if you are already thin. The brain needs fat. The herbs + enzymes + salt/c got rid of biofilm for me. The parasites I had exit were surrounded with biofilm.

Something to consider.

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157

Icon 1 posted      Profile for nefferdun     Send New Private Message       Edit/Delete Post   Reply With Quote 
If you continue to eat meat and you have PR, you need to take something to bind with the iron because that is used to build more biofilm You could take lactoferrin or IP6. They won't address the stored iron you have though, at least the lactoferrin won't; I'm not sure bout the IP6.
Liposomal EDTA will bind with the iron in the biofilm as well as the magnesium It is a very powerful biofilm buster. First it will mop up the heavy metals because it has an affinity for those and will exchange minerals for metals.

Gael, if you do what I have been doing, starving the body of fat by taking a fat binder after meals - and then offering the most essential fat, phosphytidylcholine in the form of liposomes encapsulating killers, then your brain is getting good fats and something to penetrate the biofilm to kill the infections. It is making sure the fat you get is working to clear the biofilm, not contribute to it.

Meat is hard to digest and a lot of protein will keep you thin - hence the Atkins diet. It create a lot of toxins and our bodies are already full of toxins. Most of us have methyl cycle mutations making it difficult to detox anyway.

There are things that work really well to control yeast like xylitol, Cistus and grapefruit seed extract. Cistus is the best biofilm buster, according to Dr. K. You just have to remember to take it faithfully and not wait until yeast is a problem.

If you eat low on the glycemic index you probably won't have a problem with yeast. Lentils and beans have a lot of fiber. Brown rice and black rice are good too. Look up what is recommended for diabetics and follow that diet.

Georgetown University in DC did a study of the vegan diet on diabetics. All of the participants greatly improved their blood glucose levels and several of them no longer required medication. This goes to show you can keep your blood sugar low and still eat carbs.

When a person has too much body fat, the fat cells produce a substance that causes the other cells of the body to be insulin resistant. People who are on the thin side tend to live longer and be healthier.

Both bartonella and PR produce biofilm. You have to address biofilm because it is protecting the pathogens. Liposomal EDTA seems like the way to go to me. I posted a lot of information about liposomes. EDTA not only destroys biofilm, it makes the pathogens more susceptible to drugs.

It is hard to change your diet. Sometimes it seems like the only enjoyment left in life is eating.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

Posts: 4676 | From western Montana | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
Razzle
Frequent Contributor (1K+ posts)
Member # 30398

Icon 1 posted      Profile for Razzle     Send New Private Message       Edit/Delete Post   Reply With Quote 
Does EDTA bind mercury in fillings?

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

Posts: 4162 | From WA | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
lax mom
Frequent Contributor (1K+ posts)
Member # 38743

Icon 1 posted      Profile for lax mom         Edit/Delete Post   Reply With Quote 
I'm getting ready to start Alinia for suspected protozoal/parasitic infection of unknown cause (is it Babs/Proto/Giardia? Who knows.

...since I keep needing Flagyl or Tindamax every couple of mos for vaginitis/sweats/fever/fatigue.

I didn't think it was for Bart either. I took Bactrim DS or Doxy/Rifampin for Bart.

--------------------
♥ ♥ ♥ ♥ ♥
(aperture)
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=115161;p=0

Posts: 2519 | From USA | Registered: Aug 2012  |  IP: Logged | Report this post to a Moderator
ms dixie
LymeNet Contributor
Member # 40818

Icon 1 posted      Profile for ms dixie     Send New Private Message       Edit/Delete Post   Reply With Quote 
lyme boy , I suggest exploring ivermectin. It is an antiparasitical and I herxed like Hell t first . I take a cheap version ( vet med ) 3 times a week and have NO MORE ASTHMA!

I would target parasites - also consider albendazole and pyrantel . Personally I believe lyme is usually a cluster of infections - often parasites are a problem.

Posts: 153 | From Huntsville Al | Registered: Jun 2013  |  IP: Logged | Report this post to a Moderator
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157

Icon 1 posted      Profile for nefferdun     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have read EDTA does not get into the saliva so it won't leach mercury from your teeth. It is not a good chelator of mercury anyway. When I had a metals challenge my mercury came back very low. I had high cadmium and lead.

I think I am going to switch back to Alinia because the bactrim is giving me horrible headaches - all that sulfur.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

Posts: 4676 | From western Montana | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to the Terms and Conditions.

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.