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» LymeNet Flash » Questions and Discussion » Medical Questions » Muscle wasting doesnt stop

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Author Topic: Muscle wasting doesnt stop
Indica440
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While i felt like the cause of my muscle wasting is maybe "hormone related" this might be true to some degree, but i feel like it never stablized - so it must be lyme or coinfection related.

Even my leg muscels waste away even when i walk a lot or do whatever... It just doesnt seem to stop. Same for my arms and legs.

So far i tryed: growth hormone (zero success), testos gel, supplementing HC from 20-40mg with florinef.

Best yet was: High doses of whey plus kreatinin and weight lifting, still it was not lasting.

I dont think this is parasite related, because my muscle strength goes up and down on abx. It must have to do with either lyme or an coinfection. Its really severe my legs and arms look like someone who has AIDS. It shocks me when i look in the mirror.

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poppy
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People with severe muscle wasting have to be careful when treating lyme, because the inflammation from a herx causes it to get worse. Don't know if you are in the group that this happens to, but it would be important to know as it affects how you are treated.

You need to talk to your doctor about it.

Not entirely clear whether you are talking about wasting and strength vs strength....that part about wasting while walking is puzzling. This is not something you can see happening in the moment. It is silent and progressive. Goes on quite a while before you realize it. And does not reverse in a short time either.

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Catgirl
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There are so many pieces to the puzzle. It just may be a combo of both and more. Look at how AIDS turned out to be a virus issue. Have you seen Dallas Buyers Club yet? It was so good (supporting the body turned out to be crucial).

Even low B-12 can cause muscle wasting (there is a good thread here worth watching). For B-12, gene testing rules because even though it shows up in a blood test, your body might not be absorbing it.

I'm not sure how they all connect to cause the muscle wasting. I do think that parasites are somehow connected though (JMO). But who knows for sure? I am loaded with viruses, parasites and more.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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micul
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My best guess would be Bart, because it primarily uses amino acids for its fuel. The body cannot build proteins without all the pieces.

--------------------
You're only a failure when you stop trying.

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poppy
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Lymed people without bart also have muscle wasting.
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baldone
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Are you on a statin?

I was one one for a couple of years without taking COQ10 and my muscles degraded considerably.

Went off the statin and things improved.

Now on Fenofibrate and taking COQ10 and doing fairly well but long term statins for some people can do irreversible damage to muscle tissue.

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mlg
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I think quroum sensing, bile flow problems. For me anti-malarials and sleeping pills stopped muscle wasting. I was able to lift a little bit of weights and gain some muscle. Crypto, art, mimosa puddica worth looking at.
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GretaM
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Mlg-what is quorum sensing?
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mlg
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Quorum sensing is when the bacteria, microbes, etc. Talk to each other and kind of have a plan of attack. I know that Buhner and scientist talk about this.
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bluelyme
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Any luck with herbs mlg mentioned?

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Blue

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Judie
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l-glutamine builds muscle and helps with wasting if you can tolerate it.
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Jordana
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I don't think I have muscle wasting but weakness for sure. I took a spectracell nutrient test that didn't find any deficiencies except two -- alpha lipoic acid and carnitine.

Two supplements that can help I think would be creatine and carnitine. I couldn't tolerate creatine but it is one of the elements that are wasted in the urine when diseases start to eat your muscles. Carnitine is wasted in all kinds of illnesses including thyrotoxicosis. Replacing these might help.

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Brussels
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https://www.youtube.com/watch?v=sR-YV1wk1aQ

This guy has MS, and in 17 days, look at his muscle waste reversing!!! The video is in German, but I did a summary on the thread called

Multi Wave Oscilator and MS.

I had muscle waste AFTER LYME was gone. I never used really antibiotics.

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nomoremuscles
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I've had the same thing, pretty sure it's from abx wrecking the GI flora. Wasting and weakness. No good.
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glm1111
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Google" muscle wave oscillators for muscle wasting" for info in English.

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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Jordana
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It could be a viral co-infection. There are lots of studies about Epstein Barr that talk about myopathy and muscle wasting - I think most of the common ones do. But especially Epstein Barr can mess you up.
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bluelyme
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Im thinking it is b.l.o. and the possible cmv...one lady in hospital er kicked me to curb sayingnit was disseminated cytomegalovirus which happens to immunocomprimized ie hiv..im neg and at least that test is 99%....

i was thinking it was absortion problem so blammo we wipe out our immunity with abx and opportunistic infection hits...whats a good natural antiviral? Lomatium l lysine. .. my arms legs especially ankles and wrists are so gaunt

..i have livedo retic ever since that sulfamethoxazole like its mpa like vasculitis i wanna try to calm the cytokine storm. Other theory is that osp of bb was shed on endothelial lining and this is auto immune response .or that nerves needed were ate alive and they died or are dying...idk it is the one symptoms along with vertigo i want to figure out...abx wont help will it...i am treating with herbs rife and bvt iver and still feels like not enough . It was a short course 10day that spurred this so at least i know why my spine always hurt or why i would faint with low blood sugar..still frustrated and confused...girlie on hw says she has had some recovery of tone after hitting bart with abx ? Ideas?

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Blue

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Jordana
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Buhner recommends a "muscle tone blend" from woodland essence. Pine pollen, American Ginseng, something else I can't remember.
Posts: 2057 | From Florida | Registered: Feb 2015  |  IP: Logged | Report this post to a Moderator
   

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