LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I want to update on how I am doing with my protocol.
I feel so good that I find myself doubting that it can be true!
In case you don't know me- a short history:
I had (I am now thinking) at least 20 years of suffering with lyme and the other buggers, undiagnosed all this time until last summer.
Tried antibiotics, ran out of money and found a better way for me using herbs through my llmd who tests with Bioenergetic testing.
Today, at this time in my treatment I am feeling so good I want to swing around in circles holding hands with others in happiness!
I can type and read and RETAIN so much more than I was able - which was next to none a few short months ago! (OK, it was a LONG few months, but...)
actually I feel so good that I am forgetting how bad I felt.
I am hoping that it is all for REAL and without letting thoughts of getting reinfected fill my mind (yow!) and not just a dream waiting to be squashed by a setback or something.
Can it be true?
DO people get way better and then get way worse again without getting reinfected???
I have energy. I can sort of jog again to the mailbox- haha. I can dance around the house and sing again. I can use big words again and collect thoughts and talk to people again.
The symptoms come and go with intensity - that has not changed, but what has changed is the intensity at the times I get these symptoms.
All this I think I owe to the wonderful herbs and the crazy way they are taken.
Please, please please God, let this be for real!
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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After 2 years of multiple abx for lyme/bart our daughter has been on Buhner's bart protocol for a year now and we are seeing continued improvement. I am using the protocol myself; though undiagnosed (we couldn't afford to treat two) but with symptoms and also feel great!
I think if we can continue to keep our bodies healthy with proper nutrition and exercise, and keep our immune systems perking along, I see no reason for relapse.
Can you share the herbal protocol you are using?
-------------------- 13 yo DX PANS/Tourette's/Asperger's/ADHD treated for Igenex positive bartonella/IND lyme with 2 years of abx treatment. Weaned off abx April 2013 at 80% improvement. Continuing with Buhner bartonella/babesia protocols. Aug 2014 99% improvement. Posts: 265 | From Canada, Ontario | Registered: Jul 2013
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tick battler
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Member # 21113
posted
Herbs are much more effective than abx for lyme and coinfections. I try to tell people this but it normally falls on deaf ears. Same with my point about parasites that I have brought up in the past. You have to treat them to get fully healed.
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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tick battler
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posted
rowingmom - I can't recall if we spoke in the past but I see your daughter has PANS/PANDAS. We have discovered that the root cause of PANS/PANDAS is parasites (worms!). So perhaps the herbs you are giving her are hitting parasites as well. Just keep this in the back of your mind as you continue to heal her. You have to get rid of the parasites to heal PANS/PANDAS. This will give the immune system a huge boost.
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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tick battler
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posted
LisaK - I just noticed you said your LLMD uses bioenergetic testing. That was a huge part in our recovery. It is so helpful to see which infections you have and what will be effective to kill them.
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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GretaM
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posted
Lisa-I am SO happy to hear you are feeling better and better! That is wonderful news! Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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Catgirl
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posted
AWESOME!!!
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Marnie
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Member # 773
BTW...I personally HAVE done electroacupuncture for carpal tunnel (several treatments) as well as splinting ($ special splint) and finally cortisone shots (MAJOR OUCH! I cried in pain all the way home from the doctor's office.).
It only healed when I fought the pain and believe it or not...recovered *spontaneously* when trimming our bushes using a long hedge clipper.
The ACTION, the wrist EXERCISE cured my carpal tunnel problem. I have no doubt that the steroids to reduce the inflammation coupled with the exercise several days later were the healing factors...the "magic" combination.
[ 04-04-2014, 12:41 PM: Message edited by: Marnie ]
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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tick battler
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posted
Marnie, Do you have a child with PANDAS or PANS? If so, are you curing your child??? Do you realize that mainstream medicine is WAY behind the rest of us?
You cite Wikipedia for your "research"? Give me a break. Of course I know what PANDAS stands for. If you would READ and LEARN like you condescendingly say to me, maybe you would understand that doctors are finally realizing that STREP is not the only cause of these symptoms. Hence the term "PANS" now is used more often than PANDAS.
Doctors really have no clue why these children react to strep and other bacteria this way. Maybe, just maybe, it is because their immune systems are overrun with PARASITES???????????????
I have experienced this first hand. I have seen my daughter's PANS symptoms worsen when our well water went bad with parasites and then improve when I treated the parasites. And guess what....no more strep infections now either. No more sore throats and headaches and stomach aches. Funny how that worked.
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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LisaK
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posted
rowingmom it seems to be a mixture from different sources with the focus of them coming from Monastery of Herbs. I can only get this through my dr.
There is also Chlorella and Cilantro involved in a huge way- this from other sources - if you want let me know and I will post.
Tick battler and Marnie, I was treated for tapeworm second and after that strep. THis is when I felt the MOST healing and rejuvenating in my body!
After the strep treatment I was way way better. BUT.... I have more parasites to rid near the end of my line.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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Marnie
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posted
Where is your link/reference to worms as the cause of PANDAS/PANS? Or is your belief based solely on your experience with your own parasite contaminated well water?
Do you not have a well water treatment device in your home?
I grew up in a home (5 acres in the "country"), we used well water that went thru a very special treatment device in our basement and our water in Wis. (summer home) also came from a community well that was (by law) monitored.
IMO...the responsibility of homeowners to test their well's water quality and pay attention to it because really it's up to them to ensure that the quality of the well water is good for the sake of their family.
"Unlike PANDAS,
PANS as yet has no known bacterial, viral, immunologic or environmental trigger.
Dr Susan Swedo, principal investigator, maintains that PANS will likely turn out to “include a number of related disorders with different causes that share a common presentation.” Identifying this subgroup will allow for better surveillance and research over this acute neurobehavioral cluster of symptoms."
If you live in a rural area that may have been treated with pesticides that seeped into the water table, it might be a good idea to get your well water tested for DDT/DDE ALSO.
Not all home water filters remove Giardia. Filters that are designed to remove the parasite should have one of the following labels:
•Reverse osmosis, •Absolute pore size of 1 micron or smaller, •Tested and certified by NSF Standard 53 for cyst removal, or •Tested and certified by NSF Standard 53 for cyst reduction.
To learn more, visit CDC’s A Guide to Water Filters page.
As you consider ways to disinfect your well, it is important to note that Giardia is ***moderately chlorine resistant***. Contact your local health department for recommended procedures.
Remember to have your well water tested regularly, at least once a year, after disinfection to make sure the problem does not recur.
BTW...I personally HAVE done electroacupuncture for carpal tunnel (several treatments) as well as splinting ($ special splint) and finally cortisone shots (MAJOR OUCH! I cried in pain all the way home from the doctor's office.).
It only healed when I fought the pain and believe it or not...recovered *spontaneously* when trimming our bushes using a long hedge clipper.
The ACTION, the wrist EXERCISE cured my carpal tunnel problem. I have no doubt that the steroids to reduce the inflammation coupled with the exercise several days later were the healing factors...the "magic" combination.
PANS is a Pediatric Autoimmune Neuropsychiatric Syndrome caused by infections other than strep. Our daughter's was caused by bartonella. At least this is how our LLMD explained it. With treatment for bartonella herxing would cause increased PANS autoimmune flares, along with more normal bartonella herx symptoms (headache, long bone pain, foot pain). As bartonella titers have fallen the autoimmune response has resolved.
Our LLMD said that the PANS symptoms were caused by bartonella, but I suppose they may have been caused by something else which also responded to rifampin/biaxin/tindamax etc.
-------------------- 13 yo DX PANS/Tourette's/Asperger's/ADHD treated for Igenex positive bartonella/IND lyme with 2 years of abx treatment. Weaned off abx April 2013 at 80% improvement. Continuing with Buhner bartonella/babesia protocols. Aug 2014 99% improvement. Posts: 265 | From Canada, Ontario | Registered: Jul 2013
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posted
Hi, I do not want to offend anyone. I agree with tickbatter. My citation is talking directly to two top notch LLMD's and a top resesrcher personally.
About last August my LLMD had a doctor's conference with top notch LLMD's. She said attack worms and anti-parasitics and then anti-malarials. Dr F was at that meeting. Dr K has been saying this all along. Today I had a phone conference and it this wad r re-iterated.
I have seen the improvements and they cannot be denied.
My top notch LLMD who did not treat with anti-parasitics a few years ago is now treating. The LLMD told me that the toughest cases of lyme were responding to anti-parasitics.
The sun cannot be covered with a finger. The truth will come out.
One can also look at the parasite thread.
Posts: 697 | From CA | Registered: Dec 2011
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Would love it if you could share more about the bioenergetic testing and how it works.
Wishing you continued healing Posts: 486 | From USA | Registered: Jan 2012
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canefan17
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posted
Great news Lisa.
What are some of the herbs/formulas helping you?
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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dbpei
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posted
Lisa, this is wonderful! Thank you for sharing. We need more stories like yours. Posts: 2386 | From New England | Registered: Aug 2011
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
Thanks everyone for sharing in my happiness!
)
My only worry is that one day I will flair and have 100 steps back as you all probably can relate to, but I am keeping hope and faith that even if I step back I will be still be moving ahead!
Here is a link to a thread here I started on the testing methods for those interested.
The herbs I get are form my dr. They come in kits.
The last kit I did was for lyme.
Here is what I did, to give you example of what I took for that:
Nature's Balance CHLORELLA - 100% organic- 335mg caps- taken after 2 hours of not eating or drinking anything but water. Dose: 4 caps.
Thirty minutes after that I take Cilantro in liquid form. This was originally by Dragon River Herbals, but my dr now switched to CIlantro with Yellow Dock by Vitality Works.
I take 13 drops or so drops in small amount of hot water and let sit for a few seconds, then fill with cold water so I can drink it down with the next set of pills which are
for lyme: "SPIRO L" from Monastery of Herbs (MOH) , and the two SPIRO L tinctures that go with this kit, also my MOH.
Each Capsule is 550mg of the following herbs- not sure how much of each-
Obviously some are roots and the others are leaves.
The tinctures are very strong. I don't have the list on ing. in front of me for those, sorry.
So... You take all that and wash it down with the cilantro "tea" and then stick a small super powerful magnet on the back of your head for 5 minutes.
Then you avoid all electronics and metal, synthetics, etc, things for at least 2 hours after.
The magnet helps activate the herbs and distribute them.
The chlorella binds the toxins and the cilantro takes them away out of your system. Ithink that is how it works if i am not mistaken.
Of course you will all understand I am getting better- I am not fully healed or claiming that this WILL fully heal me
I just know that after my first 4 treatments I am a different person.
SO far I was treated for in this order: #1Babs- surprisingly didn't feel much different after this one, but i remember lots of neuropathies pricking me everywhere for the duration
#2tape worm- this one gave me great pain the first day, in my guts and organs Ithought I was going to die- but after that I didn't feel anything and I felt fine, but no significant improvements that others would notice
#3 was STREP. That is when I felt the MOST improvement after this treatment. It was like night and day almost. it did give me lots of nausea and some vomiting and cold/flu symptoms (herx).
#4 was lyme. THis was the most symptom filled treatment with tons of hex- tons of pain, fatigue like crazy, etc. and I feel now- with lots more mental function including increased ability in everyday things
like typing, reading, running, EATING, and some increase in my loss of IQ points.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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ukcarry
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posted
Interesting approach. I am so glad that you are really feeling a difference, Lisa. The magnet is clever: i am been wondering about linking the timing of treatments with use of PEMF whole body treatments , which should work similarly.
Good luck for continued improvements!
Posts: 1647 | From UK | Registered: Nov 2008
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canefan17
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posted
What was used for the tapeworm & for strep?
Thanks for the info - very helpful
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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posted
My doctor said COQ10 kills tapeworms.
Posts: 697 | From CA | Registered: Dec 2011
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ukcarry
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posted
The dose of COQ 10 for tapeworms is a one-off high dose, so I doubt if the sort of doses we normally might take would make any difference.
Posts: 1647 | From UK | Registered: Nov 2008
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Those herbs are so different from what i know about...im used to buhner
I dont understand about tapeworm and coq10...what dose in mg will get tapeworm
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Re: memory...this old Chinese remedy may help too:
"Synaptic communication forms the basis of learning and memory.
Disruptions of synaptic function and memory have been widely reported in many neurological diseases, such as dementia.
Thus, restoration of impaired synaptic communication is a potential therapeutic approach for these diseases.
In this study, we demonstrated that supplementation with
berberine, a plant alkaloid with a long history of medicinal usage in Chinese medicine,
***effectively reverses the synaptic deficits induced by D-galactose.***
"other groups have demonstrated that Borrelia burgdorferi, B. garinii, and B. afzelii
attach a D-galactose molecule
to a cholesterol molecule via β- galactosidic linkage in place of a D-glucose molecule
Put simply, the O-glycoside bond between sugar molecule and sterol molecule in H. pylori differs from the O-glycoside bond between the same two molecules in other organisms.
P.S. Berberine chloride (OTC - internet, Glycox) works in synergy with difulcan (Rx) to rid RESISTANT candida. Berberine may well be effective against Bb too for MANY reasons - lowers LDL, impacts insulin resistant cells, acetylcholinesterase inhibitor, etc.
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
update: I am finished with following treatments
bart, lyme, babs, strep, parastic worms
I have RMSF, CMV and vericella to go!
I am feeling very different after each treatment, some ways much better, some ways worse. I am trusting my dr more and more.
I have taken my entire family there now, and they are all doing or starting treatments soon. kids are aged 15-20
my husband has finished malaria and a worm and next for him is lyme. I see a difference in him to be sure.
I think the way this all works is when you do a treatment and kill that disease you notice the other diseases left to treat much more- as if they are awakened or out in the open unable to "hide" under the previous buggers any more.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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CD57
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Member # 11749
posted
Lisa, what is the bart treatment? These were all from monastery of herbs?
I am going to ask my doc about them.
Do you even have bart?
I find it interesting that the STREP caused the most improvement.
Posts: 3528 | From US | Registered: Apr 2007
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LisaK
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Member # 41384
posted
I tested + for bart. I just finished my bart treatment so I will get rechecked to make sure it cleared.
all treatments had a major part come from MOH, yes. I also took chlorella and cilantro- let me know if you want that info.
every one of the treatments are the same in that they are the same way taken, same time each day. Let me know if you want specific ingredients for the bart label and I can get it, just not now as I am so tired from a very long day
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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posted
Regarding the worms, there is a Facebook group called CDHealth where only chlorine dioxide is used for treatment and a few other things in a new autism protocol, (basically CD is the same as MMS) this treatment has been developed mostly for autism, but some lyme folks are there too. With this treatment these folks are passing A LOT OF WORMS! They regularly post photos of them.
The treatment is based on Kelly Riveria's book about Autism and using chlorine dioxide. OH, if you haven't read the book they don't want you posting in the group.
Although I haven't done Kelly Riveria's protocol I did do CD for one month and it really helped my mycoplasma symptoms. I didn't do it long enough though and it gradually started to come back in a few weeks. That is the time when I realized it was mycoplasma and Rife is doing great with it, eliminating about 80 percent of symptoms in just a few days. Now two month later no symptoms but Im still rifing for it just in case.
many alternative treatments help people to get way better, herbs being just one. I feel that I had a great advantage over most of the folks here on this forum because I never damaged myself with antibiotics for this.
Posts: 803 | From USA | Registered: Oct 2013
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LisaK
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Member # 41384
posted
sounds great Carmen!
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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posted
Lisa...I am so happy to hear you are making progress! I hope this means you are on the path to wellness.
Can you share what you used to treat the strep? That has been a constant battle for me.
-------------------- Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting. Posts: 451 | From Virginia | Registered: Feb 2009
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LisaK
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Member # 41384
posted
Pam, my strep treatment was several pills filled with herbal tinctures and also dried herbs. The list is long. let me know if you want that info and Iwill see if I still have it.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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LisaK
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Member # 41384
posted
well, I am in my RMSF treatment.
Things feeling better: brain - memory, letter confusion, energy level way better fatigue continues to improve able to eat foods that before gave me terrible allergic reactions
I am working more, yay. I can tollerate more noise less heart irregularities tinnitus seems less maybe
Things that I notice feel worse or different:
very sharp shoulder pain that comes and goes pain in feet again (worries me) climate sensativity itchy skin- mostly on chest and back and scalp
and I have some anxiety, but not susre that is related as I am also having three teens that give me that, ha.
I hope these are good signs of moving forward.
I am still mostly always hopeful, but cautious in my total acceptance that this is a curing. Time will tell
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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We have done so well by EAV testing (kind of like what you are doing) coupled with herbs and photon treatment.
In fact we use a frequency based on SPIRO-L to treat with photons for the lyme.
As you say the testing really helps to know what to treat next.
We have had some setbacks, usually when the "next in line" pathogen comes into play, but we get through it and keep the healing coming.
All the best to you in your continued journey!
Posts: 372 | From british columbia | Registered: Feb 2012
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Brussels
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posted
Congratulations!
I have no doubt herbs are better than chemicals in general. At least, for me, and for my child.
I only use the harsh stuff when I find nothing (like now, I do not find anything against a tooth infection and I'm taking MMS).
Another wonderful tool are homeopathics. If people knew what these homeopathics could do, they would certainly use even herbs after it, I think.
If I had to choose between homeopathics, herbs and chemicals, I would take these in this order: 1st homeopathic, 2nd herbs, last chemicals.
Homeopathics go deeper than herbs in the body.
They can attack deeper, closer to the root of the problem, in my experience (I take it for more than a decade now). The problem is the AMOUNT of products that exist in the market. And of different schools of homeopathy.
Posts: 6199 | From Brussels | Registered: Oct 2007
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LisaK
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Member # 41384
posted
Brussels, my dr uses both homeopathics and herbals but herbals to get bugs and other stealth organisms OUT. I wasn't aware that homeopathic meds can actually treat a disease or illness , etc, but I thought they treat the symptoms of the disease . ??
I have been using homeopathy for decades and never heard they cure a disease. Can you tell me more or send a link(s)? thanks
SickSci, my pain is like an ice pick- or more like a rusty bayonet stabbing through my shoulder. It feels like it enters at the joint maybe and sometimes radiates out in lightning type jolts that feel staggered in spots. and I feel heat with it too I think. very very painful.
I was diagnosed with rotator cuff tendonitis when I first started having (lyme?) pain about 22 years ago.
sometimes the pain feels like it comes form the back of shoulder and other times straight down upways, etc.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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Posts: 431 | From New England | Registered: Dec 2011
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Brussels
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Member # 13480
posted
Lisa, what kind of homeopathic treatment are you using? Classic homeopathy is one, very popular, that helps steer the soul and body basically. Sometimes, it can help a lot. Sometimes, you barely see any change.
Nosodes are the most potent remedies in my opinion, against infections, if these pathogens react to homeopathic nosodes.
Some infections simply don't react to nosodes, but when they do (like borrelia, bartonella, candida for example, or some viruses), I find they are very powerful and curative on their own. Nothing is better than nosodes, for me.
The problem with homeopathy, I think, is that the cleaner the body, the stronger you react to these products. If you already load yourself with chemicals, colorants, pesticides, cosmetics, plastics etc, I wonder if homeopathy does something...
SANUM treats infections only with nosodes. It is an amazing 'school', I find, to treat candida, fungal infections with it. Aspergilus, mucor species, they react well to Sanum drops. Dr. K. is a big fan of Sanum. I got almost all their products at home.
Another way to use homeopathy, that my lyme doctor was doing (and still is), is to choose one substance for each detox organ: one for your liver, one for your kidney, one for the lymph, one for the GI tract.
If you are sick with lyme, or candida, you can be almost sure, your detox pathways are blocked. And that could be THE reason why you fell sick with infections at first (like all people here, including myself).
So de-blocking your detox organs is a must for recovery, or toxins, herxes, all stay inside. He still uses this approach, after years treating basically lyme patients. It is also 'curative' in a way.
For example: no matter how much milk thistle you take for your liver, sometimes, it feels strange, specially during herxes. After taking the right homeopathic product, it is like a door has been opened, your liver is healed, and the milk thistle will help it MUCH more than it did before.
After 2 weeks, I needed to change the homeopathic product again, as my liver got blocked again. that is what my doc was doing, always kept changing products for all organs, until the patient got better.
Side by side, he was giving the patients killers (whatever tested good, herbs, garlic, antibiotics). He said that he rarely saw any case of horrible herxes among his patients.
Another way to use homeopathy is the way HEEL produces its remedies. Take a look at Heel products like Lymphomyosot, Hepar Compositum etc. Dr. W. uses them after photon treatment, to help the body get cleaned too. I like them too.
Herbs are in the middle between chemicals (they are a combination of chemicals) and homeopathy, I find. Homeopathy tries to correct things from inside out.
Single chemicals will never correct anything, they are basically a quick relief when you don't know what else to do, in my opinion.
Herbs are much more intelligent, in a way, as they have hundreds of chemicals inside, and your body will use what it needs, and the chemicals inside a plant sort of balance other chemicals, and it is a bit like magic, things work usually smoothly.
But you need long term treatment too (with herbs), and they do not, in my opinion, correct what is fundamentally wrong inside a sick body. They are though helpful, I agree.
I always combined homeopathy with herbs, and tapping (like acupressure).
You can google for SANUM and HEEL to find out more stuff. If you don't find anything, I can send you links...
Posts: 6199 | From Brussels | Registered: Oct 2007
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LisaK
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Member # 41384
posted
Just finished RMSF treatment. Thank God. I am getting so tired of taking stuff.
I have three more treatments to go until I finish my protocol and "see how I feel" according to my dr's suggestion.
I feel really good. I mean, I still have symptoms, but way more sustained energy and I am able to do so much more than I could even just one month ago.
It is like night/day how different I feel.
I can think and reason so much better. I hope it lasts. I hope it is here to stay and keep getting better!
My next treatment is for blastocystis.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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LisaK
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Member # 41384
posted
Some people asked for an update, so...
I am now finished with my 8th treatment using herbals and suppliments. I have at least two more to go, and hopefully that 2 will do it for me.
I am feeling pretty great. I have tons of energy and I feel vibrant almost every day. I still have some symptoms, but with each week I feel better and better.
I am almost forgetting how bad I felt just a few months ago!
I still have much healing to do as my body has been through a lot. I have been able to eat more things, which I am not sure I like since I have gained some weight back, haha.
I would say that my major symptoms at this time are: tinitus joint pain, mostly in hands/fingers, feet, ankles, knees, hips
I have other lesser symptoms. I have come a very long way. a year ago I could barely walk right, talk right or think. I could not read or retain anything. I can now read books again! yay. and I am using big words again, yay. sometimes even surprising myself.
I am still seeing the same lyme dr. I take almost no extra supplements because I have no money, but I don't really feel too bad , so I am actually amazed. I eat pretty much what I want, although I am allergic to wheat AND gluten, so I do try and avoid those as much as possible.
I really follow no specific diet (except for avoiding allergic foods as much as possible).
I am so excited, but I do realize that no one really knows it all and I am a doubter , so I am hoping for the best if not a full recovery. I have been trying to remain positive in my thoughts and keeping away from negative people/things.
God Bless
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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posted
whether you have worms or not, the drugs and herbs that fight off parasite infections may actually stop spirochetes from attaching to surfaces and forming biofilms.
-------------------- * Posts: 74 | From Bowie, Maryland | Registered: Aug 2014
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
thank hermit!
I will ask my dr about biofilms and if what I do is getting them.
I have been treated for parasites proir to other diseases. they were the first to go.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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TNT
Frequent Contributor (1K+ posts)
Member # 42349
posted
Hi LisaK,
We haven't heard an official update in a while, but it looks like from your other posts that you are doing well, especially over this holiday season. I'm so happy for you!
I noticed that you have just tested for heavy metals.
Care to update on your overall treatment/progress more specifically....and how you have been feeling?
Posts: 1308 | From Eastern USA | Registered: Oct 2013
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
hi TNT!
I am doing pretty good.
compared to a year ago , I am doing extremely well!
I don't really know how to gauge the actual level of my betterment.
I was able to read again starting about 3 months ago. prior to that I could not read much or retain much at all for about the prior 14 months or longer.
I used to be able to - in non diagnosed past before sx got to extreme levels- memorize most of a recipe for cooking from a cookbook and do it without checking back too often. during my worst time period I had to look back every single step to the recipe.
like "1 cup nuts", then put it in. and if I was distracted I had to check back several times just for that one ingredient! (this is only a small example)
now I can once again remember some of the directions without checking so often, and I can remember a sequence of numbers more easily too. this has me very excited. only a few months ago I couldn't remember more than one number at a time and that was with great panic and fear of forgetting that one number. (like for phone numbers, passwords, etc)
this is only a small example, but there are so many many small examples.and I am sure you all can identify with what I am trying to say for the most part.
I just played Srabble last night - board table top version- which my best friend and I love to play.
I realize that i could not beat her in years. maybe even a decade! and I just always thought she was gettnig smarter, but it was me getting dumber. last night I beat her both games. and I realized that I could spell better, words were coming to me, and I planned better with placement of double points, triple words, etc.
only a few months ago I would not have even known why I couldn't beat her.
small , small examples here, but they mean a lot to me and my progress.
there are many improvements. most small. I have finished all my drs rx treatments for tick disease and other illnessses- like varicella.
I notice a great change in a lot after that varicella tx- like my tinnitus almost went away with that tx and when I was done it came back screaming mad in my head for weeks.
now it is more subdued again. my dr tested me for heavy metals with his biomeridian machine and found mercury, alluminum, arsenic and somehting else I don't recall, so he rx urine testing which I did last week and still waiting for results.
I am guessing they will be confirmed, and I hope that their removal will take care of the tinnitus, but I don't know much about HM yet , so ......
I have a lot of fatgue still and dr says it is from my adrenals working at only around 30%. he says this is the reason for many of my lingering sx.
is he right? who knows. time wil tell.
he gave me pills for adrenals and told me to go back in 3 months to get retested.
so I have been cleared of lyme, bart, babs, RMSF, varicella, strep, CMV, taeniea, blastocystis.
I still have many sx though, and I try and remain hopeful and try also to have faith in my dr, but sometimes question that I will be 100% well, or even well enough to be considered 'cured'.
I am far from a 'normal' life. I am thinking less and less that anyone like me undiagnosed for too long, could be totally healed. i still have bouts of lyme-alzheimers which really frightens me.
so- all this considered I would guess my improvement *to me* is about 75% from my most horrific time frame, but only about 30-40 % recovered to what I remember being long long ago.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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posted
Herbs and other natural ingredients like Aloe Vera are very useful and healthy for fresh skin, I used to buy skincare products with rich chemicals but then I started using the natural skincare products by [/URL]* and my skin got better and better in a very short span of time. I believe there isn't a better option than healing with herbs and natural plants.
** edited link **
No selling allowed. You agreed to that when you signed up.
[ 06-21-2021, 11:11 PM: Message edited by: Lymetoo ]
Posts: 3 | From United States | Registered: Jun 2021
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
SORRY I guess I never saw your question from back then, PHILLYTWIN!
my treatment at that time was great. however I had some bumps in the road as most do. my lyme seems to be away for a while now, but my bart and babs are here....
always something..
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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