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» LymeNet Flash » Questions and Discussion » Medical Questions » What are the expensive Lyme and coinfection drugs?

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Author Topic: What are the expensive Lyme and coinfection drugs?
Judie
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I think it will be helpful when people are shopping for insurance to be able to ask if certain drugs are on the formulary, especially the expensive ones.

For me, these weren't covered this year:

Bicillin ($750-$1000 per month)
Rocephin ($100 per month)

What other drugs have been expensive for you?

I hear Rifampin is expensive, but I've never had to pay for it out of pocket.

Posts: 2839 | From California | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
randibear
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hmmm, I know its not lyme related but my sister has severe rheumatoid arthritis. she's on iv and some others. her iv drug is 4 yes 4 grand a month and her insurance will only pay a small amount on the orecia and others.

I don't see how she makes it.

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do not look back when the only course is forward

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surprise
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Alinia can be quite pricey.

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

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Lymetoo
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$100 a month for Rocephin?? That is CHEAP!!

Mepron is VERY EXPENSIVE.

--------------------
--Lymetutu--
Opinions, not medical advice!

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Judie
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It was generic rocephin. The price has gone down over the past few years.

I got it from the local hospital pharmacy. That was the price for 20 viles.

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birdie67
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Mepron
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Judie
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Randibear - Good lord that's expensive. Any chance she has Lyme too?
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GretaM
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Mepron, $800 for 21 days at 2 tsp a day.

Generic Rocephin 40 grams total (40 vials) $1680

It just goes on and an. Where does it end?

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surprise
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I thought they recently came out with generic Mepron?

They recently came out with generic Lunesta (sleeping pill).

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

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randibear
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oh my yes, and my other sister also.

but it's the ole denial and who do you think you are routine. plus they see some real quacks.

--------------------
do not look back when the only course is forward

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LisaK
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my doxy was about $400 a month. Luckily I had a reduced cost with a medicaid card I got years ago that brought it down a little.

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Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

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MTMT
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Mepron is crazy expensive. I never did ask the price but when I did take it you could see the pharmacy attendants eyes get real big when they looked at it. Every time they said it must be nice to have real good insurance. I head it was between $1500 and $2000 for a months supply.

I just started Bicillin and it is about $80 a shot.

Insurance only left me on the hook for $120 a prescription.

I am sure there are many others but these are the two I have had experience with.

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Judie
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MTMT - I want your insurance! That sounds great. [Smile]
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Judie
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I have friends who are getting prescription coverage and want to give them a list, so I'm reviving this topic.

Here's what I have so far:

Alinia
Mepron
Bicillin
Malarone
Doxycycline
Rifampin

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steve1906
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Generic Mepron Availability

http://www.drugs.com/availability/generic-mepron.html

Steve

--------------------
Everything I say is just my opinion!

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Judie
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Generic Mepron (atovaquone) is over $1000 per month in my area. [Frown]

If you check goodrx.com there are coupons, but it's still pricey.

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Tincup
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Click on the Medicine Link under this "Help For You" section. May be some way to get better prices. Hope so.

https://sites.google.com/site/marylandlyme/help-for-you

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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Judie
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Bumping for those shopping around for insurance since we're coming to the end of the year.
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GretaM
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Ivermectin.

$145 for 225mg.

From here on out, I will be using the cheaper alternative, if you catch my meaning.

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SickSci
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Mycobutin (rifabutin) - my insurance covers it for now, but I've noticed the insurance is paying over $1700 for a month supply... and that dosage is about to double.
I'm sure I'll quickly hit insurance caps at that price...

GretaM -
FWIW, I swear the cheaper alternative seemed to actually work better for me. I wonder if the paste is more bioavailable.

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- Working Dx: Protozoa x3, Bartonella
- Tx: Biaxin, Mycobutin, Ivermectin, boluoke, serapeptase, allimed, silver ACS 200 spray, Mg, Iodoral, fish oil, Vit's B, C, D, NAC, etc

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