LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Relieving lyme arthritis

 - UBBFriend: Email this page to someone!    
Author Topic: Relieving lyme arthritis
Ellen101
Frequent Contributor (1K+ posts)
Member # 35432

Icon 1 posted      Profile for Ellen101     Send New Private Message       Edit/Delete Post   Reply With Quote 
Here's a great article dealing with lyme arthritis
http://goodbyelyme.com/blog

Posts: 1747 | From United States | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
Judie
Frequent Contributor (1K+ posts)
Member # 38323

Icon 1 posted      Profile for Judie     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've tried all those except the blood letting.

No relief for me with any of those alternative methods and I'm not attaching leeches to me. Yikes!

I know different things work for different people.

Cupping just left me with welty bruises and more pain.

Antibiotics is the only thing that's given me relief.

Posts: 2839 | From California | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
Member # 5230

Icon 1 posted      Profile for lpkayak     Send New Private Message       Edit/Delete Post   Reply With Quote 
Ibuprofen helps my arthritis...i wish it didnt cuz it messes up gi but i cant walk at all without it

I know a woman who probably had lyme...she had a big cancer surgery and needed a lot of blood transfusions cuz she lost so much blood

Family and doc could not believe how easily she recovered

Some think getting rid of lyme blood and getting new blood saved her..maybe bloodletting does work

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
Judie
Frequent Contributor (1K+ posts)
Member # 38323

Icon 1 posted      Profile for Judie     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think bloodletting (draining out blood) is different than replacing blood like in a transfusion.

The article doesn't mention replacing blood. It mentions draining blood.

Posts: 2839 | From California | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
randibear
Honored Contributor (10K+ posts)
Member # 11290

Icon 1 posted      Profile for randibear     Send New Private Message       Edit/Delete Post   Reply With Quote 
Does arthritis go away with lyme treatment? Are the symptoms reversible with lyme treatment?

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
Member # 5230

Icon 1 posted      Profile for lpkayak     Send New Private Message       Edit/Delete Post   Reply With Quote 
Randi after all these years asking that question i still dont understand

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
Judie
Frequent Contributor (1K+ posts)
Member # 38323

Icon 1 posted      Profile for Judie     Send New Private Message       Edit/Delete Post   Reply With Quote 
"Does arthritis go away with lyme treatment? Are the symptoms reversible with lyme treatment?"

Mine has gotten better with bicillin shots. It got waaaaaaay worse when I was on rifampin.

The pain is less, however my body is very stiff and weak. I feel 100-years old getting up from a chair, but I can go up and down stairs with very little pain now.

I'm very slow, but it doesn't hurt as bad to do things like type.

Posts: 2839 | From California | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
lostlyme
LymeNet Contributor
Member # 38561

Icon 1 posted      Profile for lostlyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Well in my case and for others I hope. The lyme arthritis is gone. I no longer feel like a 100 year old person.

Now I feel like a normal 52 year old. No arthritis , stiffness and very strong .

In February of 2013 , I felt normal I was out of work for 2 years.

I took it one day at a time did not want to over do anything.

April 2013 went back to work mandatory 6 to 7 days a week. Minimum of 12 hours a day .

I am a construction laborer

Did this till November , job completed , no missed days or nights.

No pain , etc . So yes it can get better

Posts: 238 | From Where | Registered: Aug 2012  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
Member # 5230

Icon 1 posted      Profile for lpkayak     Send New Private Message       Edit/Delete Post   Reply With Quote 
My llmd told me after 3 yrs aggressive abx that my joint pain might never get better. It had to do with me having hla 2 and 4 genes

My arthritis started at age 33 and was first dx ra then changed to fibro and by 35 confirmed oa

Im 65 now. For 30 yrs my oa has continued to spread-confirmed by xrays

It is almost every joint

Abx tx helped many lyme sx and i was able to teach pe for 30 yrs and ride and kayak with modifications until 3 yrs ago

Some say my genes are like the ones who were healthy...took the lyme vaccine and got really sick with untreatable arthritis forever

They say when Bb got in my body it started the process of oa and nothing will stop it

Others say Bb eats cartilage

I have had many surgeries and docs always say they cant believe how bad my cartilage is for my age

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
Member # 5230

Icon 1 posted      Profile for lpkayak     Send New Private Message       Edit/Delete Post   Reply With Quote 
Some say Bb eats cartilage

i hear of ppl getting better with tx so i am confused

I read all i can about lyme and arthritis and it seems to me there are two things going on

-lyme arthritis with typical large swollen joint that gets better with tx

-osteo arthritis induced by Bb that can be managed but never cured

But im not a doc and i still dont understand what is really happening

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
Member # 5230

Icon 1 posted      Profile for lpkayak     Send New Private Message       Edit/Delete Post   Reply With Quote 
Randi-one priblem with your question is there are many kinds of arthritis
-lyme-that i still dont know definution of
-rheumatoid
-osteo
-psoriatic
And many more-they are like different diseases

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
kimmie
LymeNet Contributor
Member # 25547

Icon 1 posted      Profile for kimmie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Systemic enzymes from vitalzym on an empty stomach are the best anti inflammatory I also take LDN For the most part I am pain free, and I have HLA 4 and had horrible pain with a diagnosis of RA/OA. No symptoms of that anymore.

iherb.com is a great source for vitalzym. Read the reviews. Helps so much with inflammation. Best wishes

Posts: 747 | From Utah | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
MTMT
Member
Member # 40756

Icon 1 posted      Profile for MTMT     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am finding out that yes it can get better...but it has been a very slow process for me. My knees started to ache more and more over a period of months to years until one day out of the blue both started just burning like hell and no pain medication would even touch them. That is found out I had Lyme disease...although I knew many other things were wrong with me but lived in denial.

My experience with the knees...pain and stiffness quickly subsided within a few days of starting amoxicillin...only to return with a vengance. When I finally got cyst busters in the mix it started making a world of difference. The the switch from one cyst buster to another made huge improvement to the point now in daily life I am pain free. I still stay away from running and lifting becaust it still agravates them. At 13 months post diagnosis the Lyme arthritis has greatly improved...although at some points it seemed not to improve for months at a clip.

I am hoping my switch to penecillin shots gets rid of it all.

Posts: 35 | From Western, MD | Registered: May 2013  |  IP: Logged | Report this post to a Moderator
MTMT
Member
Member # 40756

Icon 1 posted      Profile for MTMT     Send New Private Message       Edit/Delete Post   Reply With Quote 
I guess I forgot to add what seemed to help my Lyme arthritis. Sadly not much. Even pharmacy NSAIDS didn't even take the edge off. It seems like may people have success with NSAIDS though.

Try some tumeric and boswellia.

A hot pad wrapped around the knee felt good as long as you could keep it wrapped.

Any high impact or stress events on the knees I stayed away from as it really made it flare up for weeks at a time.

Depending on what joints are affected for you give some of these a try.

Posts: 35 | From Western, MD | Registered: May 2013  |  IP: Logged | Report this post to a Moderator
yanivnaced
LymeNet Contributor
Member # 13212

Icon 1 posted      Profile for yanivnaced     Send New Private Message       Edit/Delete Post   Reply With Quote 
MTMT I have heard similar from LLMD's that cyst busters can often help in ridding joint pains.

How long on cyst busters were you before noticing improvements?

Posts: 655 | From USA | Registered: Sep 2007  |  IP: Logged | Report this post to a Moderator
mattnapa
LymeNet Contributor
Member # 26414

Icon 1 posted      Profile for mattnapa     Send New Private Message       Edit/Delete Post   Reply With Quote 
I guess I remain unclear whether people think it is possible to have both RA or OA and Lyme and that there can be two different mechanisms for joint pain, or whether Lyme and coinfections are "the" causative agent for some type of arthritic conditions.
Posts: 357 | From California | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
MTMT
Member
Member # 40756

Icon 1 posted      Profile for MTMT     Send New Private Message       Edit/Delete Post   Reply With Quote 
My knees were very responsive to the first round of cyst buster. The pain got noticeably worse during the on cycle but much better on the off cycle. After about 2-3 cycles on the first cyst buster it failed to seem to do any more. I switched about 5-6 months later and the pain got noticeably worse to the poitn i was hobbling around again and after two cycles I am predominantly pain free but still refrain from high impact and high stress activities.

I have noticed joint pain at the ball of each little pinky toe that seems to come and go too and I think it may be Lyme related.

Posts: 35 | From Western, MD | Registered: May 2013  |  IP: Logged | Report this post to a Moderator
ladycakes
LymeNet Contributor
Member # 12619

Icon 1 posted      Profile for ladycakes   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've actually never been officially diagnosed as having arthritis (just as having Lyme, and POTS, and an MVP).

I do have joint pain that sounds similar to what people experience with arthritis, and it's gotten significantly better with treatment. I have almost no pain now.

So... I think it might depend on whether you have arthritis, or just arthritis-like pain?

Posts: 306 | From Brownsville, PA | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
marypart
LymeNet Contributor
Member # 27012

Icon 1 posted      Profile for marypart     Send New Private Message       Edit/Delete Post   Reply With Quote 
My son's arthritis went away and he had it all over his body.

--------------------
Son, 26, Dx Lyme 4/10, Babs 8/10
Had serious arthritis, all gone.
Currently on Valtrex
Daughter, 26,bullseye 7/11
arthritis in knees, cured and off all meds. .
Self:Lyme, bart, sxs gone, no longer treating.

Posts: 496 | From Washington, DC | Registered: Jul 2010  |  IP: Logged | Report this post to a Moderator
Judie
Frequent Contributor (1K+ posts)
Member # 38323

Icon 1 posted      Profile for Judie     Send New Private Message       Edit/Delete Post   Reply With Quote 
"My knees were very responsive to the first round of cyst buster. The pain got noticeably worse during the on cycle but much better on the off cycle."

That's what happened to me (except it's my wrist and hip). I'm still in the first couple month of tinidazole so can't see it's complete relief yet. Definitely gets worse during PMS.

Posts: 2839 | From California | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.