lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Herx put it mildly. A packet. Called doc, said to take pinella, burbur 10 drops in little water and cut down, start at an eighth of apacket. The depersonalization was insane, my vision screwed up, lyme symptoms out joint pain..anyone else do this? Anyone know timing of Meds, supps and food with this? Thanks.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Regarding your timing question. From Burrascano, page 13:
"Two prescription medications that can bind these toxins include cholestyramine resin and Welchol pills. When take orally in generous amounts, the neurotoxin present in the intestinal tract binds to the resin, is trapped, and then excreted. Thus, over several weeks, the level of neurotoxin is depleted and clinical improvement can be seen. Current experience is that improvement is first seen in three weeks, and treatment can continue for a month or more. Retreatment is always possible.
These medications may bind not only toxins but also many drugs and vitamin supplements. Therefore no other oral medications or supplements should be taken from a half hour before, to two hours after a dose of one of these fiber agents.
Cholestyramine should be taken two to four times daily, and Welchol is prescribed at three pills twice daily.
While the latter is obviously much simpler to use, it is less effective than cholestyramine. The main side effects are bloating and constipation, best handled with increased fluid intake and gentle laxatives."
Take the warning about constipation seriously!!!
Take laxatives as long as you are on this binder, or you could end up in big trouble. Others have. One posted about it within the last couple of months.
My husband took Welchol to try to lower cholesterol. After about 3 pills he was so furious over the constipation that he refused to take any more of it. I gave it away to a poor lyme patient!
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
That is why people with Bile Acid Diarrhoea often take Cholestyramine or Welchol to help soak up the excess bile and thereby stem the diarrhoea.
Posts: 1647 | From UK | Registered: Nov 2008
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96237 | From Texas | Registered: Feb 2001
| IP: Logged |
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Tkx tutu. Called dr h. Had diarrhea so bad day before said take packet to bind. Did yesterday. Dp bad but it is everyday. At quest for bloodwork now. Also cdiff test. Even though I'm numb god has to be with me.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96237 | From Texas | Registered: Feb 2001
| IP: Logged |
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Liver numbers really went up? On a lot of supps. Anyone have snyone ideas since I started this?
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
| IP: Logged |
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Doesn't process in the liver. Pulling out supps?
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
"These medications may bind not only toxins but also many drugs and vitamin supplements. Therefore no other oral medications or supplements should be taken from a half hour before, to two hours after a dose of one of these fiber agents."
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Ive been doing that. Liver numbers elevated much. Thanks much.10 minutes of clarity yesterday. What a blessing to see clouds and just not to be in the in between worlds. God make it last. What am I doing wrong???????
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
| IP: Logged |
springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
Are you supporting your liver with herbals or supplements ?
If your not doing coffee enemas I highly recommend them and I used them while on Cholestymine and it worked out really well ! As well as while on any treatment and a way to manage toxin release. Amount all the other detox methods. But for liver directly Coffee enemas are great
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
| IP: Logged |
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
My pharmacist said give it more time in between to pull out toxins. Doing one hour before two hours after,
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/