lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Does equivical for tularemia mean just exposed. Supposed yo be less than 20, mine is 20. Would u treat? Still a mess going on Iv. Dies it mean I was just exposed? Thanks
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
I tested equiv. My titers are 40 and holding at that number. Dr. H. has me on Doxy and will see what happens when I stop Doxy. If I get sick or titers don't go down then its IV Gentamycin.
Titers can cross react w/ Brucella and a few others. I could not even tell you what was /is Tularemia symptoms......I feel fine but there is a big relapse rate when using Doxy.
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- desertwind,
If you do IV Gentamycin, it's important to know first that it's extremely ototoxic. Liver support can help with some ototoxic medicines (maybe, at least to some degree).
Because it can cause deafness, it would be best - with gentamycin - to search the medical literature and find a LL neurotologist who could confer with your treating doctor so that the ear / hearing protection could be well in place.
If you might have access to a rife machine, that might be a safer way to go than with gentamycin. I sure would never touch it. I'm not sure there is anything that can be protective enough for hearing / vestibular system, with certainty. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Dr. H. Putting me on Iv rocephin cause of what's going on. My past history with depersonalization cleared up with it most the time.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
lyme; Are you saying Dr. H. is putting you on IV Rocephin to treat Tularemia or for your other TBI's? Rocephin was not mentioned to me as a treatment for Tulameria - but I am allergic to it so could not take it anyway. I certainly hope it helps with your dp/dr issues. I am off Doxy and waiting to see how I feel and what happens to my titers. Hope you feel better.
Keebler; Thanks for the info. I did read about those dangerous side effects and am very hesitant to do the Gentamycin unless my titers go up. I have stopped Doxy and will see what happens. I am hoping it was either a cross reaction to something else or that it was mild and the Doxy took care of it. I never even knew I had it- just thought it was your run of the mill lyme from a recent bite. Just not a safe world anymore....
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Im not sure anyone knows what to do at this point. I did byron white EB A-Tula. Rocephine always helped me come bak to me so he said if not, Im going to iv vancomyacin Be well.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Loved loved loved gentamycin.
(before lyme dx, but after bullseye EM)
it really helped me at the time. Not for tul but For bart I think.
A relative got tularemia from a moose tick and was misdiagnosed for months.
Terrible sores on limbs. Misdiagnosed as impetigo.
Not sure what other symptoms of tularemia are.
Hope rocephin helps LIP. It helped me. A godsend. Took 8 months but worth every penny. Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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payne
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