LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Injectable methylcobalamin?

 - UBBFriend: Email this page to someone!    
Author Topic: Injectable methylcobalamin?
VV
LymeNet Contributor
Member # 38828

Icon 1 posted      Profile for VV     Send New Private Message       Edit/Delete Post   Reply With Quote 
I can't find injectable methylcobalamin anywhere and my doc says it's banned by the FDA.

Does anyone know the deal with this?

Posts: 922 | From Philadelphia | Registered: Sep 2012  |  IP: Logged | Report this post to a Moderator
MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868

Icon 1 posted      Profile for MichaelTampa     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have had vit B12 injections (along with other vitamins) in the past, done at the doctor's office. That information doesn't sound right.
Posts: 1927 | From se usa | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
beaches
Frequent Contributor (1K+ posts)
Member # 38251

Icon 1 posted      Profile for beaches     Send New Private Message       Edit/Delete Post   Reply With Quote 
It's carried by compounding pharmacies and they'll mail the shots to you on ice. Try Fallon Pharmacy. I believe Infuserve also carries it. Methylcobalamine shots have not been banned!!
Posts: 1885 | From here | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
VV
LymeNet Contributor
Member # 38828

Icon 1 posted      Profile for VV     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've tried 9 pharmacies so far and a few of them are compounding. All of them haven't had methylcobalamin in over a year.

I'll check Fallon though to see what they say.

Posts: 922 | From Philadelphia | Registered: Sep 2012  |  IP: Logged | Report this post to a Moderator
beaches
Frequent Contributor (1K+ posts)
Member # 38251

Icon 1 posted      Profile for beaches     Send New Private Message       Edit/Delete Post   Reply With Quote 
The problem is that most carry cyanocobalamin and people with the MTHFR mutation won't absorb that formulation.

Check with Infuserve. If my memory is correct, they carry it. Good luck!

Posts: 1885 | From here | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
LymeCFIDSMCS
LymeNet Contributor
Member # 13573

Icon 1 posted      Profile for LymeCFIDSMCS   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I got it from Downing Labs (formerly NuVision Pharm) just over a month ago. I didn't know it had been banned.
Posts: 926 | From Massachusetts | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have some but I've had it a long time.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94894 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Found this:

https://healthmasters.com/node/771

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94894 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Andie333
Frequent Contributor (1K+ posts)
Member # 7370

Icon 1 posted      Profile for Andie333     Send New Private Message       Edit/Delete Post   Reply With Quote 
I got some via prescription from a compounding pharmacy in NY. I use it 3 times a week. For me, it helps boost my energy.
Posts: 2549 | From never never land | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189

Icon 1 posted      Profile for 'Kete-tracker     Send New Private Message       Edit/Delete Post   Reply With Quote 
I had no problem ordering it from McGuff compounding pharmacy in Santa Ana back in 2006/07.
5 mg/ml, as I recall. Pretty reasonable.

Never heard of any banning by the FDA. Not that they haven't gone & banned stuff unexpectedly before!

Posts: 1233 | From Dover, NH | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
beaches
Frequent Contributor (1K+ posts)
Member # 38251

Icon 1 posted      Profile for beaches     Send New Private Message       Edit/Delete Post   Reply With Quote 
VV, have you called Infuserve?
Posts: 1885 | From here | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
faithful777
Moderator
Member # 22872

Icon 1 posted      Profile for faithful777     Send New Private Message       Edit/Delete Post   Reply With Quote 
I use infuserve. Both my husband and I inject daily. Price is decent if you buy your own needles.

--------------------
Faithful

Just sharing my experience, I am not a doctor.

Posts: 2680 | From Colorado | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
See the link above, kete-tracker.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94894 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189

Icon 1 posted      Profile for 'Kete-tracker     Send New Private Message       Edit/Delete Post   Reply With Quote 
yup, Ah did. Seems they're taking issue with how a certain family of supp's, containing any of the folate "group", are labelled.
And if one starts to use what terms ARE allowed, one could be "guilty" of being inaccurate.

A far cry from "banning" a certain injectable form of the Vitamin B-12, but still of concern.
s far as I've seen, the on-line pharma sources of methylcobalamin are still out there.

Posts: 1233 | From Dover, NH | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
VV
LymeNet Contributor
Member # 38828

Icon 1 posted      Profile for VV     Send New Private Message       Edit/Delete Post   Reply With Quote 
Very confusing. I found a place that may do it.
It's compounded though so my insurance won't cover it. Waiting for a reply.

Posts: 922 | From Philadelphia | Registered: Sep 2012  |  IP: Logged | Report this post to a Moderator
Razzle
Frequent Contributor (1K+ posts)
Member # 30398

Icon 1 posted      Profile for Razzle     Send New Private Message       Edit/Delete Post   Reply With Quote 
Methylcobolamin is not the same thing as Methyl-folate. Those are two different B vitamins. I'm aware of the labeling issue with Folate, but as far as I know, the same issue does not apply to B12 (methylcobolamin).

I think the problem is the FDA is trying to shut down compounding pharmacies by putting so much regulation and red tape on them that they'll stop providing compounded medications (especially injectables).

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

Posts: 4165 | From WA | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
beaches
Frequent Contributor (1K+ posts)
Member # 38251

Icon 1 posted      Profile for beaches     Send New Private Message       Edit/Delete Post   Reply With Quote 
VV, in my experience insurance covers nothing from compounding pharmacies. It's all out of pocket.
Posts: 1885 | From here | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091

Icon 1 posted      Profile for Rumigirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by beaches:
VV, in my experience insurance covers nothing from compounding pharmacies. It's all out of pocket.

That's not always true. It all depends on the plan that you have; I've always had coverage for compounded meds, but with a higher co-pay.

I've learned that it really pays to pursue this in depth with my insurance company. I have a different company this year, and when I asked, they said compounded meds were covered if they cover one of the meds in my rx.

But when a pharmacy tried to put it through, it came up as not covered, But then I spoke to a supervisor, who gave me more info. And i had the pharmacist submit it with all the ingredients and their drug codes.

Now I can get it covered. I still pay a lot, because it's a pain cream that I need a lot of, and they only allow 30 grams at once for one co-pay. I need to order it about 8 times per month!

But it's still cheaper than paying all out of pocket.

You can always appeal it, too. Sorry for the long-winded explanation!!

Posts: 3677 | From around | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
imagine2
LymeNet Contributor
Member # 3136

Icon 1 posted      Profile for imagine2     Send New Private Message       Edit/Delete Post   Reply With Quote 
I use Infuseerve as well. They are easy to work with. You can talk to the Pharmacist directly.

However, there is a new restriction on B12 injections.

They are being required to 'quarantine" their B12 for 3 days so keep in mind if you order from them there is an extra 3 day delay in getting your order.

Posts: 677 | From Virginia | Registered: Sep 2002  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.