LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » what do you think of this artical on HLA4?

 - UBBFriend: Email this page to someone!    
Author Topic: what do you think of this artical on HLA4?
lpkayak
Honored Contributor (10K+ posts)
Member # 5230

Icon 1 posted      Profile for lpkayak     Send New Private Message       Edit/Delete Post   Reply With Quote 
http://www.whatayear.org/02_10.html

im not sure when it was written and i know some stupid things are said-like the rash-but some real things are said too

my llmd said HLA 4 and 2 were why i got rid of many sx but the osteo arthritis just kept getting worse and i had to treat that with mainstream medicine

he said i am like the ones who took the vaccine for lyme and got totally disabled he said i/3 population has those genes

this came my way and i havent kept up with research so i wonder what you think

also ... if this proves our point...why dont the guys down the bottom get it?

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
LabRat
Frequent Contributor (1K+ posts)
Member # 78

Icon 1 posted      Profile for LabRat     Send New Private Message       Edit/Delete Post   Reply With Quote 
Good digging lpkayak, may very well be a key. I have the HLA-DR4 gene and about 10 years ago it was explained this way.

The outer surface protein that this thing hides in is very similar to one of our proteins and as such our system doesn't see it as a threat, so our system is useless in the fight. Abx was our only hope.

By the time this was figured out I had a deformed foot and knee so bad I had to ratchet up and down stairs. So much nsaids lead to heart problems later. Massive amounts of bicillin and flagyl were showing noticeable improvement in all symptoms except arthritis.

After a few years, the improvement seemed to stop and I figured the reason I felt so bad might be all the abx I was taking. I cut back to one tinadazole per day and started feeling better. Switch to doxycycline, only one pill per day, thinking more propalatic than cure and an amazing thing happened, my knee healed and is normal today. The foot was damaged too much but is manageable.

I've been off all abx and nsaids for over a year or so except I pulled a tick off and had a thirty day round of abx about a year ago. Pretty much normal except for this fricking heart problems from nsaids and lyme.

Looking back, no doctor in his right mind would prescribe the amount of abx I took due to lawsuits. I guess that how I got the name labrat.

Posts: 1887 | From Corpus Christi, Texas | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
Member # 5230

Icon 1 posted      Profile for lpkayak     Send New Private Message       Edit/Delete Post   Reply With Quote 
I dont know...i took twenty amoxil 875 s plus 1000 mg zith a dy for two-three years

My llmd then did gene test cuz all sx were gone except arthritis

I was pos for HLA 4 and 2 so he told me we probably should stop lyme tx and tx arthritis mainstrem way

I used ibuprofen, cosamine ds and other arthritis stuff like heat, ice etc for many years

Eventually two new knees and i could ride again for five years but then had one knee revised a year ago and im.not recovered frim tht yet. Havent ridden or kyaked in a few yeears..not happy.

But shouldnt complain i guess compared to what some on here go thru

Ill be back in a minutr..need to check thst artical

Ps-i didnt find it...a newbie i am helping found it

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
Member # 5230

Icon 1 posted      Profile for lpkayak     Send New Private Message       Edit/Delete Post   Reply With Quote 
Did you see at end of artical it mentioned tufts, cdc, and both lyme foundstions...so wht arent two ways of treating more similar

Sorry...really tired...no word recall

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
Member # 5230

Icon 1 posted      Profile for lpkayak     Send New Private Message       Edit/Delete Post   Reply With Quote 
Two standards of care

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.