nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Hi all, I have not been visiting this site for months because there was a lot of other things going on. I have been off abx for about a month and am in remission.
My last infection was bartonella and I got it under control with Bactrim DS and roxythromycin. It caused sleeping problems so I only took it once a day. I still get mild headaches most night but they go away with imetrex.
The soles of my feet are a little tender for a couple of minutes when I first get up in the morning. I have no other symptoms. No muscle twitching, no insomnia, no anxiety and I am under tremendous stress.
I can think pretty well, remember ok and have normal energy considering my age. Even my eyes are not quiet so dry and irritated.
I also had protomyxzoa and that is supposed to be incurable. I have no symptoms. I take prickly pear cactus fat binders after every meal with over 5 grams of fat. I eat much more normally. I eat cheese everyday and whole eggs. I eat some nuts in food. I just made cookies with real butter and had one. That would equal about 6 grams of fat so I took one fat binder.
I usually get sicker in the fall so this is good news so far. I hope I can stay well. They only drug I am taking is LDN and imetrex for the headaches.
I got bitten in 2006 so it has been a very long haul. I had at least 6 infections and each one of them required different treatment.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
That is great to hear! How long did it take to get Bartonella under control? I have terrible twitches/spasms and have been on Bactrim for one month, it has only gotten worse not better. Also Doxy, Ceftin, Plaquenil.
I hope it lasts and enjoy feeling good.
Posts: 172 | From ohio | Registered: Feb 2010
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RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
Congratulations, nefferdun! So happy for you!
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
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RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
Congratulations, nefferdun! So happy for you!
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Yay! That is wonderful news, Neff!
I am SO happy for you!
Thanks for checking in and updating!
All my best, Greta
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- C'est Magnifique !
You have been through so much and worked so hard. Glad to hear that it all worked out for you. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
Thanks for sharing & inspiring!!!!!
Did you have any of these symptoms?:
-Vibrations? -Chemical sensitivity? -Food sensitivity? -Mold response/reaction? -Joint pain?
Posts: 2094 | From NY | Registered: Oct 2011
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Awesome! Thank you!
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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posted
Congratulations!!! Very happy for you!
Posts: 908 | From Albany | Registered: Nov 2008
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Right on Neff!!!
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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MannaMe
Frequent Contributor (1K+ posts)
Member # 33330
posted
Good for you! Wonderful! Fantastic!!
Posts: 2347 | From USA | Registered: Aug 2011
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Great to hear. How long have you been on the LDN?
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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posted
awesome!
Posts: 238 | From new england | Registered: Feb 2013
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Thanks everyone!! You are all such a lift. The one thing about having lyme disease is you will meet some of the nicest people in the world.
I have been on LDN for several years. I think it helps a lot. If anything is going around I usually don't get it or if I do, it is not as severe as it could be.
I treated bartonella twice. I am not sure if I was re-infected or it was just dormant. The first time it took about 9 months to get rid of and the second time about 8 months.
The amazing thing is my ability to sleep. I have been under a lot of stress that would normally keep me awake and worried but I fall asleep without a problem. I go to bed each night wondering if this is going to be the end of my lucky streak and next thing I know it is morning. I have had insomnia since I was 12 so this is a miracle for me. It feels so good.
I just hope I am not giving a premature hurrah. Oh well, might as well be optimistic and enjoy the moment.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Stay positive. A good night's sleep is worth a million dollars! It is a sign that the brain is in balance...and that's awesome. Ok-so bartonella 8 months or so...twitching and spasms driving me crazy. But if you did it then so can I and the rest of the group. Thanks again for sharing and enjoy.
Posts: 172 | From ohio | Registered: Feb 2010
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Yay!!!
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
From my personal experience & from the oration of others, I can say that SLEEP comes before all else when chronically ill.
Regardless of what herbs, abx, detox method, or anything else I am on or undergoing, when I don't sleep I tend to feel a lot worst with aggravated symptoms. I have also found that lack of sleep propagates further lack of sleep.
Sleep allows my body to recoup and heal the daily damage inflicted by Lyme, my immune system to refresh & and gain the slightest upper hand in this stalemate between bacteria load & immune response.
Posts: 2094 | From NY | Registered: Oct 2011
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
lymedin I have been htinking aobut this too . sleep is so important!!
GREAT nefferdun!!!!!!!!
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3577 | From Eastern USA | Registered: Jul 2013
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Fantastic, wonderful, excellent news! Yay!
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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posted
Now you will have to change your name from "nefferdun" to "Dun!"
Good for you.
-------------------- 13 yo DX PANS/Tourette's/Asperger's/ADHD treated for Igenex positive bartonella/IND lyme with 2 years of abx treatment. Weaned off abx April 2013 at 80% improvement. Continuing with Buhner bartonella/babesia protocols. Aug 2014 99% improvement. Posts: 265 | From Canada, Ontario | Registered: Jul 2013
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Wonderful news, so happy for you!! Posts: 1357 | From Massachusetts | Registered: Jun 2008
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posted
Such wonderful news.....congratulations!!!!!!
So happy for you and wishing you continued good health! Posts: 711 | From Bucks County, PA | Registered: Apr 2008
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
Hi Neff. Long time, no talk. I haven't been on Lymenet in ages. Was so happy to see your post! Warm congratulations!! May your good health only keep getting better. I'm doing great also.
My best wishes are being send your way. God bless.
Posts: 2238 | From East Coast | Registered: Jul 2010
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