LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Interesting post about lyme and LLMD's

 - UBBFriend: Email this page to someone!    
Author Topic: Interesting post about lyme and LLMD's
Ellen101
Frequent Contributor (1K+ posts)
Member # 35432

Icon 1 posted      Profile for Ellen101     Send New Private Message       Edit/Delete Post   Reply With Quote 
I came across this today and I have to say I agree
http://thetickslayer.com/problem-with-llmds-lyme-disease/

Posts: 1747 | From United States | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
unsure445
LymeNet Contributor
Member # 15962

Icon 1 posted      Profile for unsure445     Send New Private Message       Edit/Delete Post   Reply With Quote 
The best llmd's today do address all of the adjunct issues that contribute to the symptom picture.

They know that they have to.

And most are integrative as far as I know. So not sure what llmd's this person is referring to.

--------------------
unsure445

Posts: 824 | From northeast | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
surprise
Frequent Contributor (1K+ posts)
Member # 34987

Icon 1 posted      Profile for surprise     Send New Private Message       Edit/Delete Post   Reply With Quote 
This was not our experience either, and furthermore, not up on things because many LLMD's are more integrative.

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

Posts: 2518 | From USA | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
desertwind
Frequent Contributor (1K+ posts)
Member # 25256

Icon 1 posted      Profile for desertwind     Send New Private Message       Edit/Delete Post   Reply With Quote 
Is this a women/athlete who had lyme and now is selling some sort of lyme related services?

My LLMD is very integrative - that I can say for sure.

Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
Ellen101
Frequent Contributor (1K+ posts)
Member # 35432

Icon 1 posted      Profile for Ellen101     Send New Private Message       Edit/Delete Post   Reply With Quote 
I will say the LLNP that I was seeing focused solely on lyme and if I was still with her Im sure I would still be on antibiotics.

Like anything you are going to find some that are better than others. There are some that will investigate other causes and possibilities and others who will link every symptom to lyme.

Posts: 1747 | From United States | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
While some things posted by The Tick Slayer can be of help and are excellent as support in the right situation (but not for everyone),

other things are not accurate, or at least certainly not in the correct context. And that is of concern.

As I recall, this is a site that sells personal trainer services to individuals who have lyme. Best to find an ILADS educated LLMD or LL ND who can advise on any kind other consultants who may be of help. A good LL doctor is key, first.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
Many LLMDs are integrative in their approach, especially as liver support is so vital. Do your research on the methods / style / thoughts of any doctor.

When considering integrative / herbal / nutritional / adjunct methods, because lyme is so very complex & unique, as are possible coinfections:

if at all possible - because each person & each case is different - it's best to consult with an ILADS-educated LL ND (lyme literate naturopathic doctor) (or similar) who has completed four years of post-graduate medical education in the field of herbal and nutritional medicine -

- and someone who is current with ILADS' research & presentations, past and present, and has completed the ILADS Physician Training Program (see: www.ilads.org )

so they really know all they can about the science of lyme . . . how lyme (& other TBD) act and what we can do about that in various ways.

Many LL NDs incorporate antibiotics (depending upon the licensing laws in their state). Some LLMDs and LL NDs have good working relationships.

When possible, it's great to have both a LLMD and LL ND and even better when they have a long-standing professional relationship.


http://flash.lymenet.org/ubb/ultimatebb.php/topic/2/13964

How to find an ILADS-educated LL:

Holistic LLMD;

N.D. (Naturopathic Doctor);

L.Ac. (Acupuncturist);

D.Ay. (Doctor of Ayurvedic Medicine);

D.O.M. (Doctor of Oriental Medicine);

Herbal Safety considerations & reference books; etc.


Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:

Understanding of the importance of addressing the infection(s) fully head-on with specific measures from all corners of medicine;

knowing which supplements have direct impact, which are only support and which are both.

You can compare and contrast many approaches with links to articles, books, methods . . .

BODY WORK professionals / methods / links (and why anyone who works on your spine MUST be LL to the degree they at least know to never suddenly twist neck or spine. Never. Ever. And that we should never be advised to do neck / head / shoulder stands.)
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
LilaLee*
Member
Member # 43649

Icon 1 posted      Profile for LilaLee*     Send New Private Message       Edit/Delete Post   Reply With Quote 
so, about the CD57 test not being a definer for Lyme, that he references in the above article.

Does anyone agree?..I thought a low CD57 can only be produced by three things; Aids, Hepatitis, and Lyme.

--------------------
LL

Posts: 79 | From Rocky Mountains | Registered: Apr 2014  |  IP: Logged | Report this post to a Moderator
Ellen101
Frequent Contributor (1K+ posts)
Member # 35432

Icon 1 posted      Profile for Ellen101     Send New Private Message       Edit/Delete Post   Reply With Quote 
The CD 57 is a very inaccurate test and many no longer use it for that reason. There can be many other factors influencing it and it can fluctuate often.
Posts: 1747 | From United States | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
GretaM
Frequent Contributor (1K+ posts)
Member # 40917

Icon 1 posted      Profile for GretaM     Send New Private Message       Edit/Delete Post   Reply With Quote 
I feel bad for any patients who have "tunnel vision" docs. In my opinion, if a doc has tunnel vision, that doc is not truly lyme literate, or even ILADS educated.

If a doc stays current on the topics presented at ILADS, and stays up to date on various publications by other lyme and co docs, then the doc will surely have a broad enough knowledge base to incorporate other modalities into treating a patient that either has or had lyme and the various coinfections.

My doc has discussed exercise, nutrition, reducing chemical exposure thru personal care products, mold and mycotoxins, probiotics, parasites, heavy metals, a variety of detox methods, hormone and cortisol testing. Herbal and antibiotic treatments, prebiotics, vitamin and mineral supplementation, natural pain control methods, acupuncture, reproductive health.

The list goes on and on.

Every two months my doc does a full neuro and cognitive assessment, check reflexes, blood pressure, ears, balance and vision.

Somewhere amongst all this, we manage to talk about other things such as weather, family and news items [Smile]

My doc is an LLND who also treats cancer and autoimmune patients, cardiac patients and autisic and sick children.

So the spectrum of assessment and patient care I receive is quite wide and thorough.

I thank god every day for my doc.

Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013  |  IP: Logged | Report this post to a Moderator
surprise
Frequent Contributor (1K+ posts)
Member # 34987

Icon 1 posted      Profile for surprise     Send New Private Message       Edit/Delete Post   Reply With Quote 
The CD 57 can be a piece of the puzzle. I'd say if it's <60,
you got an issue. Probably not feeling to good.

It's not uncommon for a Lyme patient, after a period of time, while researching, educating themselves, having improvements or not,

to branch out to another care provider or LLMD.
The fact that this article generalizes a whole group, while she's selling her own products and services for profit, turns me off.

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

Posts: 2518 | From USA | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
GretaM
Frequent Contributor (1K+ posts)
Member # 40917

Icon 1 posted      Profile for GretaM     Send New Private Message       Edit/Delete Post   Reply With Quote 
Lila-mycotoxins can also lower the CD57.

The CD57 is an indicator. I agree with surprise.

Not sure if you live in a cogested area.
The best my mind can wrap around the CD57 is like when you are driving, and hardly any traffic is coming in the opposite lanes. Your lane is busy as usual, but the other lane is empty.

Somewhere, somehow, something has affected the traffic from the other direction, and the cars aren't getting through.

That is like the CD57. Somewhere something is affecting your immune system and the cells aren't available.

Surprise: I agree. I like food for thought posts. But when someone sells something through bashing already bashed docs, I get po'd.

Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.