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» LymeNet Flash » Questions and Discussion » Medical Questions » Tindamax

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Author Topic: Tindamax
VV
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I'm about to try Tindamax. Who has some good stories on this one? I'm hoping this can put a real dent in the Lyme. I've seen the Eva Sapi research on it and have high hopes.
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Judie
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It helped the first month I took it (I felt better, not worse). It unclogged something. I took a break, tried it again because I had such a good reaction the first time (the doc said it wasn't necessary, but since I did well, I wanted to try it again). The 2nd time it didn't work (I had an allergic reaction).

My doc said you don't need to treat with it for very long.

Tindamax can also cause peripheral neuropathy, I'd stop it at the first sign of problems like that (burning, pain, numbness in feel/hand/ankles, etc...)

Don't mistake a herx for an adverse drug reaction.

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surprise
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Start very slow! Like a sliver. It was extremely powerful to me. But needed to build up, for sure.

My LLMD recommended same days off as on- pulsing. Got up to 2 weeks on/ off.

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

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GretaM
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One of my favorite!

Tinidazole always always makes me feel better.

Action against all forms of lyme, action against protozoas, bart and babs.

It is important to pulse it.
My doc and another doc start one week on, one week off. Then when the worst of the herxing is over, two weeks on two weeks off.

VV your lyme reminds me a lot of mine.

I sure hope you feel good on tinidazole also.

It makes my energy seem "clearer" if that helps. I can't describe it.

Just better.

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rowingmom
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Our daughter used it 3 days on / 4 off. The first couple of herxes were hard, but subsequent ones were better, with resolution to a better baseline each time.

When she was barely herxing with each pulse we weaned to herbal protocols and haven't looked back. She's doing great!

--------------------
13 yo DX PANS/Tourette's/Asperger's/ADHD treated for Igenex positive bartonella/IND lyme with 2 years of abx treatment. Weaned off abx April 2013 at 80% improvement. Continuing with Buhner bartonella/babesia protocols. Aug 2014 99% improvement.

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Judie
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I just took it straight through. No ramping, no pulsing. No herxing either, I just felt better.

I was on doxy and bicillin shots at the time.

I guess doctors prescribe it differently for different people. It did the trick it needed to do the first time and I was done.

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MTMT
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I saw great improvements with my knee pain when I started that. I had to start slow. It made me feel squeazy and a feeling similar to a cold coming on. Once I got full bore into it knee pain got much worse but then much better.

I did that for a couple months and then switch to Flagyl and that made the knee pain much worse and then much better after.

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VV
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It looks like there are some positive experiences here!

I'll be starting at 1/2 pill (125mg) as a pulse to see if I notice any reactions. What's the top dose on this one? 1 or 2 grams a day?

Greta, are you still on the Tinidazole? If you feel better on it, have you tried full time/full dose?

Does everyone take it with other abx?
I am taking mino and omnicef.

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gz
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I've been taking a couple doses daily since I began solid tx this past July. I started it paired with doxy and later added bactrim.

I think it did a lot to knock back whatever was causing my babs sx. The first six weeks were rough, but after that I noticed an increase in energy and the constant air hunger abated to flares.

Tinidazole is often prescribed as a single dose 2 gram tx for giardia, for daily use the dosages are lower, and some people can't take but a small dose. It appears that many pulse it.

I had some instances in my first couple months of tx where I had partial hearing loss and/or increased tinnitus. I have a lot of that with lyme+co's anyway, so I don't know if it was side effect, toxicity, or herx. I put a lot into detox now and my tinnitus is immensely improved. Good luck with the tindamax!

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ukcarry
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I am allergic to it, but hopefully, you will not be!
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LilaLee*
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my apologies in advance if this post is seen somewhere else, i have tried to post 3 times

and for some reason it appears to have gone to post heaven. I have been on Tindamax for 5 months, 500mg twice daily with pulsed IV Rocephin.

Aside from some managable Herxing i have done fine on it. Early on i took it with Doxy and then later Mino (and now the IV R).

Hard to tell in the mix of it all what helps what but i am very def better and feeling remarkably good so i would say it has worked

for me, i hope it helps you as well:)

--------------------
LL

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LilaLee*
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one more thing, are you taking LD Naltrexone? i think this might be why the Herxing has been managable for me. As i understand it, it helps get rid of the toxic yuck, the same stuff that makes you feel gross.

--------------------
LL

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yanivnaced
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My kid did several rounds of Flagyl without any effect.

He could do Tindamax now that he is above the age threshold.

Both drugs are in the same class but is it possible for Tindamax to work for somebody when Flagyl had no effect?

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VV
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Took 1/2 of a 250mg pill.
Feeling horrible.

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VV
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!!!

I feel like I want to take all the Tinidazole now and nuke these spirochetes in one go !!!

I know I can't, but the thought of it just made me laugh.

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GretaM
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Haha VV! That made me chuckle too!

I think along the same lines when I take my bart med.

"die suckers die" is one I use quite often.

Also some unprintable words.

I picture myself with the Dirty Harry look. An antibiotic and antimicrobial gun slinger.

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VV
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Ha! I remember watching the Alien(s) trilogy last year to get in the mood. I felt like most of the action in those movies is what's going on in my body.
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VV
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quote:
Originally posted by LilaLee*:
one more thing, are you taking LD Naltrexone? i think this might be why the Herxing has been managable for me. As i understand it, it helps get rid of the toxic yuck, the same stuff that makes you feel gross.

I have some but I have yet to try it.

I have too many sleep issues and I don't want to risk the insomnia that LDN is known for.

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Judie
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LDN made me insane. It doesn't work for everyone even at low doses.
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