posted
just wondering if anyone has tried treating themselves by following the Synergy protocol?
Posts: 69 | From Ireland | Registered: Apr 2013
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posted
Please tell us what the Synergy Protocol is. I have googled it and read some very interesting information about it. Thanks.
Posts: 8990 | From Illinois | Registered: May 2006
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well just like phantukk, I've also been studying this for a while now and I have decided to give it a go, [hell, Ive tried everything else so one more treatment plan cant hurt]
the only issues I can see myself having is sourcing the prescribed herbs at top quality
I think the protocol was written with North American tick borne sufferers in mind
I know I can order most or all these from USA and have them shipped to me but its real expensive to Europe
I'm having trouble seeking some of them from a reliable source in Europe
serendipity20,
would I be correct in saying one has to adhere to the laid down instructions very strictly?
Posts: 69 | From Ireland | Registered: Apr 2013
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so do you get everything apart from the moringa leaf at iherb?
Im a little confused/unsure in reading the bottom section of the web page [under "how to proceed"
do I need Cinnamon, cats claw, usnea ,Quina, Cryptolepis, Chanca Piedra,and Barberry, tinctures in addition to the Dragons blood?
Posts: 69 | From Ireland | Registered: Apr 2013
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Im having difficulties ordering some of these products, especially the cryptolepis
Ive literally spend the last 7 hours in front of the screen trying to compile and complete this assorted list
do you think I could possibly proceed [when I get to that point] with protocol without the cryptolepis?
Posts: 69 | From Ireland | Registered: Apr 2013
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posted
serendipity20, haha, that is a good analogy
that's how Ive been conjuring up images of these bacterial strains too over the past 21 years - detested enemies that need to be eliminated but somehow remain elusive to every parting shot we fire at them... damn critters
Posts: 69 | From Ireland | Registered: Apr 2013
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ukcarry
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Purple Haze, I am not on this protocol (though have taken most of these herbs at one time or another), but have bought cryptolepis in the past from Woodland Essence, who ship to Europe, at least, to UK without problem.
Posts: 1647 | From UK | Registered: Nov 2008
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actually Ive gone on the Woodland Essence web site and its given a list of countries which they dont deviler to anymore.. Uk is one of those countries and for most other international countries they claim there is no guarantee their products will make it through customs,so I will just forget about using the cryptolepis
just curious, did you get infected in UK and how long have you suffered?
Serendipity20,
yes definitely, I will keep you posted, Im sure arrival time of ALL products will be weeks from now
Posts: 69 | From Ireland | Registered: Apr 2013
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ukcarry
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Purplehaze, i see what you mean: what a *******! I must have had one of their last UK deliveries. Sorry to hear that, as I think they are good.
In answer to your question, I have been ill for over 35 years now, with new symptoms continuing to arrive, but I was not aware of the bire or rash, so cannot be sure where i was infected. It is possible that I was also reinfected just over 20 years ago, as I had exacerbation of symptoms then.
Are you in UK too?
Posts: 1647 | From UK | Registered: Nov 2008
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was infected back in 1993, all very evident, and inflamed lymph node too
very long story, and like all of us here could easily write a book [a big one] about whole episode since
Posts: 69 | From Ireland | Registered: Apr 2013
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ukcarry
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Gotcha. It's a beggar trying to find people in UK who know anything at all about it, isn't it?
Posts: 1647 | From UK | Registered: Nov 2008
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HI everybody, this is a listing for a remarkably good herbalist in the UK specializing in lyme, Her experience seems fairly deep with lyme, so besides Peter Conway, I would recommend her for people in the UK/EU.
Julia Behrens-Medical herbalist Herstmonceux Health Centre Halisham Road, Herstmonceux East sussex BN274JX Tel:01323833935
Peter Conway <[email protected]> Landline from UK 01892676214 or mobile 07973417553
-------------------- 13 yo DX PANS/Tourette's/Asperger's/ADHD treated for Igenex positive bartonella/IND lyme with 2 years of abx treatment. Weaned off abx April 2013 at 80% improvement. Continuing with Buhner bartonella/babesia protocols. Aug 2014 99% improvement. Posts: 265 | From Canada, Ontario | Registered: Jul 2013
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no, Ive never tried seeking any help or treatment from practitioners in UK
have you gone through the NHS system in your quest for answers or is it all holistic treatments you have worked with?
In this country its only in the last number of years that the general public have become vaguely aware of TBI, and as for conventional doctors well they are mostly in the dark ages regarding this subject...
Rowingmom,
thank you for posting those links, and like you said maybe those herbalists can be of some assistance to us
Posts: 69 | From Ireland | Registered: Apr 2013
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ukcarry
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Thanks very much, Rowingmom, for posting those herbalists: that was very thoughtful of you.
Everything on this protocol bar cinnamon tincture and dragon's blood, I have had before at some stage, though I used ACS 200, not silver sol. I assume that in this protocol it is the whole rather than the parts that counts, as the name 'Synergy 'indicates.
I have often used powder and crystal MSM, also ALA, but have never really noticed anything. My zinc levels went very low and copper high after taking a higher dosage of ALA than this asks for a sustained period.
Posts: 1647 | From UK | Registered: Nov 2008
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TNT
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If this protocol hits bart so well, I would assume it addresses insomnia?
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ukcarry
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Purplehaze, we wrote oyr posts simultaneously, so I have only just seen yours.
My very late diagnosis came via my efforts privately, and then later my GP at the time did agree to prescribe the antibiotics suggested by a doctor at a wellknown private clinic.
I tend to go to my current GP only for things that may not be related to Lyme, since no-one at my surgery is Lyme literate, though I am seeing an NHS gastroenterologist for gastrointestinal problems that are almost certainly at least partially Lyme-related.
Posts: 1647 | From UK | Registered: Nov 2008
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I have huge gastro issues for at least 16 years and Ive pretty much given up explaining them to conventional doctors, just a never ending story, this past year or so a loud gurgling sound is easily heard, like a semi earthquake going on inside my tummy...
Kimmie,
perhaps we will both be starting this protocol at the same time, just received my moringa powder today, now just 11 more items from the list to arrive...
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ukcarry
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By the way, I started Moringa a few weeks ago (independently of this protocol) and found that I neede to start it in tiny amounts....in fact am still only up to a quarter of a teaspoonful, so go slowly of you are sensitive.
Posts: 1647 | From UK | Registered: Nov 2008
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ukcarry
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Yes, I am a slow detoxifier, with an absent gene for glutathione. I have tried to improve my detox abilities in many ways over several years now and it is very slow going! It certainly does get to be a vicious circle.
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ukcarry
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Serendipity, I am on a SIBO protocol at present, along with my normal Lyme stuff, but I may look at it in the future. Goad t hear that you are making improvements.
Posts: 1647 | From UK | Registered: Nov 2008
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posted
What about the propensity of ALA to redistribute mercury from the body into the brain?
This is the only reason I have not included ALA in our protocol.
-------------------- 13 yo DX PANS/Tourette's/Asperger's/ADHD treated for Igenex positive bartonella/IND lyme with 2 years of abx treatment. Weaned off abx April 2013 at 80% improvement. Continuing with Buhner bartonella/babesia protocols. Aug 2014 99% improvement. Posts: 265 | From Canada, Ontario | Registered: Jul 2013
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CD57
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Phantukk, how did you know that the Silver Sol got into bones and where it needed to be?
Posts: 3528 | From US | Registered: Apr 2007
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CD57
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Hmm, ok. I have done TONS of silver, so what am I doing wrong? It hasn't touched my bart. I've used the super expensive Argentyn 23, RNA Results ACS 200 (what my LLMD recommended), another one that someone on here swore by.....and I've done it orally, IV, and nebulized. It never felt like it was touching bart.
The other problem with silver (I read) was that silver is broken down pretty quickly in the blood stream....I think the Argentyn 23 guy told me it has a half life of 15 min in the lymphatic system and 15 seconds in the open blood stream.
How do I get it to where it needs to be....bone and intracellular/intra-RBC?
I believe in this stuff, but need it to get to the bugs!
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CD57
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yep, have read the whole site. Trying to put all the pieces together, appreciate the research.
I think in my case, there is a parasitical component to bart. I have a Fry labs smear showing a protozoa embedded there in biofilm with coccobaccili, which is probably bart. I think the parasite protects the bart from being killed.
Does the Synergy protocol have anything for parasites? I have done so much cryptolepis - does nothing - and have not tried Enula. I will go back and re-read.
Glad you are having success Serendipity!!
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CD57
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Serendipity....I have a question, or Phantukk. Been reading the site for several days.
Is the Silver Sol to be combined with the MSM water, in the same glass, maybe, or taken one right after the other? I'm hung up on that part.
The herbal tincture info is pretty straightforward. Easy for my foggy brain to understand.
Phantukk, could the lack of MSM be why I felt that the silver did not get to where the infection was? Do you have any comment on how long silver lasts in the system?
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CD57
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why were Phantukk's posts deleted?
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TNT
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That's a good question.... I hope it was justifiable. I noticed nothing amiss in this thread. ???
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TF
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Can you find any of Phantukk's posts anywhere?
If not, you know what that means.
That name is not found in the directory either.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
A post by Phantukk's was removed from one of my topics too.
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CD57
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He said his posts were deleted. Looks like censoring is alive and well, this is just what happened to Will Weigman.
Posts: 3528 | From US | Registered: Apr 2007
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posted
I do believe Phantukk has changed his alias. See above.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
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TNT
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We'll just have to wait and see how long this one lasts (third one now).
I do wish there would be an explanation for when things like this happen. I saw nothing wrong in this thread...
Posts: 1308 | From Eastern USA | Registered: Oct 2013
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posted
How are the people doing this? Any updates ?
-------------------- T. Brown
CDC Lyme Positive Co infections? Who knows... Bands 18+ 30+39+41+45+58+66+ IGG 23+39+41+IGM Posts: 351 | From Boston MA | Registered: Oct 2013
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after nearly 4 week wait all my orders have just arrived and to my horror Ive discovered that all the guidelines on following this protocol are now missing from the main web page
URGENT......
does anyone out there have the official sequence of guidelines to follow for this Synergy Protocol so that I can begin treatment?
Posts: 69 | From Ireland | Registered: Apr 2013
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TNT
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Yeah, the protocol is missing, and now you have to buy it!
No sales on the website, huh. So much for helping people.
I think "Don" should provide that to you for free, purplehaze, since you purchased all the ingredients before he changed his approach. Seems to me that the whole point of ever going public was to profit in the long run.
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Catgirl
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He was on Lymenet the other day under a new name ripping on Connie Strasheim regarding her book, Beyond Lyme Disease. Interestingly, his ripping on her made me check out her book on Amazon. Guess what I found? His you tube and calcification info). Bought the book (looks interesting). I am glad that his protocol worked for him though, and wish him the best.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
PurpleHaze: There's comments on dosages on the internet not from his page. It seems things have changed along the way, so have a look at this hodgepodge and see if any of this is helpful.
Houttuynia Cordata powder- ½ teaspoon Moringa leaf powder- ½ teaspoon
-----
The herbal part; *You have to work up to the final doses or you could herx too much. Herxing is needed but you have to manage it and tailor the use to your own specific needs. Start at 1 drop of each and add another drop every 2 days. If herxing becomes overwhelming then reduce the dose by half and build back up. From all the accounts I’ve read and my personal experience my herxing was gentle in comparison and didn’t incapacitate me.
Upon waking; Make and drink the smoothie containing Parsley, Cilantro, Niacin, Bromelain and Honey. Wait approx. 25 minutes and drink the following in a full glass of water on an empty stomach. I used my stove timer.
I put one tincture in the glass with the dropper then added a little water and proceeded the same way with each tincture. Wait 15 minutes and then take the next collection in the same manner as above. Take this in a full glass of clean water on an empty stomach.
I took the houttuynia and moringa in a popular herbal detox tea that contains about 20 different herbs. I also added some powdered organic cinnamon to help carry the houttuynia into tissues.
All of the components are needed, for example if you took out the moringa , the most nutritous food on earth that also kills gram negative and gram positive bacteria then the protocol would suffer.
---------- Comment:
The protocol as it is currently written, is not the protocol that he himself used to get quote "well." He does not state that fact on his website. He did not take silver Sol, MSM or baking soda. Also, his dosage for Dragon's blood was about 5x's lower then what he is currently telling people to use. I believe he also used half the amount of Moringa powder that he's currently telling people to use.
I had seen all this [after I had ordered Phantukk's guidelines and while waiting for delivery to arrive, This protocol [above] has overall less than half what phantukk prescribed.
now I am left with 60% of my order and dont know how to go about consuming it the right way
most of the herbs for that original protocol appear to be difficult to source over here in Europe
Posts: 69 | From Ireland | Registered: Apr 2013
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posted
Don obviously has changed his mind about the following statement that he posted:
"This website has absolutely no sales by design , not even a "Donate" button ----.there is way to much of that."
-------- Knowing some were ordering what he suggested, you think he would have given them a heads up instead of disappearing? -------
I hope nobody is putting too much hope in this protocol -- it has been cobbled together from many other protocols, it seems to me. This may work for him but he cannot know it will work for everyone else.
As he is not a licensed professional and admits to lacking a filter (neuro-lyme maybe?), which makes him wear out his welcome on various sites he has posted on, I would be careful about trying this.
He admits: I had Lyme and Morgellons and went to 6 "doctors" and came to the conclusion that the only person who was going to help me was me. I was in the U.S. Navy for 11 years working with optics, submarine periscopes, I then went into tool and die making and CAD/CAM work. I didn't have any medical background but I did have an appreciation of technology and cause and effect.
He admits to many aliases, just a few are:
FYI my internet aliases are FRED, Lotus Fan, Phantasm. Phantasmagoo, Derfer, Crux, Billo, Frank Rizzo, Chilli Willy, uncle bobo, and others. I have done this for a variety of reasons. And he was Phantukk here and other places. ------
A person on the site below where Don is "phantasm", "Fred" etc.(22 page thread) had the following warning and I do not know if it is true but it all seems very strange:
"He was on the topix scabies forum for over three years doing this and trolled that forum horribly. Be very cautious dealing with him. I would take anything he says with caution. He is a sick puppy. I have to give him credit for everything he has learned, but i just want to make it known here that he is not well mentally. I intend to continue to advise people of this often, as he manipulated a forum for over three years and he will never change. He has no license to treat people on an internet forum."
I hope this is not the case, but be careful. -----------
PurpleHaze: Most likely all the things you ordered are helpful and maybe you can search each item plus "lyme" and see if other more qualified people have instructions on use.
Posts: 590 | From Canada | Registered: Oct 2007
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CD57
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Oh no! This is terribly upsetting. I got all the stuff too and now am terribly disconcerted by all of this.
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Catgirl
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I wouldn't put my heart and soul into this one either.
I have taken most of those herbs while treating, but I muscle test them to see what to take and when. I muscle tested moringa and it tested negative for me for whatever reason. I really wanted to get it too. It could be that I just didn't need it that day.
Also, there is just no way I would combine all of those herbs, but that's me. If it worked for him or someone else, great though. I take cowden and byron white herbs and they are so powerful, some formulas can make people herx with just one drop.
That said, there is a synergistic effect when taking herbs, even taking them 15-30 min apart from each other. Even Byron White said this. It makes more sense to me to try one herb at a time a a low dose, to see how it affects a person.
I know from the instructions my doc gave me that taking too high a dose of byron white herbs caused treatment failure--meaning they no longer worked for the patient. IMO, it's just not worth the risk of losing the potential benefits of utilizing these herbs to help manage lyme and company. It seems to have worked for Serendipity though.
I would have posted my opinion earlier, but didn't want an attack by Phantukk. He couldn't grasp the concept of methylation issues and labeled it all on inflammation (didn't like the way he treated Razzle eihter). The methyl issues are real regardless of what Phantukk believes. My inflammatory levels were down, and I still had methylation issues.
This is what trolls do gang. He was a different kind of troll in that his protocol worked for him, but he gave people hope, riled everyone up, and tried to force feed his protocol on everyone. Big red flag.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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CD57
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I didn't feel his protocol was force fed, but there are flags when someone mistreats others.
However I don't think all his posts should have been deleted. Same thing that happened to Will.
If moderators don't feel someone is cooperating, then they can be banned or whatever, but their posts should be left as part of research and success / inspiration for others.
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Catgirl
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I agree, not all need to be deleted. He did have some good info, as did Will.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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CD57
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thanks lenny for the explanation. appreciate your persistence. there are a lot of pyschos and trolls, I and several folks I know have had stalker types as well. I would just report them to moderator and have that person blocked from contacting me. I'm sorry you went through it puclicly.
Can I ask what happened to the Synergy forum? I just ordered everything and it has arrived and now I can't try the protocol. looks like a few others here in same boat.
Posts: 3528 | From US | Registered: Apr 2007
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posted
has anyone noticed that all serendipity's posts are now missing from this forum
something weird going on here... hmmm
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Catgirl
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Yes, I noticed it too. I wondered if Serendipity was also Phantukk early on (or friend). The posts seemed canned and also seemed to feed Phantukk's theory/protocol. Maybe the same ip address? I have much compassion for our moderators after all of this.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
I have wondered if non-antibiotic treatments can successfully treat all brain issues?
If you still experience paranoia or mood swings after non-antibiotic treatment you may not realize the disease is still present if you are physically feeling better.
If there are herbal tinctures that can heal all brain issues I would like to know what they are.
Here is an excerpt from a doctor's book who acknowledges the patient's recovery came from iv and oral antibiotics. --------------
Lyme and Psychological Disease
A variety of mental and emotional (psychiatric) conditions can also be caused or severely exacerbated by Lyme disease. It is estimated that 50 percent of Lyme patients have psychiatric manifestations.
These include behavioral disorders (including impulsive acts of aggression and violence), bipolar disorder (manic depression), chronic depression, dementia, eating disorders, hallucinations, mood swings, panic attacks, paranoia, schizophrenia, and other personality disorders and even suicide.
Jill was one patient who suffered serious psychological problems because of Lyme.
Before she came to me for treatment, Jill had been in and out of psychiatric hospitals, where she was treated unsuccessfully for suicidal depression. Her deteriorating mental and emotional state first began shortly after she gave birth to her child.
Initially, she experienced what she thought were symptoms of the flu. But soon thereafter, she began her mental and emotional decline. She was told she had severe post-partum depression, but her doctors were unable to help her.
After she was properly diagnosed with Lyme disease and was treated with intravenous and oral antibiotics, she made a remarkable recovery and received her life back.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
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