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» LymeNet Flash » Questions and Discussion » Medical Questions » Neurolyme, how to treat

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Author Topic: Neurolyme, how to treat
Littlesister
Junior Member
Member # 45146

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I was just starting treatment for neurolyme with minocycline and it was soon discovered that I cannot tolerate the stuff. Then my LLMD flew the coop. He is settling somewhere further away from me so I have an appt with a new LLMD later this month.

In the meantime, my neurolyme symptoms are off the charts. I would like to go into this appt with some more knowledge and choices about how to treat the nuero stuff.

What other methods, meds or techniques are best for treating neurolyme? My most predominant symptoms are dizziness (not vertigo), loss of memory, word and thought recall problems, severe focus issues.

Thank you

Posts: 3 | From Ct/pa | Registered: Jan 2015  |  IP: Logged | Report this post to a Moderator
VV
LymeNet Contributor
Member # 38828

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For orals, aggressive treatment with multiple agents is preferred.

A typical combination approach might include:

A cephalosporin such as: Omnicef, Ceftin or Cedax
A macrolide such as: Zithromycin or Biaxin
An azole such as: Metronidazole of Tinidazole

Penicillins and tetracyclines are other popular choices.

The combination is usually limited to 3 abx at one time, and only one from each class (you wouldn't take Omnicef and Ceftin at the same time).

There are claims made that IV abx are a better approach for neuro Lyme and specifically Rocephin being highly effective.

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Littlesister
Junior Member
Member # 45146

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Thank you.
Posts: 3 | From Ct/pa | Registered: Jan 2015  |  IP: Logged | Report this post to a Moderator
HK
LymeNet Contributor
Member # 45290

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All of my very severe fatigue/neurological

symptoms disappeared after 1 year of VERY high

amoxy (along with a

couple other abx) and 2 months of bicillin shots

3 days a week. It was the Bic that did it tho. It

brought me back to life and made such a dramatic

improvement that I was in utter disbelief.

Unfortunately I didn't follow the doctors orders

(I was 21 at the time) He wanted me on Bicillin

longer, and then IV just to be sure it was gone.

I did stay in remission for five years,

although I probably would still be asymptomatic

if I had treated a for a longer period of time.

--------------------
Back At It

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Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-
Whatever path, be sure this is included:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=030792;p=0

LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
   

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