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» LymeNet Flash » Questions and Discussion » Medical Questions » Bartonella Does It Ever Die? OCD CRAZY

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Author Topic: Bartonella Does It Ever Die? OCD CRAZY
SacredHeart
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Six months of treatment and I'm still crazy and in pain. Does this ever end?

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Lyme flare June, July, August of 2013. Diagnosed September 2014 Lyme, Bartonella, Mycoplasma, Mono

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Judie
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What are you taking?

Here's a recent article on it:

What is Bartonella?

http://lymemd.blogspot.com/2015/03/what-is-bartonella.html

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SacredHeart
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Doxy, Bactrim, Plaqu, Amox

I have had herx like effects, that or it is getting worse. Initially I didn't have shin pain, or sole pain in my feet. It was just the skin issues first.

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Lyme flare June, July, August of 2013. Diagnosed September 2014 Lyme, Bartonella, Mycoplasma, Mono

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S13
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TBH that is not a very good combo for bart. Amox doesnt hit it, doxy perhaps only very weakly and bactrim may or may not have an impact on your specific bartonella strain.

Look into rifampin, fluoroquinolones (careful here!), and macrolides. Also you may want to look at herbal options, like Buhners co-infection book. Houttuynia can also be of help for some.

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SacredHeart
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Cool, thanks S. I'll ask about rifampin next time. Is that only IV, or is that oral as well?

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Lyme flare June, July, August of 2013. Diagnosed September 2014 Lyme, Bartonella, Mycoplasma, Mono

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SacredHeart
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Cany Buhners be done at the same time as taking antibiotics, and other supplement, or could their be reactions?

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Lyme flare June, July, August of 2013. Diagnosed September 2014 Lyme, Bartonella, Mycoplasma, Mono

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gz
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Buhner says the protocol can be done concomitant with antibiotics. I agree with the idea that the herbs and antibiotics can each help the other to work better.

I don't take the full Buhner protocol with my abx, but do use several of the herbs. I'm sure there are many others who do as well.

Rifampin is usually given as an oral, but is available for IV as well.

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SacredHeart
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Thanks gz.

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Lyme flare June, July, August of 2013. Diagnosed September 2014 Lyme, Bartonella, Mycoplasma, Mono

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nefferdun
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I got over it twice with Bactrim DS but it is different for each person.

Levaquin was very effective but it gave me tendonitis. I could not tolerate Rifampin. It took about a year the first time to recover but only about 5 months the second time.

I am in remission now.

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old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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canefan17
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For me the strongest abxs for Bart have been Rifampin, Flagyl, Ceftin, Omnicef

Herbs: Houttuynia by hepapro (though they have a new formula for HH2 - ugh)

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t9im
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If I have this right from Dr. H's presentation:

BART TREATMENT:

Combinations
 - Clarithromycin and Rifampin
 - Doxycycline and Rifampin
 - Metronidazole and Rifampin
 - SMZ/TMP and Macrolide

Hydroxychloroquine added to above
regimens

My understanding is Rifampin is considered the best medication to attack Bart but it needs to be administered with another medication or else drug resistance develops.

Hope this helps.

(Editing out doctor name per Lymenet policy)

[ 03-23-2015, 07:23 PM: Message edited by: Robin123 ]

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Tim

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surprise
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Clarithromycin (Biaxin) or Azithromycin (intracellular antibx) have been known to help OCD rooted in infections.

Looks like you are not on/ haven't tried one of those yet.

Hang in there- my daughter has OCD driven by infection, those two antibx have helped. And Augmentin. Augmentin was a game changer a few months back for her.

Augmentin helps modulate glutamate in the brain, and excessive glutamate can also drive OCD.

--------------------
Lyme positive PCR blood, and
positive Bartonella henselae Igenex, 2011.
low positive Fry biofilm test, 2012.
Update 7/16- After extensive treatments,
doing okay!

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gz
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I've noticed much improvement in my psych symptoms since adding a macroglide. I also seem to be dreaming again, but not with the frightening vividness as in my pre-treatment days.

Artemisinin is usually torturous for me. Not nearly so now, but I also did a week of cryptolepis before getting back to art. Could it be the macroglide?

No rifampin here yet, I'll be taking sida acuta for a little bit before adding the pharm.

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Bitten in Bergen
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Our entire family's psych symptoms from bart were eliminated within 3 weeks of starting a protocol from our llmd that included parsley drops, drainage support, and fibrin agents (lumbrokinase or nattokinase) taken twice a day, one hour before meals/meds.

For the other bart symptoms (ice pick headaches, sore soles of feet, bladder issues, etc.), we've been successful with Beyond Balance Bar-2 (where rifampin failed miserably).

We were also on pulsed liposomal artemisinin. DD was on cryptolepsis for a couple of months.

Great thing about the Bar-2 is that you can titer to exactly the right dose where it hits the bart hard without hitting you too hard.

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SacredHeart
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Thanks for all of the info folks. I'm steady reading. Book marking this page so I can come back, and try different things as I speak to my LLMD.

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Lyme flare June, July, August of 2013. Diagnosed September 2014 Lyme, Bartonella, Mycoplasma, Mono

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Dekrator48
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Regarding OCD:

My grandson developed anxiety and OCD. He is going through a hard time with his parents' divorce, and does not have lyme.

His symptoms were getting so bad he could barely function sometimes. He is 11 years old.

I did some research to find a natural treatment.

He is taking Inositol powder in a little juice three times daily.

It is finally helping him. He just reached a total daily dose of 10 grams about 5-6 days ago and that is when we noticed slight improvement.

He is now taking a total daily dose of about 11.5 grams and is even better. May have to increase some more.

Here is the brand we got because it contains 845 mg in 1/4 tsp. Many other brands contain less and a person would have to take many, many tabs to equal a powder dose.

He is up to 1 tsp + 1/8 tsp 3 x a day in juice.

Here is the info about the Inositol and the link to the info about how it works.

10-18 grams is supposed to be the therapeutic dose.

We increased slowly to avoid gas or diarrhea, the only noted possible side effects.

http://www.swansonvitamins.com/source-naturals-pure-inositol-powder-8-oz-pwdr?SourceCode=INTL415&mkwid=pkchLM81&pcrid=4261374745&utm_source=bing&utm_medium=cpc&utm_term={keyword}&u tm_content=415-01+B+Vitamins&utm_campaign=415-01+Product+Ads&CA_6C15C=720352905


http://www.integrativepsychmd.com/articles1/inositol

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The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

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tricia386
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Have you looked into Lithium Orotate its a mineral. Very good to protect the nerves.

It helped with MY OCD during all of this.

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Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

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SacredHeart
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Thanks Tricia and Dekrator, I will look into both of those. If I want to go back to work I can't act weird. =)

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Lyme flare June, July, August of 2013. Diagnosed September 2014 Lyme, Bartonella, Mycoplasma, Mono

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Dekrator48
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SacredHeart,

Also, vitamin B6 helps, so it may be good to try both Inositol and B6.

The more bioavailable form of Vit B6 is called P5P.

I was just reading about B6 yesterday and today and I just got some for my grandson.

When I was around my grandson yesterday, he seemed about 75% improved on the Inositol.

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

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Mountainsky
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Bump up.

My OCD has been through the roof, amongst many other things. Yes, I do have Bartonella.

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