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» LymeNet Flash » Questions and Discussion » Medical Questions » Whole body on fire!

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Author Topic: Whole body on fire!
SickSam
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I know a similar question was recently asked, but my whole body is on such a hot fire.

I feel like someone has dumped a bucket of acid over my whole body. This is excruciating.

My breathing problems and chest pressure/pain have gotten really bad along with this. I'm extremely dry too.

The past two weeks, all I've been on is a new diet (organic, anti-inflammatory, low carb) and humaworm.

What causes this fire??? This is so very unbearable.

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Bugg
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I'm so sorry you are suffering. It sounds like neuropathy. Can you get a B12 shot or take sublingual B12 to try to calm the nerves?
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SickSam
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I've tried sublingual but it doesn't do any good. I'm wondering if this is Lyme or a co, or if it's that Cipro I took 7 months ago.

My doc would do a B12 shot so I might ask for one. But I hope I can figure out the root cause of it. It just keeps growing.

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lookup
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Homeopathic Causticum could be of help with this burning acid feeling of the skin. It can be found in any health food store that carries remedies. Usually comes in a 6c or 30c potency. There are other remedies for burning skin sensation but this one would pull in the "burning AND feels like acid" symptom. The remedies are not expensive. Usually around $7.

Disclaimer: This is for informational purposes only and should not be construed as medical advice. I am not a medical doctor. Please consult your physician.

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SickSam
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Good to know, thanks for the info.

So the acid feeling is a normal Lyme thing? Would it be more of a coinfection?

My doc is starting me back on antibiotics, and I'm really scared that we're not going after the right thing first. We're planning on going after babesia (with malarone, Bactrim, and Zithromax), but with this burning skin I don't know if we're on the right track or not.

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SickSam
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Sorry for all the questions. I've studied literally hundreds of hours and just still don't understand everything. I sure hope to be able to be a big help to someone else one day.
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sixgoofykids
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Humaworm can be a tough treatment. Maybe the parasite die off has something to do with it. Be sure you're drinking enough water.

--------------------
sixgoofykids.blogspot.com

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Phoiph
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SicSam...

One of my most intolerable symptoms was head-to-toe acid-like burning 24/7 for 7 years without a respite. Nothing could touch the pain, including narcotics, and I tried everything.

I believe neuropathy is the result of a number of conditions, including hypoxia, hypoperfusion, and toxic buildup in the tissues. (The brain can also learn and perpetuate these sensations even after the stimulus is gone...think of "phantom limb".)

I never thought I would survive that, but I am well; pain and med free now, and have been so for several years. I encourage you to read the thread on mild hyperbaric oxygen, or PM me if you like.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=125201;p=0

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Lymetoo
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Another possibility:

http://www.drweil.com/drw/u/QAA400953/Salicylate-Sensitive.html

--------------------
--Lymetutu--
Opinions, not medical advice!

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SickSam
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Phoiph, that's very encouraging to hear, so glad you are well again! So good to know I'm not alone.

I've been burning for months, but up until last night it was just annoying. It finally got unbearable. Wondering if it just progressing, or maybe the humaworm really is killing stuff. I haven't "seen" anything; I'm about 2 weeks in.

Not sure if I'm Salicylate sensitive, but I'll look at the foods I eat. The burning started with everything else in Aug last year.

Don't mean to sound dramatic, but I really feel like I'm dying. My chest is so restricted and I can't breathe, and can hardly walk, can't support my family anymore. It all hit me on one day. A lot of times I can't walk at all. I just don't want to treat the wrong thing first and mess myself up worse than this.

Thank you all so very much for your help. Guess I'm in for a long journey. Just hope it starts going the other direction soon.

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gz
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Hang in there, sicksam. There is so much to try and take in at the beginning, things will become easier to understand as you move through treatment. Once you think you get something, there is a whole new layer to consider.

Try to relax and trust your doctor. I think at the very beginning as long as the treatment is hitting something you'll see changes that can influence or dictate what comes next.

Some symptoms might get worse, get better, might get new ones you never had. Just keep track, you will probably see patterns emerge, more distinctly and for each infection as you get further into treating.

Often with any parasite treatment we won't see stuff because it becomes digested and passed with waste. There are lots of microscopic parasites too.

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Marnie
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Cethromycin? Has your doc considered that abx?

But a bacterial export pump may be at play.

Add to the above?:


"...berberine extract that was believed to inhibit bacterial MDR pumps"

Probiotics - lots (!) and many varieties - every day.

Be careful about too many off the shelf supps. and their potential interaction.

There appears to be a synergy with diflucan (Rx) and berberine (OTC) for "resistant" candida too.

IMO, the chloride form of BBR is likely the best.

PubMed abstract about that combo (diflucan berberine for resistant candida).

[ 03-20-2015, 04:48 PM: Message edited by: Marnie ]

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gz
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Keep reading and posting, and give yourself permission to step back before you start feeling overloaded with info. It seems like there are always more questions than answers with this stuff, and sometimes things will just make themselves known.

I hope you get some positive changes soon!

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TerryK
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I have this at times and for me it is too much sulfur. I have the CBS upregulation (methylation issue) so sulfur turns into toxins. Too much and I get the burning feeling. I often have it in the muscles but sometimes all over. A nutramedix product called sparga helps but I have to take it for awhile before it clears.

I'm sure there are many other causes for the symptom but I think an overload of toxins are often involved. Just my opinion.

Terry

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Keebler
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-
In addition to consider others' excellent suggestions above,

Niacin reaction?

It may not be an actual supplement you are taking but might some of the ingredients be high in niacin?

Still, I'd sure stop whatever you suspect. And I'd just never take that again. There are many other good options than to have to suffer through something that obviously is not quite suited to your body at this point in time.

Many other good options. I could never tolerate anything with wormwood in it, no matter how many times I tried. Although I did very well with artemisinin years later -- they are cousins in some ways but still very different in some ways in how I reacted.

There could be one or more things in that formula that are just not right for you.

And, if stepping back, giving it time, starting at a way lower dose later on does not work, you may be refunded the cost if your ask for a return for the reason of intolerance.
-

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Keebler
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In addition to lookup's excellent homeopathic suggestion, TerryK's idea about Nutramedix Sparga, SGK's "drink water" . . .

other options to help calm down the fire right now:


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=123746;p=0

Topic: MAGNESIUM - Informational Links set

[But I would NOT take an Epson salts bath right now. And that is a sulfate form - as Marnie points out sulfates could be harsh. Epsom salts can really irritate & burn skin that is already irritated.]


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=031228;p=0

STINGING NETTLE LEAF (not root) - Links set

The herb, STINGING NETTLE may serve to compensate for the reaction by calming the the cytokine storm that is often part of a herx reaction.


http://phoenixrising.me/archives/20820

CYTOKINES: Explaining what they are and how they . . .
-

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Keebler
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I just stumbled upon this recent report on a NYC news site:

Some "all natural" products are not all that natural after all:

http://7online.com/health/chemical-found-in-all-natural-products-causing-allergic-reactions/552089/

CHEMICAL FOUND IN ALL-NATURAL PRODUCTS CAUSING SEVERE ALLERGIC REACTIONS

- March 10, 2015
-

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Keebler
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From my file notes on that same chemical from news reports last year:

http://www.washingtonpost.com/national/health-science/a-mysterious-rash-on-a-womans-hands-and-lips-stumped-specialists/2014/07/28/10e3aff6-0485-11e4-8572-4b1b969b6322_story.html?hp id=z4

A MYSTERIOUS RASH ON A WOMAN'S HANDS & LIPS STUMPED SPECIALISTS

The Washington Post - Health & Science - July 28, 2014

- By Sandra G. Boodman

Excerpts:

. . . At her second appointment Zirwas examined her back, confirming his hunch: The only strong reaction Omiatek displayed was to a chemical called

methyllisothiazolinone, MI for short, Methyl Isethionate


In some Seventh Generation "Free & Clear" dish soap I had used for some time:

http://www.vitacost.com/seventh-generation-natural-dish-liquid-free-and-clear-25-fl-oz-4


back to Washington Post article:

which is used in high concentration in hundreds of beauty and personal care products.

In Omiatek’s case, MI was in the new brand of “sensitive” baby wipes she had begun using a few weeks before the hand rash erupted.

The pattern of the rash, which was on her right, dominant hand, matched the way one would use a wipe. MI was also in the dishwashing soap she used as well as in her soap and shampoo. . . .

. . . estimates that about half of the approximately 300 MI allergy patients he has seen were using wipes. . . .

. . . Unlike shampoo or soap that is rinsed off, the substances in toilet wipes remain on the skin, in a part of the body where evaporation does not occur.

“It gets driven into the skin, perpetuating the problem,” said Zirwas, noting that it takes months for the rash to clear entirely after a patient stops using the product. . . .

. . . The concentration of MI in some personal-care products was increased about five years ago to replace other preservatives, including formaldehyde, which have been linked to health problems.

“People thought it was going to be” an effective replacement, Zirwas said, “but around two or three years ago, we started seeing an incredible increase in the number of people allergic to it.” . . .

. . . She also learned she was allergic to the brand of “sensitive baby sunscreen . . . .
-

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Keebler
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Since I stopped using products with that chemical in it, my skin issue is so much better. The shampoo and bath products I was using were labeled organic but had some harsh products in them.

After a lot of searching, I found some that really are more gentle, free of harsh ingredients and they work.

Check out ingredients at the EWG site - Environmental Working Group. They also have some off-shoot sites connected to their organization. I think one is called Skin Deep (?)

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SickSam
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Thank you all so much. I really appreciate all the help. Trying to trust my doc, but the first thing he tried to give me was Cipro, and I'm scared that some of this was caused by Cipro in the first place. He won't listen to me about fluoroquinolone toxicity. [Frown]
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CherylSue
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SickSam, Cipro, part of the flouroquine drug family, can cause burning skin. It sort of sets up a sensitivity pathway for the lyme toxins (or possibly other pathogens) to hang out.

Levaquin, part of that same family, did it for me. I had IV Levaquin in the hospital 15 years when I first got sick. I've had the burning skin with Lyme and relapses since then. It's very annoying.

It does go away once you get your infections under control.

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Nula
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SickSam,

How are you doing now?

I have massive skin burning. It's one of my main symptoms. For me it's neuropathy - likely caused by babesia. Babesia duncani tends to cause more neurological symptoms than other Babesia species.

I know it's not a med reaction in my case as it was one of my first symptoms - way before I got diagnosed.

B12 shots, magnesium ... nothing touches it but treating the infection(s).

Consider taking Lion's Mane. It's supposed to help nerve growth.

--------------------
I appreciate all your replies. If it takes me a while to respond, it is either because I'm too sick or because I am unable to log in. From European servers, Lymenet is very frequently inaccessible for days at a time ...

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Lymetoo
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New diet .. organic... I hope you reviewed the link I provided on salicylates. Good organic diets back-fire on some of us.

--------------------
--Lymetutu--
Opinions, not medical advice!

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Lymetoo
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Floxins:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/130342

--------------------
--Lymetutu--
Opinions, not medical advice!

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SacredHeart
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My body, and my head felt like it was on fire in the start of my illness.

I felt like there was acid in my veins instead of blood. It was pretty crazy.

--------------------
Lyme flare June, July, August of 2013. Diagnosed September 2014 Lyme, Bartonella, Mycoplasma, Mono

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CherylSue
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Good description- acid in the veins. That's how I felt, too, with a fried brain.
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mlg
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My LLMD said burning body feeling was from babesia or babesia like organism. And anti-parasitics will help.
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