Topic: Best antibiotic for your lyme? What worked?
2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
I know everyone is different, but what single drug helped you the most. If you had only one you could take, which one would you want? Thanks loads -
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
| IP: Logged |
beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
Iv rocephin 4 g w IV zith 500 mg 4 on/3off x 10 months, tindamax 2 wks on//2wks off, diflucan MWF. Numerous supps, probiotics. Best of luck!
Posts: 1885 | From here | Registered: Jul 2012
| IP: Logged |
desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
Good ol Doxy followed by Biaxin.
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
| IP: Logged |
2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Thank you beaches, desertwind, tutu, and marcholland81.
I don't think were at the IV junction yet, but its good to know beaches if it comes to that.
The "mycin" drugs seems to be a priority, as well as doxy so far on the thread. Hmmm. We've been on endless Zith and Biaxin in the past, and now have a positive CDC antibodies Igenix result.. Don't think we've been rebit, but could be wrong. If not, then they are not eradicating things for us. Haven't tried telithromycin. Also, haven't done doxy yet.
I'm wanting to give just one med. Worried about yeast and liver. Yeast is a lab positive issue, and we've been on nothing for 3.5 years. Treating that now.
Thanks for the help everyone. Up for anymore responses.
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
| IP: Logged |
posted
Nowhere near done yet, but I've made great progress on lyme with doxy and tinidazole. The tini does a great job on my babs symptoms too.
Posts: 474 | From US | Registered: May 2014
| IP: Logged |
To make clear: these have not cleared my symptoms but kept them in check the best. Telithromycin was the best but I think its only available in europe. I know an online pharmacy where you can buy it, just pm me. Its about 100 euro'for 30 pills if I remember correctly.
Posts: 30 | From Netherlands | Registered: Mar 2015
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
biaxin absolutely
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Why you are "wanting to give just one" antibiotic is understood due to load but just one can do harm with bacterial resistance in various ways and that can make the infection all the more entrenched.
Some of the required treatment to address cyst form of lyme is not the same kind of Rx for the spirochete form.
If babesia is in the mix, yet a different kind of medication as well -- and it must also be a combination / rotation approach.
Still, just one antibiotic at a time can create resistance. It seems as if you do not have a LLMD guiding treatment here so I really do hope you can find one - and one who also can guide you in the gut & liver support so that treatment is better tolerated.
Good luck. -
[ 03-25-2015, 03:49 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Other methods? LL ND; Rife (but I'm not sure if this is for yourself or for a child).
The liver support is essential not just for the liver / kidney but also for hearing / balance protection of sorts. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Thanks for the additional responses! This is helpful.
Keebler, I have a LLMD but the suggestion has been Bactrim and Zith, something we have been endlessly on in the past. Coupled with my concern for ears, and bladder, I feel it should be under discussion.
Worried about yeast and liver, and I am alone when it comes to liver support. Not all docs do much with this. Hesitant to bark up my own tree again...we all know where that left my family three and a half years ago, So, I want to make it as simple and safe as possible. But, Keebler, you have some valid points.
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
For lyme: high-dose amoxicillin with probinecid and add flagyl for the cyst form of lyme.
Use Burrascano doses.
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Sorry you are "on your own" with liver support. Hope this helps:
LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
After the initial 8 to 12 weeks on high-level "doxy"? (& Fagyl added, as tolerated, for some), I'd follow TF's recommend & go with the high-level "amoxy", for NINE MONTHS+ (to avoid Lyme relapse), BUT I'd substitute "Zith" (azithromycin) for the Flagyl here. Just my opinion!
Those that are allergic to the penicilluns should go with the Biaxin (clarithromycin) instead. And adding *some* Plaquenil in w/ any macrolide- like Biaxin- is a good idea (see Dr. B's). But have an eye-check done *first*, as a baseline reference, so that any adverse vision effects that *might* be caused by the "Plaq" (hydroxychloroquine) can be detected.
Of course, liver support, all the usual recommended supplements, & exercise *every other day* for 45 minutes+ (build up) are a given here.
That's what worked best for ME. Posts: 1233 | From Dover, NH | Registered: Sep 2008
| IP: Logged |
'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
Whoops! I meant to say I'd substitute 'DiFlucan' (flucanazole) in place of Flagyl in that hi-level amoxicillun protocol. It supposedly "weakens" the 'ketes, & making 'em more suceptible to the antibiotics. It affects their CT450 cytochrome defense mechanism (I may be off by a letter)... WTF that is.
Posts: 1233 | From Dover, NH | Registered: Sep 2008
| IP: Logged |
CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
Ceftin(generic cefuroxime axetel)
Flagyl
malarone
Posts: 1954 | From Illinois | Registered: Aug 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[bonk]](graemlins/bonk.gif)
![[Wink]](wink.gif)
![[Smile]](smile.gif)
Printer-friendly view of this topic