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» LymeNet Flash » Questions and Discussion » Medical Questions » Babesia Duncani--anyone have this from New England?

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Author Topic: Babesia Duncani--anyone have this from New England?
ArtistDi
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I always thought this was prevalent on the West Coast. But now, this has come up on a screening through Igenex. Matches symptoms--chills, night sweats and air hunger. Treated Babesia (before there was testing for Duncani & was neg. for Microti) 14 years ago and never had any trouble until now.
Posts: 1565 | From Hatfield, MA, USA | Registered: Mar 2002  |  IP: Logged | Report this post to a Moderator
TF
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Duncani started on the west coast but it is all over the U.S. now.

Here in Maryland, I have a friend who tested positive for both microti and duncani.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
bcb1200
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I'm from MA and tested positive in 2010

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3110 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
ArtistDi
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bcb1200, what treatment did you do for it? Anti-malarial drugs or herbal?
Posts: 1565 | From Hatfield, MA, USA | Registered: Mar 2002  |  IP: Logged | Report this post to a Moderator
bcb1200
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Ive done high dose malarone (6 pills / day) with Zith. I've done high doze Mepron with Zith.

I've done high dose clindamycin, herbs,etc.

You name it, I've done it.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3110 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
WPinVA
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I had a positive test three years ago, and I got infected in Virginia.
Posts: 1737 | From Virginia | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Summer3
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I'm in VT and had high titers from Quest of all places.....even after doing years of anti-malarials including Mepron.

--------------------
http://www.lymepie.blogspot.com

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shehasmoxy
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Got it too, possibly in 2002. In New England that whole time, no travel out of the region,

It's def spread. It's antibiotic resistant, been treating it for 9 months, still present. Zith, mepron and herbals. Afraid it's with me for life.

PCP told me its a controversial diagnosis. See, those things 'resolve on their own'

Posts: 35 | From Boston | Registered: Jul 2014  |  IP: Logged | Report this post to a Moderator
seekhelp
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I'm not sure I would fully trust the test honestly. SO many people test positive, including me. This is one I never have been able to fully accept, though it could be there for sure. It's almost ridiculous how many test positive in my opinion.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
Bitten in Bergen
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The test is b.s. - I had babesia for many years and it wasn't until we started treating (over 6 months with Zith/Mepron) that we actually got a positive.

A good clinician will treat based on clinical presentation. The proof is when there is improvement, even in the absence of positive tests.

Unfortunately, mepron, malarone and tindamax (NOT pulsed - ugh) didn't work at all for me. It was only when I did an herbal protocol that my babesia symptoms were controlled. This ranged from pulsed liposomal artemisinin, Beyond Balance products (Bab-1 or Bab-2), etc.

Only then did my symptoms of extreme fatigue, heat intolerance, orthostatic hypotension, palpitations and shortness of breath improve.

BTW - I am on the east coast and, although I did travel to the west, I was bitten in the east.

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LymeCFIDSMCS
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I got it in W. Mass.
Posts: 926 | From Massachusetts | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
   

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