Hello,I havent posted in a while but i have visited. I did my gene test thru 23andme.com and i have the mthfr gene mutation. I have been dealing with Lyme Disease since 1998.
I havent been to the llmd i was seeing for a couple of years. I recently starting seeing a Naturopath Doctor and she recommended i do the gene testing.
After we got the results she started me on B12 liquid formulated with methylcobalamin and Methyl factors. When i first met with her she suggested i take glutithione powder twice a day and that helped with stomach pain and bloating.
I am taking Lisinopril, Prilosec, and Effexor and some supplements. I searched on here for mthfr and did really get any ideas of what other people are taking if they have the gene mutation. Can any one help?
**edited for easier reading .. thanks in advance for allowing space between sentences**
Gosh, I consult with a doctor here in SF who understands detox pathways with their various enzymes. I kinda think you need to chat with someone who has specialized knowledge like that, on how to read the methylation map and what to do - it's all very specific to your enzyme SNPs.
My doc says he consults with people, but needs to see them at least once. So that works out for the closer people, but not the further away ones.
Come to think of it, there has been discussion here of someone who counsels people for $60 on the results of their 23andme testing. I don't know who that is -
you could make another post and put in the heading that you'd like info about the person who reads the 23andme results for $60, if you want.
Posts: 13084 | From San Francisco | Registered: May 2006
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Thank you for editing and putting my post in Medical Questions. I signed up with knowyourgenetics.com last night and look forward to that information. My ND is very knowledgeable in how the body works. (lyme brain, cant think of the word i want lol) anyway, i just want to have my own information because whatever she wants me to do i want to have info about. I have been very happy with all she has done so far, I take things slow because i know what i felt like when i was first being treated for Lyme disease and i could not do high dose antibiotics and now i know why. I just wondered if there is any one else in the similar situation. I know we are all different. Thank you.
Posts: 16 | From Michigan | Registered: Oct 2008
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You'll need to be more specific about which MTHFR mutations you have, mich.
MTHFR could mean that your are more hypercoagulable, especially if you have lyme & co.
That was my situation. Although I have heterozygous C677t, it really isn't a big deal and I don't need any folate or methyl b-12. In fact, when my LLMD prescribed it, it actually made me worse. Now, if you're C677t homozygous, that's another story.
What I have been doing, though, is taking various fibrinolytics during lyme treatment. My LLMD rotates me through things like lumbrokinase, nattokinase and/or plant enzymes to help break up biofilms so that the infections can be killed effectively.
Just as important as MTHFR testing is HLA-DRBQ testing, which can indicate your body's ability to eliminate toxins. If you are genetically predisposed to biotoxin illness, binders will be even more critical in your lyme treatment.
Posts: 348 | From NJ | Registered: Sep 2011
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