LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » cholestyramine

 - UBBFriend: Email this page to someone!    
Author Topic: cholestyramine
marypart
LymeNet Contributor
Member # 27012

Icon 1 posted      Profile for marypart     Send New Private Message       Edit/Delete Post   Reply With Quote 
My daughter is going off antibiotics and on cholestyramine for mold. She tested positive at real labs.

Does anybody have any thoughts or advice?

--------------------
Son, 26, Dx Lyme 4/10, Babs 8/10
Had serious arthritis, all gone.
Currently on Valtrex
Daughter, 26,bullseye 7/11
arthritis in knees, cured and off all meds. .
Self:Lyme, bart, sxs gone, no longer treating.

Posts: 496 | From Washington, DC | Registered: Jul 2010  |  IP: Logged | Report this post to a Moderator
droid1226
Frequent Contributor (1K+ posts)
Member # 34930

Icon 1 posted      Profile for droid1226     Send New Private Message       Edit/Delete Post   Reply With Quote 
ramp up. i took recommended dose and it hammered me so i took half and that was perfect. i'd just see where her baseline is with a small amount and obviously take away from everything else. night time is perfect, especially if she herxes any.

also, make sure the bowels are moving and detox is a priority.

it's a great drug for many people.

--------------------
http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

Posts: 1181 | From ohio | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
Make sure there are no artificial additives of ANY kind, even "natural flavors" are often MSG.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
Many do okay or well with it but it was terrible for me. I think because it depleted my nutrients.

Starting at a very low dose -- and still somehow figure out how to get nutrients so that this does not take them all away from getting to the cells in the body.

Chlorella was so much better for me, and full of excellent nutrients, too.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I hated it myself. It does seem to help those with mold issues.

Good advice from Keeb and droid.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

Icon 1 posted      Profile for TF     Send New Private Message       Edit/Delete Post   Reply With Quote 
Serious constipation can result. Take laxatives along with it from the start. Don't wait until you have a problem because then it can be a really BIG problem.

Read what Burrascano says about it on page 13.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
marypart
LymeNet Contributor
Member # 27012

Icon 1 posted      Profile for marypart     Send New Private Message       Edit/Delete Post   Reply With Quote 
What laxatives?
Miralax?

--------------------
Son, 26, Dx Lyme 4/10, Babs 8/10
Had serious arthritis, all gone.
Currently on Valtrex
Daughter, 26,bullseye 7/11
arthritis in knees, cured and off all meds. .
Self:Lyme, bart, sxs gone, no longer treating.

Posts: 496 | From Washington, DC | Registered: Jul 2010  |  IP: Logged | Report this post to a Moderator
jlcd1
LymeNet Contributor
Member # 18138

Icon 1 posted      Profile for jlcd1     Send New Private Message       Edit/Delete Post   Reply With Quote 
I would avoid miralax


https://www.gutsense.org/gutsense/the-role-of-miralax-laxative-in-autism-dementia-alzheimer.html#wean_off

Posts: 908 | From Albany | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
Chemical laxatives are a rough burden on a body that has trouble with mold as many also have MCS (multiple chemical sensitivities and chemical drugs can make that so very much worse).

I advise to avoid chemical / pharmaceutical laxatives. They also have dependency issues and can interfere with the body's natural muscle ability in that regard.

The right kind of MAGNESIUM can be of help.

The best plant based colon helpers I have found are TRIPHALA - and Seven Forests Rhubarb 17.

Lots of vegetables, and whole dark rices also good. WILD rice is especially good for colon motion.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
marypart
LymeNet Contributor
Member # 27012

Icon 1 posted      Profile for marypart     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks everybody. Love the rapid replies!

You are all amazing. When I look back on how lymenet kept me together when my son was in serious treatment.. months of IVs, seeming like the arthritis would never go away...

You all got me through it! And to think it's almost 3 years that he is in a complete remission. Cure? I shouldn't even say it.

Thank you everybody.. Here's hoping for my daughter to get well soon.

--------------------
Son, 26, Dx Lyme 4/10, Babs 8/10
Had serious arthritis, all gone.
Currently on Valtrex
Daughter, 26,bullseye 7/11
arthritis in knees, cured and off all meds. .
Self:Lyme, bart, sxs gone, no longer treating.

Posts: 496 | From Washington, DC | Registered: Jul 2010  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
My Dr had me use sorbitol (ask the pharmacist) but that involved another set of problems.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
ukcarry
Frequent Contributor (1K+ posts)
Member # 18147

Icon 1 posted      Profile for ukcarry     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am on Cholestagel (Welchol) for excess bile problems. This works very similarly to Cholestyramine, which I have also had in the past.

I would like to echo what others have said: I started with half a tablet (ie perhaps a quarter of a sachet) and built up every few days. I find that the right balance of magnesium and C can usually make sure that constipation does not occur (this is vital), but it is sometimes tricky.

I take the Welchol a few hours after dinner, shortly before bed and occasionally need to take more in the day, in which case I make sure to take supplements etc well away from it.

Even if you are meticulous about taking these meds away from other stuff, I do think that over time they deplete nutrients, especially as people with this illness often aren't able to absorb their nutrients well. Because of this, I am trying to change some supplements to liquid or sublingual alternatives. Tablets are the least well absorbed, followed by capsules, according to an old LLMD of mine.

Posts: 1647 | From UK | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
marypart
LymeNet Contributor
Member # 27012

Icon 1 posted      Profile for marypart     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you. Great idea about using sublinguals. I think even some chewables would work. Fortunately her diet is excellent..very nutrient dense.

--------------------
Son, 26, Dx Lyme 4/10, Babs 8/10
Had serious arthritis, all gone.
Currently on Valtrex
Daughter, 26,bullseye 7/11
arthritis in knees, cured and off all meds. .
Self:Lyme, bart, sxs gone, no longer treating.

Posts: 496 | From Washington, DC | Registered: Jul 2010  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.