posted
Hello. My name is Sean and last week I was diagnosed with Lyme from a naturopathic doctor but NOT a LLMD. I was prescribed antibiotics that I have not started yet because I want to be ABSOLUTELY sure they are necessary before putting any poison into my body. Also, I have an appointment with an LLMD in 3 weeks that I MAY end up canceling because of its high cost of $700 per appt. Again, before I spend that much, I want to be ABSOLUTELY sure I have the disease. Possible useful info:
-I was diagnosed with herpes simplex virus II last year.
-I was diagnosed with Candida yeast overgrowth at the same time as Lyme
-symptoms include: massive fatigue, brain fog, attention deficit, joint pain, fall asleep fine but ALWAYS wake up after exactly 6 hours of sleep. These have all been going on for about a year now.
Below is a link to the PDF of my Igenex lyme test results. I would love it if you guys could help me out here. Sort of in a panic. Thank you in advance.
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
You have band 31 positive, then the doctor ran a test to be sure it was not a false positive and that was also positive. Typically a Lyme doctor will consider band 31 and band 41, such as you have, a positive test ... plus he double checked to be sure.
My LLMD said that IgG band 31 doesn't show up until you've had it at least a year.
Yes, your tests show you were exposed to Lyme. You very well could also have candida and viruses, it's very common to have multiple infections.
This doctor appears to know what he's doing, why not stay with him?
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Yes, you have lyme.
If you have been sick for a year and cannot find any other cause, then be happy that you now have your diagnosis.
Your symptoms are so typical of lyme. Antibiotic treatment can get rid of them for you.
Get to a good lyme doctor. The doc is the key to getting rid of this disease. Can't emphasize that enough.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Welcome to Lyme Net!
Sorry to hear about your symptoms. Hoping you feel better soon.
Do you remember being exposed to ticks? Did you get a rash of any kind? Are any other tests out of normal range?
May I suggest canceling the LLMD appointment if the ND is willing to help you? That is a LOT of money to shell out if you have someone else willing to help you.
My thought is it may be better to pay once and wonder about the diagnosis, rather than paying twice and still doubting the diagnosis.
Maybe you can question the ND again, just letting him or her know you are wondering about it.
posted
I don't believe in false positives. Very rare and your doctor checked twice .. with a test to rule out something else making the band 31 show up.
posted
Your tests show you have chronic active Lyme disease. Dont argue over this!
Posts: 532 | From Texas | Registered: Oct 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Sounds like your naturopathic doctor is a LL ND. So that you might understand more about what that means and how it can be very good thing:
First of all, NDs know how to help your body manage Rx better especially with liver support, etc. You refer to antibiotics as "poison" but - in this case - it's lyme that is the poison. Lyme is one of the most neurotoxic, liver toxic, toxic to every body organ / system infection around.
Antibiotics, in combination with other Rx and support methods are what can address such a horrific stealth infection.
Good medicine is what works.
Of course, it's still not easy. But a ND really is well suited to know how to make it easier while also still effective (If the ND is truly LL, of course, and yours appears to be at this point in time, anyway).
Support methods are so very important with lyme treatment and it sounds like you already have someone who will understand the full range of treatment.
Look over this thread so that you will have more information on which to base your decision and to assess the expertise of the ND who already has given you excellent attention.
Links here will show the range of expertise with LL NDs.
- When considering herbal / nutritional / adjunct methods, because lyme is so very complex & unique, as are possible coinfections:
if at all possible - because each person & each case is different - it's best to consult with an ILADS-educated LL ND (lyme literate naturopathic doctor) (or similar) who has completed four years of post-graduate medical education in the field of herbal and nutritional medicine -
- and someone who is current with ILADS' research & presentations, past and present, and has completed the ILADS Physician Training Program (see: www.ilads.org )
so they really know all they can about the science of lyme . . . how lyme (& other TBD) act and what we can do about that in various ways.
Many LL NDs incorporate antibiotics (depending upon the licensing laws in their state). Some LLMDs and LL NDs have good working relationships.
When possible, it's great to have both a LLMD and LL ND and even better when they have a long-standing professional relationship.
Herbal Safety considerations & reference books; etc.
Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
Understanding of the importance of addressing the infection(s) fully head-on with specific measures from all corners of medicine;
knowing which supplements have direct impact, which are only support and which are both.
You can compare and contrast many approaches with links to articles, books, methods . . .
BODY WORK methods / links (and why anyone who works on your spine MUST be LL to the degree they at least know to never suddenly twist neck or spine. Never. Ever. And that we should never be advised to do neck / head / shoulder stands.) -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Hi - I'm pming you -
Posts: 13171 | From San Francisco | Registered: May 2006
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Yes, you have lyme.
$700 is probably for the initial apt (LLMD). The initial apt takes longer to find out your history and go over things with you. Then the follow up apts are less.
A lyme literate MD, ND, DO, NP, PA is going to know more about the co infections than anyone who is not lyme literate, and the co infections are a major part of lyme. IMO, it's never just lyme. There's usually something that comes with the tick (co infections).
The co infections cannot be ignored, and less experienced docs are usually not even aware they exist.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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