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» LymeNet Flash » Questions and Discussion » Medical Questions » Does anyone know where this medical information website went?

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Author Topic: Does anyone know where this medical information website went?
hopingandpraying
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When trying to access this medical website now, it says "Server cannot be found". I could always find this before.

The website is: www.thehumansideoflyme.net

Anyone know where it went? Deleted? Moved? Changed address?

This is an important website which I send out or refer people to when asking for specific information.

Any help will be greatly appreciated. Thanks.

[ 08-03-2015, 02:41 PM: Message edited by: hopingandpraying ]

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sixgoofykids
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Which website?

--------------------
sixgoofykids.blogspot.com

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Tincup
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There's another question I can answer either, Goofy. So I agree. Which website Hoping?

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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hopingandpraying
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Oops! Don't know how I omitted it.

www.thehumansideoflyme.net

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hiker53
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Are any of these 3 the one you are looking for?
The one you list just takes me to a list of sites.

http://lymemd.blogspot.com/2008/07/human-side.html

Here is the blog spot of a MD.
http://whatislyme.com/the-human-side-of-lyme-by-dr-bleiswell/

http://diaryoflymegirl.blogspot.com/2012/05/human-side-of-lyme.html

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

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Keebler
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Oh, no. This is a terrible loss. I've searched around and it's just gone. Even the author's name does not bring that up.

I compiled a set below, though, from copy / pastes to other sites.
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TF
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I would say that Virginia Sherr has been retired for so long now that she has taken down her website with the article she wrote entitled "The Human Side of Lyme."

So, if someone has a paper copy, perhaps they can scan it and put it up on a private site. Otherwise, all you will have will be bits that people have quoted on their own websites.

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Keebler
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Along with the links hiker53 lists (which are included below in this set with some explanations).

This is all I can find from other sites where her work or work she posted on her site may appear. Anyone who values her writing may do well do copy and paste these articles in full to your own word files for easy access. From time to time, this happens with excellent articles / sites.

Websites change, leave, authors move on - I hope we find some explanation and I know that I've really just taken for granted that her work would always be there for reference. It must cost a lot to keep a site up forever.

I hope the progression of my notes makes sense and, maybe the detail you seek is in one of these:


http://lymemd.blogspot.com/2008/07/human-side.html

LymeMD Blogspot - entry of July 7, 2008

The Human side - [a very good blog entry yet not at all part of a website collection "The Human Side of Lyme" - Virginia Sherr.]


https://www.psychologytoday.com/blog/emerging-diseases/200901/when-the-doctor-gets-sick-the-journey-is-double-edged-part-i

When the doctor gets sick, the journey is double-edged (Part I)

Only the doctor who has been a patient can really understand. Virginia Sherr's story. Post published by Pamela Weintraub on Jan 09, 2009

[Parts II & III have links here, too.]

The Human Side of Lyme - An Inhumane Disease of the Brain


http://www.lymeinducedautism.com/images/Belle_s_Palsey_of_the_Gut.pdf

“Bell’s Palsy of the Gut” and Other GI Manifestations of Lyme and Associated Diseases

PRACTICAL GASTROENTEROLOGY • APRIL 2006
A SPECIAL ARTICLE

Virginia T. Sherr, M.D., DLFAPA, Distinguished Life Fellow of the American Psychiatric
Association, Solo Private Practice of Medicine, Holland, PA.

11-page pdf throgh the website of Lyme Induced Autism


http://cassia.org/essay.htm

When To Suspect Lyme Disease

Essay by John D. Bleiweiss, M.D. in April, 1994

This was a major post at Sherr's website.

http://diaryoflymegirl.blogspot.com/2012/05/human-side-of-lyme.html

long excerpt directly from the original website.

The Human side of Lyme - Entry for Friday, 18 May 2012 - by Diary of Lyme Girl

From the original site

- not at all the words of this blogger but all of this has been copy & pasted directly from the original site. At the bottom, that citation is made.

However, it's not legal to just lift such large excerpt and copy and paste to others' sites . . . in such cases, even with short excerpts that are legal to copy / paste, it should be listed at the start whose work one is reading / posting so that it's very clear.

And, although it's not the best legal practice to do this, it's surely in the intent of goodness, in sharing, and a good thing there is some other place to read this now that the original site seems to be unavailable.
-

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Keebler
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-
Not one article or reference for "Sherr" - nor for her website name - found at ILADS, www.ilads.org

That had been there a while back. "Bell's palsy of the Gut - Summary" had been at this link, which is no longer active:

http://www.ilads.org/lyme_research/lyme_publications14.html


Below, on the author's own site, she has a link to her "The Human Side of Lyme" site but it has gone invalid. It's nice to read more about her and her excellent efforts in lyme education and awareness.

http://www.virginiatsherrmd.com/about.html

Excerpt:

. . . Dr. Sherr is a founding member of the organization, International Lyme and Associated Diseases (ILADS). She has served as its membership, chairman, and Board Member of that organization for 9 years. She is currently an Emeritus member of ILADS. . . .
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[ 08-03-2015, 05:23 PM: Message edited by: Keebler ]

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Looking
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Try this:

http://www.lymenet.nl/forum/viewtopic.php?f=8&t=7938

PRACTICAL GASTROENTEROLOGY
April 2006

by Virginia T. Sherr, MD

Bell's palsy signifies paralysis of facial muscles related to inflammation of the associated seventh Cranial Nerve. Physicians may not realize that this syndrome is caused by the spirochetal agent of Lyme disease until proven otherwise.

Whether it is a full or hemifacial paralysis, Bell's palsy is cosmetically disfiguring when fully expressed. Sudden loss of normal facial expression terrifies patients who naturally fear they are having a stroke. When a smile is asked for, normal countenances warp into bizarre grimaces.

The amount of tooth area exposed in this attempt to smile helps doctors evaluate the degree of paralysis and its change over time (Figure 1).

In every case of Bell's, doctors need to carefully investigate by history, physical, and laboratory work every shred of evidence that might suggest the presence of cryptic tertiary Lyme, a serious multisystem, gut and neuro-brain infection even though about half of fully diagnosed patients have no evidence whatsoever of having had a tick-bite.

The rest of the article is there too.

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Rumigirl
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All of her articles should be included somewhere on LN in a sticky. We don't ever want them to "go missing." They are way too valuable!!

Are they really not on the ILADS website?? That would be a shame.

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hopingandpraying
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Thanks to all for your most valuable input. I thought I had paper copies of all items in her website, but only made a copy of "When to Suspect Lyme" by Dr. John Bleiweiss.

I think the website is an invaluable tool for information, especially when people re inquiring about psych problems, and how Lyme manifests itself in different ways.

I'm trying to research how to go about retrieving deleted websites, but will have to check with my tech-savvy hubby & sons for further direction.

Yes, I agree - it should be included as a sticky on Lymenet. If anyone finds it, please post it and you can be assured I will make paper copies of EVERY section in the website to hold onto!

No, I was not able to find it on the ILADS website. All I did find was a brochure entitled, "Psychiatric Lyme: What Every Mental Health Specialist Should Know About Lyme and Tick Borne Illnesses".

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Keebler
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To copy and paste whole articles, though, or even whole paragraphs is against copyright law. Only small excerpts are generally allowed.

It would also be illegal for LymeNet to post full articles without the author's permission. Once in a while, it's been done here - usually in an "easier to read" format. But it's not quite all above board.

It is okay to copy & paste to our own personal file for our personal study but not to post large chunks on the world wide web.

Of course, that is to protect the rights of the author and also to prevent any alterations or misinterpretations of their work.

With a site such as the one we discuss here, we should find out the author's wishes. All material she wrote is her property.

For other articles that were posted at her site, she had permission for those and always posted clear ID of authors. Some authors want their works shared, for some reasons, others might want to have some kind of controls.

As all that was at her sites was excellent, it will serve others to have access to that, without a doubt. But that gives no one the right to another's work without their permission. It's their property, their intellectual property accomplished through their hard work and usually years of that.

Of course, with links that stay forever, it's been so handy to post a link, author, and a brief excerpt. Just because that goes away, though, does not mean we can grab whatever we might find elsewhere and post. Copy and read while we might for our personal, private use seems reasonable.

Just posing some of the considerations in general about the legalities involved, in general. And it's also about respect & fairness to the author. Surely, someone has some way to contact her and approach this matter.
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[ 08-04-2015, 02:40 PM: Message edited by: Keebler ]

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hopingandpraying
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Thanks hiker53 & Keebler for the "Diary of Lyme Girl" link. I just pulled up the home page of "The Human Side of Lyme" from it.

I found a good substitute to use, namely,

www.lymeinfo.net/neuropsych.html

This website includes: Full text peer-reviewed articles, misc. articles, book & videos and additional resources.

I'll keep you all posted if I find any more info about the deleted website.

Thanks again, I'm very grateful for each person's help.

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hopingandpraying
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Excellent "food for thought" about the legalities of re-printing someone else's intellectual property.

Thank you, Keebler, for bringing it to our attention.

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poppy
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You can get the full text, as I just did, of bell's palsy of the gut, and others that were on that website by going to the internet archive (the wayback machine).

But I don't know how to reformat it, being computer illiterate. If someone can tell me how to change this narrow column of type that takes 32 pages to cover into full pages on word program, it would be appreciated.

Here is the url:

https://web.archive.org/web/20120112022431/http://www.thehumansideoflyme.net/

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Keebler
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Wow, Poppy ! What magic you can make! You win the prize for that.

This looks exactly as her previous blog appeared. And, every link in both side menus also connects to the original pages. Marvelous. Simply marvelous, you are for finding that gem.


Now, regarding your puzzle. I could highlight the center page text just fine. When I copy & paste to "WordPad" (all I have, no real word processing program but this works just fine in that regard for me) it does not tell me the number of pages but it appears to about four - six or so.

It covers the full page, just like usual on my file page. And the same space breaks are there for paragraphs as in the format of web article.

There is also a "print article" option on the web retrieval page for this article. But I can't see a page setup to determine pages and just don't want to run my printer right now.

I don't know why your copy / paste experience is different from mine. Maybe someone else can help with that.
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Keebler
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But, wait, I did just go to the "Bell's Palsy of the Gut" page and that is very, very long. Still, it copies fully across my WordPad page.

I copy / paste in chunks as the "all" approach would not take but also I did not want to copy the photos / illustrations. Those could be why your formatting is off.

I copy / paste just the text. Perhaps, that might be a clue.
-

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hopingandpraying
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poppy - thank you, thank you, thank you for finding it!

Now, I'll leave the computer stuff up to the ones who are tech savvy!

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