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» LymeNet Flash » Questions and Discussion » Medical Questions » IV Daptomycin

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Author Topic: IV Daptomycin
A.G.
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Experimental treatment.

[ 08-26-2015, 04:47 PM: Message edited by: A.G. ]

Posts: 115 | From US | Registered: Sep 2014  |  IP: Logged | Report this post to a Moderator
Brian66
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Hello,
Hang in there and hopefully this protocol will help you turn a corner. I have been reading about Dapto. and it's potential . Be strong
Brian66

Posts: 45 | From Ct | Registered: Jun 2015  |  IP: Logged | Report this post to a Moderator
Lepidopterophile
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Wow! That is great. My non-LLMD down here would never do this. I need to start saving money so that I can travel to LLMD's who do. I'm on 2 weeks of Dapto and Ceftin. The sleepiness you discuss has been my experience too. SO exahausting. Today was day #4. I've been sleeping 8-9 hours at night which is high for me and a couple of hours during the day. Good luck. I'll be interested to hear about your long-term results. I'd been in remission for 1.5 years but thrown back to active in June with a tick bite.

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Positive Western Blot IGM - First in 2013; most recently June 2015. IGG always negative but bands 41,45,58,66 positive.

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KarlaL
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Thank you so much for the updates. I've been trying to get information about patient experiences with Daptomycin. Is your insurance paying for both the IV Rocephin and the Daptomycin?

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KarlaL

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TNT
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WOW! I think there is a strong possibility that Babesia is flaring.... instead of a herx. I have not been following this protocol too closely, so please take this as a suggestion.

Do you think your doc would be open to hitting babesia at the same time?

It's just a thought. Especially if you don't make progress.

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A.G.
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In order to protect my Llmd, I gave the member who PM'd me the name of a well known, out in the open Dr.

Everyone should be wary of new posters who suddenly Pm about your protocol asking odd, detailed ?'s about your specific Dr.

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MDub
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quote:
Originally posted by A.G.:
Everyone should be wary of new posters who suddenly Pm about your protocol asking odd, detailed ?'s about your specific Dr.

I understand it's tough to strike a balance between giving information to help others and not giving too much to help those who want to suppress the truth about Lyme.

I made a similar decision recently to remove material I had posted on this forum. Unfortunately, that decision may have caused a chain-reaction of fear among other posters. I'm sorry if information or confidence was lost on my account. [Frown]

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