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» LymeNet Flash » Questions and Discussion » Medical Questions » How long into treatment before you noticed improvement?

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Author Topic: How long into treatment before you noticed improvement?
Spiritwalk
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I'm a couple of months in, and I still feel as bad as I did when I started. In fact, nothing has really changed. I don't think I've even herxed yet.

Since my symptoms are mostly joint related (joint popping), fatigue, and muscle twitching, I'm curious what a herx would even feel like?

Posts: 79 | From Austin | Registered: Jun 2015  |  IP: Logged | Report this post to a Moderator
WPinVA
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I felt a little better starting a few weeks in. Not much though.

Sometimes improvement is so slight that it can be hard to tell. I found it was helpful to chart my symptoms and how much activity I could handle, or to ask my husband if he noticed any improvement.

When improvement is going from feeling really awful to awful, I found it was sometimes hard to notice improvement even when it was there.

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Lymetoo
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Took me about 18 months to turn the corner on it.

Head up! [group hug]

--------------------
--Lymetutu--
Opinions, not medical advice!

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Andie333
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It took me about a year and a half, too.

I also charted my symptoms, so I could begin to see even small improvements. That helped my state of mind.

Posts: 2549 | From never never land | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
CherylSue
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It took me 18 months, as well, to see improvement. It helps finding the right abx and the correct doses which will speed things along.
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Brussels
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It took me about a week to feel I was back to the world of humans. I didn't treat with abx though.

I could be in the sunlight again without fainting, I could even walk a bit. Till one week before starting dr. K's treatment, I couldn't.

From then on, my improvement was slower, with ups and downs.

Later (some months later) I discovered how much binders were important, and that changed a great deal too (I just kept adding binders, until I felt good).

At that point, I didn't even mind to be so sick with lyme. At least, I could even feel good some hours a day, after taking binders. Then binder effect would fade, I feel crap again, I take again more binders, then life was fine.

It is not the infection exactly that makes us feeling crap, but toxins.

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Robin123
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A herx made me feel really tired. I had to back off of the amount of abx I was taking.

You could even address these symptoms with supplements, like a magnesium type for the muscle twitching.

I take bulk turmeric for my joints - I dip empty 00-size capsules into what I get at the health food store.

And try different things for the fatigue - like malic acid and magnesium, or try flower pollen, etc - you can do a search here for what people try.

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GretaM
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7-8 months aggressive IV and oral treatment.

Then I started to turn the corner.

Don't give up.
And if something isn't working for you, ask your doc if you can try a different combo of antibacterials.

Sometimes switching it up, well, switches things up.

Good Luck

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LisaK
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felt like total crap for the first 8 weeks on abx, then I saw a tiny improvement. still improving and one step forward, 5 steps back, haha , after a couple years. ? or is it only one year? I cannot even remember and too tired to look.

I really started to feel more like me this past spring, and then bam- rebitten and here I go again. so I think it was about 2 years to START to feel kinda normal for me. I think.

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

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LisaK
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OK so I see I registered here in 2013- so it is 2 years.

time flies when you're having fun

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

Posts: 3415 | From Eastern USA | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
   

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