LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » advice on starting rifampin

 - UBBFriend: Email this page to someone!    
Author Topic: advice on starting rifampin
paleogal
LymeNet Contributor
Member # 45991

Icon 1 posted      Profile for paleogal     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm starting rifampin in a week or so, and I'm asking about how to deal with the totally cosmetic side effect - orange or red sweat.

I'm still working full time and I don't want to ruin all my nice clothing when I am giving a presentation or walking to/from the train and sweating a lot (thanks, babesia).

Do I wear all black for the time I'm on this med?? I'm already resigned to giving up contacts, so I supposed I could wear my black clothing only...If you have any advice on dealing with this side effect, please let me know.

If you have had any other positive or negative experiences with rifampin as a med for Lyme, Bart and so forth, I would appreciate those too.

Thanks!

Posts: 243 | From Southern Arizona | Registered: Jun 2015  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

Icon 1 posted      Profile for dbpei     Send New Private Message       Edit/Delete Post   Reply With Quote 
For me, the only thing that turned orange was my urine. I was able to continue wearing my contact lenses while on it as well, with no problems. I don't ever remember my sweat turning red or orange. Perhaps not everyone reacts the same way.

Good luck to you. Rifampin is a powerful drug. Follow your LLMD's instructions as far as what to avoid while taking it and when to take it. I remember there being some supplements I needed to avoid, including milk thistle and CQ 10.

Posts: 2375 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
goose
Member
Member # 45410

Icon 1 posted      Profile for goose     Send New Private Message       Edit/Delete Post   Reply With Quote 
It just turned my urine orange and that is about it as well.

dbpei,

I have taken milk thistle since day one of my treatment with rifampin. I've have never heard that you couldn't take them together. Could you or anyone provide what it does?

Posts: 44 | From Owatonna | Registered: Feb 2015  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

Icon 1 posted      Profile for dbpei     Send New Private Message       Edit/Delete Post   Reply With Quote 
My LLNP had told me not to take milk thistle while taking Rifampin. But if you do a search, there is not a lot of information about it. I found this, which explains the reasoning.

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/111871?

Even the medical sites do not discuss milk thistle as being contra-indicated with rifampin. It might be a good idea to ask your LLMD.

Posts: 2375 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Go SLOW!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95974 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
didogs
LymeNet Contributor
Member # 40101

Icon 1 posted      Profile for didogs     Send New Private Message       Edit/Delete Post   Reply With Quote 
Rifampin helped me tremendously. I started very slow and gradually increased. It was very powerful for me
Posts: 238 | From new england | Registered: Feb 2013  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
Cotton, at least next to your skin is more breathable than synthetic fabrics. Any clothing that is "wrinkle free" likely has some kind of Teflon chemical in / embedded in it and that will also keep it from being able to breathe.

As for all black, actually, some of the darker dyes can make one sweat more if from petroleum based dyes. I try not to wear dark colors next to my skin, especially under arms.

If you hand wash an item and see that it runs, that's a clue. If there is no running, that is better. Some items have a way to set the dye but some cut that corner and just let the dye transfer to the wearer.


Some kind of liver support is still vital (not just to help the liver but also the ears), but timed away from the Rx by a couple hours both clock directions is a good idea.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=030792;p=0

LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
I don't know if it was rifampin but, my last month in college I was given some Rx for a bladder infection and my urine - much to my great surprise - turned bright red-orange.

I do not recall sweating color, though.

Eyesight, though was very much affected. Blurry vision was a huge surprise and nearly cost me my degree on time - and did cost me a "D" in a class since I could not read for weeks.

This is not to scare you but do look up possible effects and just be sure that blurry vision is not listed. If it is, knowing that in advance will sure help a great deal so you can plan ahead and get some kind of support team at work.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
I realized it can be an unnecessary burden to say this might cause blurry vision so I went searching for you. Found out that "blurry vision" is not the preferred medical term so found a few "hits" with

Google search: Google: rifampin "blurred vision"

One of those:

http://treato.com/Rifampin,Blurred+Vision/?a=s

Does Rifampin cause Blurred Vision?

". . . 17 posts discuss Blurred Vision with Rifampin. Blurred Vision is #109 concern in Rifampin discussions. . . . " (end excerpt)


Knowing it's best to go straight to the manufacturer's website for the effects list, it seems there are a few different manufacturers so you could take it from there.

Back to my thought that some kind of liver support is necessary, [I have no way to phrase this for a smooth transition but just know I mean well here with my caution on this.]

They tell you here how to decrease possible body sweat color:

https://en.wikipedia.org/wiki/Rifampicin#Adverse_effects

Rifampicin [Wikipedia]

Excerpts:

. . . U.S. as Rifadin (Aventis), Rifater (combination with isoniazid and pyrazinamide) (Aventis), Rimactane (Novartis) . . . .

. . . "Taking rifampicin can cause certain bodily fluids, such as urine and tears, to become orange-red in color, a benign side effect which can be frightening if it is not expected and prepared for.

This effect may also be used to monitor effective absorption of the drug (if drug color is not seen in the urine, the patient may wish to move the drug dose farther in time from food or milk intake).

The discolorizion of sweat and tears is not directly noticeable, . . . "

". . . The most serious adverse effect is related to rifampicin's hepatotoxicity, and patients receiving it often undergo baseline and frequent liver function tests to detect liver damage. . . . "
-

[ 10-19-2015, 07:29 PM: Message edited by: Keebler ]

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
paleogal
LymeNet Contributor
Member # 45991

Icon 1 posted      Profile for paleogal     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for all the thoughts, all. I am hopeful it will be good for me! I can put up with orange everything, I guess, if it gets rid of Lyme.

My doctor didn't recommend ramping up, just starting flat out. Does anyone have a protocol for ramping up? Like 1 tab 1x per day for a week, then 2 tabs 1x per day?

Thanks...

Posts: 243 | From Southern Arizona | Registered: Jun 2015  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Keebler:
-
I don't know if it was rifampin but, my last month in college I was given some Rx for a bladder infection and my urine - much to my great surprise - turned bright red-orange.


-
no, that's a different drug entirely .. It's for bladder pain, but right now the name of it escapes me. It's similar to AZO.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95974 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
paleo .. you'll need to talk to your dr about that... It can be a very rough drug.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95974 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Bitten in Bergen
LymeNet Contributor
Member # 34067

Icon 1 posted      Profile for Bitten in Bergen     Send New Private Message       Edit/Delete Post   Reply With Quote 
My kid was treated with rifampin for their bartonella and was put on too high an initial dose - it caused a flare and they had blood in their urine, which is a common side effect of bartonella.
Posts: 348 | From NJ | Registered: Sep 2011  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.