posted
The tropical disease specialist called this am - all tests for all the Lyme related tbd's are negative
Except for two bands of igm
He's not a llmd so is perplexed
Any ideas?
Posts: 277 | From NY | Registered: Jun 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- IgM for Borella, right (not for the other "Lyme related tbd's"?
Get your very own paper copy of the full test so you know which bands.
But any positive band on either the IgM or the IgG borellia test could absolutely indicate lyme, even if the CDC says the overall test is "negative" - that means very little.
They may be able to sent you that in an email.
It helps to know which bands, though, as some are more indictative than others.
the lab where it was done matters, too. Most labs don't even do all the bands.
That he is so easily dismissing it indicates that if you are not feeling well you should see an ILADS educated LLMD. Most tropical disease experts are aligned with the IDSA mindset and that is not at all properly lyme literate.
Though it's good that they consider other possibilities, in addition. Just don't count on him for lyme.
I'd also want to know what an ILADS educated LLMD would say about the labs used and the specific tests for "Lyme related tbd's"
There are various strains of each and testing not so cut & dried.
Good luck as you continue to figure all this out. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- In your recent post about electrical pain in back / legs, I wonder if cranial sacral therapy might help.
This method is careful - so with your disc issue it should work - take any images with you, first, of course.
There may be one in NYC and also on your insurance plan, I hope.
. . . The numbers on a Western blot such as 23, 31, 34 or 39 refer to how much that particular part of the bacteria weighs in kilodaltons.
The significant antibodies, in my opinion, are the 18, 23-25, 28, 30, 31, 34, 39, 59, 66 and 83-93. . . .
[paraphrasing: Explains that there are various strains of borellia, so testing often misses the mark when only one strain is tested at the lab.
poster's interjection: Even if you have not traveled to various states, birds that fly - and can carry ticks and drop them off - have and they often land in NYC, too.]
back to website: . . . The same is true for co-infections. The babesia in Missouri is called MO-1. It is a different babesia. There are different ehrlichia. It would appear there is a different bartonella. When you have different strains of germs, the test results may be falsely negative. . . .
[lots more detail here] -
Posts: 48021 | From Tree House | Registered: Jul 2007
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susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
Get a copy of your results. What bands?
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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TNT
Frequent Contributor (1K+ posts)
Member # 42349
posted
Band 39 is lyme-specific! If you are positive on that one, you have Borreliosis.
It is irrelevant that you had less than the 5 bands that the CDC claims you have to have to be positive.
Posts: 1308 | From Eastern USA | Registered: Oct 2013
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