LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Is there anyone else not sleeping every night?

 - UBBFriend: Email this page to someone!    
Author Topic: Is there anyone else not sleeping every night?
Mariel25
Member
Member # 45205

Icon 1 posted      Profile for Mariel25     Send New Private Message       Edit/Delete Post   Reply With Quote 
I can't sleep at all- some nights two hours. I walk around like the living dead every day. I am on IV Zithromax and it stimulates me more than caffeine. How long can you live without sleep? I am hypervigilant. This is a nightmare. Sometimes the medications that are supposed to help you sleep make you worse.
Posts: 61 | From Connecticut | Registered: Jan 2015  |  IP: Logged | Report this post to a Moderator
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270

Icon 1 posted      Profile for sutherngrl     Send New Private Message       Edit/Delete Post   Reply With Quote 
I lived years on 2 or 3 hours of sleep a night. It was horrible and debilitating. For me it was a Lyme symptom and not meds. My brain just would not shut off.

I wish I had some answers. For some people sleep meds help, or natural melatonin. Maybe essential oils, Epsom salt baths, etc.

Posts: 4035 | From Mississippi | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Mariel25
Member
Member # 45205

Icon 1 posted      Profile for Mariel25     Send New Private Message       Edit/Delete Post   Reply With Quote 
Are you sleeping now?
Posts: 61 | From Connecticut | Registered: Jan 2015  |  IP: Logged | Report this post to a Moderator
tulips
LymeNet Contributor
Member # 44773

Icon 1 posted      Profile for tulips     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi, When I was at my sickest, I didn't sleep at all. I just rested. I now take liquid melatonin half an hour before bedtime, sleep for 3-4 hours, then wake up. Then I take another dropper full of liquid melatonin (which is recommended for Lyme sleep issues on BuhnerHealingLyme.com) + one valerian capsule and go back to sleep for the rest of the night.
Posts: 653 | From Northern Virginia | Registered: Oct 2014  |  IP: Logged | Report this post to a Moderator
Blymey919
LymeNet Contributor
Member # 47424

Icon 1 posted      Profile for Blymey919     Send New Private Message       Edit/Delete Post   Reply With Quote 
I went through horrible bouts of this about a year ago. Some of it was Lyme for sure but it turned out for me that it was also low progesterone levels.

I learned from my LLMD that in may cases when adrenal levels are affected by chronic stress and/or illness that subsiquently other hormone levels can drop, like progesterone and DHEA.

For me I felt amped with high anxiety and my brain would not shut off. The first night I was on oral progesterone I feel asleep within an hour and sleep really well. My anxiety and racing mind also subsided. I've been sleeping well since.

Before I got on progesterone I did have success with a product by OHCO called Chi'll Out. It worked really well for the anxiety, restlessness and just allowed me to peacefully fall asleep.

It's such a kooky name I know, but it works really well. Even my non-Lyme friends use and love. So sorry if I sound like I'm plugging this product! Just when you find something that works for me I can be eager to share [Wink]

Chi'll Out is a combination of Chinese herbs. There haven't been any side effects, drug interactions or that drugged-and-tired-but-not-quite-sleepy feeling that I got from so many other sleeping pills/products I tried.

I will still take the pills on occasion when under more stress. For sleep I would take 4 capsules a few hours before I want to go to sleep. It usually made me feel really relaxed, but if I wasn't yet sleepy enough for bed I'd take 4 more.

Two herbs that Stephen Buhner and/or my LLMD also recommended that helped were -

* Ashwaganda (helps with hormone balancing & adrenal stress among other things)

* Passionflower tea (naturally high in calcium and calms the nerves to help you sleep)

Also I've been into using essential oils for many years and like this mixture of French Lavender, Atlas Cedarwood & Sandlewood (all nervines) which relax me immediately if I feel wound up.

Posts: 114 | From California | Registered: Jan 2016  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've been going through this lately too and it's very annoying being on a different schedule than the rest of the world! Like I don't have time for this problem!

I took benadryl 25mg for a long time to go to sleep, then upped to 50mg and now that's not working.

My doc just suggested taking magnesium powder before bedtime to relax. And some other stuff - I'll try to find my notes.

Posts: 12965 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745

Icon 1 posted      Profile for bcb1200     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yup. Never ever had sleep issues with Lyme and co for past 6 years and the last 2 months I've had insomnia. I fall asleep ok, but typically wake up around 2-3 and then toss/turn until it is time to get up.

I HATE IT!!!

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3101 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
randibear
Honored Contributor (10K+ posts)
Member # 11290

Icon 1 posted      Profile for randibear     Send New Private Message       Edit/Delete Post   Reply With Quote 
I catnap all night long.

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149

Icon 1 posted      Profile for Catgirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
Focusing on adrenals, thyroid and mediation have helped me. I muscle test to figure out what I need and when. I also take melatonin sometimes and almost every night a probiotic or s.boullardi or something for yeast before bed. Yeast can keep and wake you up.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

Posts: 5418 | From earth | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
Blymey919
LymeNet Contributor
Member # 47424

Icon 1 posted      Profile for Blymey919     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bcb - waking up consistently at 2-3 in morning is usually means detoxing issues.

When this happened to me 2 years ago with Bartonella issues (also had night sweats & heel pain) my LLMD explained that waking at this time often indicates issues with liver & blood detoxing.

My liver results were fine (was doing lots of liver support) so my LLMD added modified citrus pectin and and a homeopathic called apo-Heat to my protocol. Also take Red Root tincture for lymph support.

Posts: 114 | From California | Registered: Jan 2016  |  IP: Logged | Report this post to a Moderator
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745

Icon 1 posted      Profile for bcb1200     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks Blymey919.

The waking up at 2-3 isn't neesarily the issue. Its the fact that I then can't get back to bed. Is this what you mean?

How did the citrus pectin do for you. Did it resolve your sleep issues?

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3101 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
Blymey919
LymeNet Contributor
Member # 47424

Icon 1 posted      Profile for Blymey919     Send New Private Message       Edit/Delete Post   Reply With Quote 
[QUOTE]Originally posted by bcb1200:

The waking up at 2-3 isn't neesarily the issue. Its the fact that I then can't get back to bed. Is this what you mean?

Yup - but also the timing of 2-3am. Apparently this is when the liver tends to be most 'active' with detoxing. So the apo-Heat plus the modified citrus pectin (important that it was 'modified') supported this detox process by binding to the toxins and decreased reabsorption.

Apparently it's thought that bacterial die-off floating around in the blood not only causes the cytokine cascade but also can act as mold spores. Have to do a little digging on the science journal I got that from.

And yes it helped alot. I stopped waking up at that time and it was also soon after that I really started noticeably getting better with Lyme and free of Bartonella.

Everybody seems to have one detox method or another they prefer. I (with doctor) found I responded best using several detox methods - also use Chlorella, drink lemon water w/ trace minerals and use herbs and other methods to support lymph system.

http://www.tiredoflyme.com/detox-methods.html

Posts: 114 | From California | Registered: Jan 2016  |  IP: Logged | Report this post to a Moderator
Mariel25
Member
Member # 45205

Icon 1 posted      Profile for Mariel25     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you all but I'm not even tired until 6 or 7 in the morning. This is crazy- I can't get anything done. I can't even make appointments before 3 in the afternoon. I feel so stimulated that even medications don't work. I feel like any day I'm just going to drop and that will be it.
Posts: 61 | From Connecticut | Registered: Jan 2015  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
What have you tried thus far?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94530 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Mariel25
Member
Member # 45205

Icon 1 posted      Profile for Mariel25     Send New Private Message       Edit/Delete Post   Reply With Quote 
Valium, Elavil, melatonin, magnesium, 5htp, GABA and the list goes on. I'm afraid to even go to sleep because I know what's going to happen.
Posts: 61 | From Connecticut | Registered: Jan 2015  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Ambien?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94530 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Razzle
Frequent Contributor (1K+ posts)
Member # 30398

Icon 1 posted      Profile for Razzle     Send New Private Message       Edit/Delete Post   Reply With Quote 
Biggest things that interfere with sleep for me are overheating during sleep, unusual noises, and vertigo.

And yes, like you, I've tried a huge list of supplements, herbs, etc. and haven't found much that helps.

What has been most helpful for me is Chiropractic adjustment of my atlas (bone at the top of the neck). It somehow makes me able to stay asleep longer, and also seems to help calm the vertigo some.

Keeping the room I sleep in between 63-67 degrees F also helps prevent overheating.

If I'm too cold when I first get in bed, I have a heating pad that I will use to help warm me up so I can fall asleep. The heating pad automatically turns off when I let go of the switch (which happens when I fall asleep).

Another thing that has been helpful sometimes is a homeopathic remedy called Quietude. It can be taken before bed and again if I wake in the middle of the night, to help me get back to sleep.

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

Posts: 4162 | From WA | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
Blymey919
LymeNet Contributor
Member # 47424

Icon 1 posted      Profile for Blymey919     Send New Private Message       Edit/Delete Post   Reply With Quote 
Mariel -

If you've tried a lot of sleep aids without success it could very well be hormone imbalances especially with that wired feeling. Have you had your thyroid, adrenals, Progesterone, etc. levels checked?

Also Vitamin D deficiency can cause those symptoms. Particularly noticeable when meds don't work so well.

May also be a coinfection like Bartonella?

Posts: 114 | From California | Registered: Jan 2016  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Salicylates in foods (and supplements) can keep me awake forever.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94530 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Mariel25
Member
Member # 45205

Icon 1 posted      Profile for Mariel25     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm sure it is the co-infection. I need to have adrenals checked but how?
Posts: 61 | From Connecticut | Registered: Jan 2015  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to the Terms and Conditions.

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.