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» LymeNet Flash » Questions and Discussion » Medical Questions » How do you and your LLMD know if your infection with lyme or co-inf is ACTIVE?

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Author Topic: How do you and your LLMD know if your infection with lyme or co-inf is ACTIVE?
ohioperson22
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... Or if you actually have an auto-immune response? Such as if you antigens presented with lyme or coinfection elicited antibody production of antibodies that bound to some biomolecule in your body, and told your CD8 cells to annihilate those materials?


This is a sincere question... is there a way to tell the difference?

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Keebler
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-
As you have band #39 positive on your western blots, and that is specifically "seeing" borrelia burgd.

the key is how you feel, how you get along with tasks of life and can (or can't) manage in your life on all aspects, etc.

if you also have symptoms, that is likely active, although you should be assessed by a true lyme literate doctor with the knowledge - and understanding - of ILADS work in these matters.

Any immune system markers indicate your body is trying to address the situation yet needs helps.

You might looks to sites / writings of those below for fuller detail:

www.ilads.org

Pamela Weintraub
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TF
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I suggest you read this lyme doctor's explanation of the Western Blot:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/42077

And also read the Burrascano Guidelines. As he says on page 7:

"When reactive, serologies indicate exposure only and do not directly indicate whether the spirochete is now currently present."

http://www.lymenet.org/BurrGuide200810.pdf

At the top of p. 7 he tells you how to diagnose lyme disease. The final step is to give the person a trial course of lyme treatment (antibiotics) and see their reaction. This is how lyme must still be diagnosed even in 2016.

"Another very important factor is response to treatment- presence or absence of Jarisch Herxheimer-like reactions, the classic four-week cycle of waxing and waning of symptoms, and improvement with therapy."

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Brussels
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It's a good question. I don't know how 'normal' doctors do, but my practitioners were simply testing them energetically.

They could test in layers: what is the most active, and need urgent treatment. What are less active, and can wait a bit longer.

No one can treat all infections at once, specially with chronic lyme (when you have not only coinfections, but many other parallel infections activated).

I always wondered how people would get off a bad chronic lyme WITHOUT energetic tests. For me, the only proof these tests were working was that I felt slowly better.

I saw clearly changes of symptoms in a matter of days. I felt clearly changes (sometimes I fell more ill, because a new infections popped up), but after years treating lyme I realized that CHANGE in symptoms is way better than staying put.

Anyway, I wish you find some better answers, but my practitioners always had an idea what to treat. I was going to 2 different people, trained in the same school, and what they found out independently was pretty similar.

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WPinVA
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Well it can by tricky and that's why you want to see an experienced LLMD.

Lyme is a clinical diagnosis. So the tests are helpful and part of it but they don't tell the whole story. A LLMD will consider the tests together with ALL of your symptoms.

In short, positive bands plus symptoms = a diagnosis.

FYI - the CDC testing was developed for surveillance, not as a diagnostic tool.

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ohioperson22
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Ok, that makes sense.

Yeah, the CDC makes no sense. The fist time I saw it on the piece of paper that you needed 5 bands (even before reading about the topic) I thought it didn't makes much sense. When I saw my two bands I knew it wasn't normal.

It's ironic; my p39 and p41 are IgG, but if they were IgM (which they once were, necessarily), I would be positive! Like, actually. I guess according to CDC once a positive IgM converts to IgG, it doens't matter anymore.

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bluelyme
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Have you had a cd57?. The rhuemy gave me every autobody test he could to try to explain the apparent vasculitis. ..

My theory is that the microbes leave their osp (which is some of wb test for) on the endothelial lining of blood vessels on what ever organ or all and then immune system is like oh there they are (were) if its thyroid its hashimotos, if its nerves its ms,if its glial als ,if systemic its lupus

so i think buhner is right to say shut down cytokine storm then address infection,support collogen etc etc.
His argument about kinesiology is interesting too...are we testing or is the bugs?
Op thanks for asking this ,i need a triquarter. .

--------------------
Blue

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