posted
I'm so sorry I forget to space things out. I have such bad brain fog sometimes let me go back and fix it
Posts: 723 | From boston,ma | Registered: Jan 2011
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posted
Lyme too, I thought b6 can only become toxic to people that
Cannot process b6? Like a methylation problem?
And for this I thought people were taking b6 in the form of the
P5p kind? No is this wrong? Can it still become toxic
No matter which form?
Posts: 723 | From boston,ma | Registered: Jan 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- There are at least 11 kinds of porphyria. And each can be very different in manifestations and requirements for self care / Rx avoidance. In only one or two do the sun cause trouble to the skin.
It's important to know the KIND of porphyria you have, not just that porphyrins were elevated. Though, a person can have elevated porphrins at a point in time and not have a genetic porphyria.
Lyme / TBD, though, can cause light sensitivity and also the nervous system glitches of heat intolerance.
I'm really toast now and that particular detail in my notes is hard to find. I will be back by day's end with that for you, though.
Many Rx are contraindicated with porphyria, though, impt. to know. Be sure to see the Porphyria Foundation, organizations for up to date info.
[ 12-24-2019, 03:53 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- If the sun does not work for you, still try to get some DAYLIGHT into your eyes first thing in a.m. Not direct sun. And some daylight onto your skin, not direct sun and not bounced sun, either.
If the sun works for you, 20 minutes a day on skin is good, as early in a.m. as you can is good. No sunscreen for that amount of time. Longer, though, do be care not to get too much sun on skin.
With porphyria, though, sunscreen can be very toxic. I don't believe in sun screens if they are chemical based, though, as they can cause more damage than good.
I was diagnosed with porphyria a long time ago. I treated it with the kpu protocol along time ago in combination with antibiotics
. I didn't notice anything so i stopped it. I was unsure if it was a genetic porphyria or acute porphyria or if it mattered. Do you know if it does? I am trying to read all the literature you posted and it doesn't seem to say. I can't seem to find a link that says how you can tell anyways.
Even on the porphyria website I can't find anything. I dont have any skin symptoms and that seems to be what most of he porphyrias cause except maybe the one that is induced by Lyme? Do you know if dr k still believes that in order to get better from Lyme you need to treat the pyloria?
I'm trying to figure out where perhaps my treatment for Lyme could have gone wrong though I know dr k says this kpu affects a lot of people with Lyme yet I think that a lot of llmds don't know about it. I am reading that dr k believes that once you start detoxing with kpu you will need to detox heavy metals.
That is something I didn't do. I just did the protocol for kpu. Also I think I read somewhere that porphyria causes a sensitivity to certain antibiotics. My doctors never considered this as well and put me on any antibiotic they thought would help.perhaps if I combine the kpu protocol this time with a heavy metal detox and rife machine I might have a better chance this time around.
What do you think Keebler? Has treating your porphyria with the kpu protocol helped you?
Posts: 723 | From boston,ma | Registered: Jan 2011
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posted
I know the only physician in the world that has been diagnosed with Porphyria. We are always discussing how similar our symptoms are. If you PM me I can provide her contact information..
Posts: 97 | From Rockwall,TX | Registered: Apr 2014
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
Katrina, you may be thinking of B12.
My understanding is that B6 can be toxic to anyone in too high of a dose.
Posts: 1737 | From Virginia | Registered: Aug 2011
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