LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Pots ?

 - UBBFriend: Email this page to someone!    
Author Topic: Pots ?
JimSock
Member
Member # 47744

Icon 1 posted      Profile for JimSock     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've been doing some research as to why my feet and legs turn very purplish/ blue whenever I sit down. They are normal skin color when I lay down.

The other odd thing that occurs is that my calf muscles will get super hot to the touch.

Anyone else experience this weird symptom of legs & feet turning blue almost immediately upon sitting down? I thought that this might be pots, but sounds like pots occurs when you stand up.

Could this be neuro?

Posts: 16 | From Toronto | Registered: Mar 2016  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Sound more like a circulation problem. You are correct, POTS is more of a blood pressure regulation problem when standing up or standing for a prolonged period of time.

Does your physician know this happens? If not, I would definitely be discussing it. Sooner than later.

Posts: 1564 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
JimSock
Member
Member # 47744

Icon 1 posted      Profile for JimSock     Send New Private Message       Edit/Delete Post   Reply With Quote 
Can lyme cause this? I mentioned this to my neurologist, but he didn't have anything to say about it.

I read that lyme can thicken the blood, perhaps that has something to do with it?

[ 05-24-2016, 01:59 PM: Message edited by: JimSock ]

Posts: 16 | From Toronto | Registered: Mar 2016  |  IP: Logged | Report this post to a Moderator
bluelyme
Frequent Contributor (1K+ posts)
Member # 47170

Icon 1 posted      Profile for bluelyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Lyme is a multiple infection syndrome that can do many horrific things to any and all systems of the body...for circulation of lower extremities you may want to try horse chestnut ,

it may be a coagulation thing but it may be blood pressure thing .it affect the hpa axis and angio-renin system so we are constantly dehydrated. ..

are you in treatment jim? You have options to get infections down but it sounds like bartonella and borreliosis need to be addressed

--------------------
Blue

Posts: 1538 | From southwest | Registered: Dec 2015  |  IP: Logged | Report this post to a Moderator
bluelyme
Frequent Contributor (1K+ posts)
Member # 47170

Icon 1 posted      Profile for bluelyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Regular docs maybe clueless there are only a few lyme literate docs in canada ...girlie on healing well can point you in a direction . If you can afford or travel for treatment you still have options.watch" under our skin " and justinandcristie on you tube ..she was canadian too

--------------------
Blue

Posts: 1538 | From southwest | Registered: Dec 2015  |  IP: Logged | Report this post to a Moderator
JimSock
Member
Member # 47744

Icon 1 posted      Profile for JimSock     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bluelyme,

Yes I'm seeing an LLMD (for lyme, babs, bart) and doing an ABX treatment along with some herbs. Take a look at the link below for posting from other site regarding thick blood..

Could possibly also be a cause of our muscle atrophy? Sounds like our muscles can be starved of nutrients due to thickened blood that is caused by lyme. Not good... I am going to do blood work to test for coagulation.

My naturopath said this could also be caused by inflammation within the veins.

http://www.healingwell.com/community/default.aspx?f=30&m=1953186

[ 05-25-2016, 12:28 PM: Message edited by: JimSock ]

Posts: 16 | From Toronto | Registered: Mar 2016  |  IP: Logged | Report this post to a Moderator
coffee71
LymeNet Contributor
Member # 17467

Icon 1 posted      Profile for coffee71     Send New Private Message       Edit/Delete Post   Reply With Quote 
Look for cardiologist to test you for POTS.

POTS can be caused by infectious disease.

Check out this web site http://www.dinet.org/ I hope you can find more info that can guide you in finding a doctor.

I was treated for Lyme for 4 years before I was diagnosed with POTS, but only after starting POTS treatment I was able to see significant improvements.

Posts: 191 | From va | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
droid1226
Frequent Contributor (1K+ posts)
Member # 34930

Icon 1 posted      Profile for droid1226     Send New Private Message       Edit/Delete Post   Reply With Quote 
Could be coagulation, nerve damage, atrophy from new found sedentary life,low oxygen or high toxicity in blood...Anyway, it results in inefficient circulation.


No matter what the cause, half the sick people I've met have this & there seems to be one universal quick fix.... compression socks. I then found Under Armour type clothing(strategically cut) worked best for me. Until you get to the root of the problem...

Beta blockers worked well for normalizing POTS symptoms for me.

--------------------
http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

Posts: 1181 | From ohio | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.