posted
Has anyone currently on this messageboard ever heard of someone being diagnosed with ALS by neurologists, to then seek out an LLMD, have the Igenex test done, and then be labeled with Lyme?
I was diagnosed with ALS in Aug 2013 & Lyme in March 2014 by an LLMD. Igenex test positive IGG bands 23 IND, 31 IND, 39 IND, 41+++, 58++ IGM Bands 18+, 23 IND, 31 IND, 39 IND, 41+, 56+, 83 IND
My Issues: Muscle tremors, fatigue, loss of some/most of my strength in my left shoulders/triceps, & hand. It is starting to progress to my left shoulder/triceps.
I'm still working & trying to figure this thing out and looking for answers,
I have had a picc line, done herbals, lots of antibiotics, HBOT, Colloidal Silver, Chelation, Vit C IV's, etc.
My LLMD left the practice and I'm back at square one.
Thoughts...
Antibiotics or no?
Herbals Only or no?
HBOT Hard or soft?
ALS or Lyme?
Curious and looking for input.
Thanks.
Oklast
Posts: 8 | From SWFLA | Registered: Aug 2016
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"Creek Trail Medical Clinic, Inc, opened its doors on January 7, 2008 to continue the work started at Rocky Mountain Chronic Disease Specialists by Dr. David Martz.
Dr. Martz in a “pay it forward” manner opened RMCDS to treat patients who had Lyme disease and especially those patients who had neurological disease created by Lyme.
Dr. Martz himself had been diagnosed with Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig disease which is uniformly fatal.
When it was discovered that he actually had Lyme disease and was treated with antibiotics, all his neurological symptoms left. This is practically unheard of."
(breaking up the post for easier reading for many here)
[ 08-14-2016, 08:26 PM: Message edited by: Robin123 ]
Posts: 109 | From The Netherlands | Registered: May 2014
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Fascinating that Dr K suspects it's a bartonella mycoplasma (blue's post). He is incredibly bright and IMO way ahead of all the other lyme docs. Either way, I'd lay odds it's lyme related.
I had very similar bands as yours. 23, 39 and 41 are connected to FL1953.
Have you tried mild hbot? It is much different than regular hbot. Phoiph has a big thread on it. Also there is a rife machine called spooky2. It zeros in on stuff.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
Yes, Dr. Martz, I first read about him in PW's Cure Unknown. He was given the ALS diagnosis by a couple of top nuero's in the 2003 time frame.
If you have the book you can go to the back and see the references re. Dr. Martz.
I met him in October of 2014 in Washington at the ILAD's conference. I think he still has to take meds or relapses.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
That he is still kicking is amazing ...first Llmd said i would likely be on abx for life ..i wasnt/am not ready to accept that ?! But I wanna know which abx that knocked out his joint pain?...
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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posted
Maybe you could contact him in CO -
Posts: 13116 | From San Francisco | Registered: May 2006
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bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
The creek trail people were very nice ...she starts on roceph ,zith, rifampin and tinadazole until plateau and suggests ivig for what dr frid calls autoimmune encephalitis
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
I just watched this incredible series on Youtube that explains the potential overlap of neurodegenerative diseases, such as ALS, MS, Parkinsons, etc. and lyme.
posted
Thank you!!! There is hope for my fellow Texans!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
The you tube video of dr Miller posted by dbpei speaks exactly about ALS and lyme.
Just watch the first 2 minutes:
Brain scan like MS, but physical examination like ALS or LouGehring's disease, he said = lyme neuroborreliosis!
Posts: 6199 | From Brussels | Registered: Oct 2007
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