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» LymeNet Flash » Questions and Discussion » Medical Questions » Low Dose Naltrexone (LDN)

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Author Topic: Low Dose Naltrexone (LDN)
Haley
Frequent Contributor (1K+ posts)
Member # 22008

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What are your experiences with LDN? I did look through some old posts and got some good information.

I was on a Facebook group and asked what most people thought of LDN. The comments were primarily "it gave me energy, no bad side effects".

I took two pills and whoa, it's as if I was transported back to my first symptoms. I don't think it was a herx, but who knows.

What are your experiences please?

Posts: 2232 | From USA | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
Judie
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It was awful for me. It gave me a bad psychedelic experience. I felt high as a kite and couldn't come down.

It was very unsettling.

The only way I could see it helping with pain is that I was so out of it, it was the last thing on my mind.

It was really bad.

I had spoken to someone over the phone before I took it who was on it. She seemed spun. Definitely she had energy, but she didn't have the ability to listen either.

Posts: 2839 | From California | Registered: Jul 2012  |  IP: Logged | Report this post to a Moderator
foxy loxy
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LDN saved my sisters life. Gave her energy and helped/ stopped most neurological symptoms.

I take it too. I don't notice much difference but it does seem to help with energy.

It is CERTAINLY worth trying.

Posts: 477 | From Pennsylvania | Registered: Nov 2015  |  IP: Logged | Report this post to a Moderator
norcal
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I had good experiences with LDN,made my neurological stuff way less.
Reduced pain quite a bit and I stopped tripping over my feet.

Was off it for a while noticed symptoms retuning,back on and shazam reduced gain. So twice it worked.
I stopped it awhile ago as my health continues to improve.

Posts: 342 | From northern california | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
bcb1200
Frequent Contributor (1K+ posts)
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I was on LDN for 3 years. Took 4.3 mg / night.

I made it to 90-95% recovery on it. Was out living life, working, having fun with only very mild symptoms remaining (mild twitching, night sweats, tinnitus.)

In early 2014 I stopped LDN as my LLMD and I wanted to see what would happen.

I was fine for a few months but by 2015 things started creeping back and I had a big relapse in end of 2015 that I'm still crawling out of.

I can't say for sure if the stopping the LDN lead to my relapse. All I can say is I made excellent progress while I was on LDN and I had no side effects.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3114 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
LilaLee*
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I think LDN is the single best medication i have taken for immune modulation and general sense of well being.

It's the one medication i have remained on. When i began it during big antibiotic treatment i was taking 4.5mg. I now take 3.0. When i occasionally i miss it my joints are bad, low energy and low mood.

I hope to take it for general wellness forever.

--------------------
LL

Posts: 79 | From Rocky Mountains | Registered: Apr 2014  |  IP: Logged | Report this post to a Moderator
Tricky Tickey
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Interesting information. I was given this drug Naltrexone to help with cravings for alcohol.
50 mg tablets.
I tried taking one, had to leave work from feeling so "high". Made me feel like I had to stretch my muscles constantly. Sort of a flashback to the 70's for me.

I then took half dose after a few weeks. Did the same thing. Of course, it stopped the cravings...for everything! Including food! But dang-it, I just couldn't take it. I wish I could.

What side effects did it cause others?

--------------------
Early Disseminated LD- 2010.
Currently doing acupuncture and yoga.
Negative Igenex (IND & Pos Bands)
ISSUES AFTER: Tendonitis, letter reversal, Low immune system.
PREVENTION:SaltC,Iodine,Humaworm,
Chiropractic.

Posts: 1013 | From In a van down by the river. | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
terv
LymeNet Contributor
Member # 29410

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I will start this drug next week for constipation. GI doctor is giving it to me.

I wonder if it will help any of my lyme symptoms.

Posts: 771 | From Somewhere | Registered: Nov 2010  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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Appreciate those who responded. I'd like to hear more experiences when using it too.

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20352 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
   

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