LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Give me a break, PLEASE !

 - UBBFriend: Email this page to someone!    
Author Topic: Give me a break, PLEASE !
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

Icon 1 posted      Profile for Bartenderbonnie     Send New Private Message       Edit/Delete Post   Reply With Quote 
O.k., I need a break. . .

From everything Lyme and company, viruses, infections, any and all medical procedures and personnel and jargon.

I need to re-group. My body needs a break. I don't know if I m coming or going. I don't know if I m getting better or worse???

I am into 4 months of very aggressive treatment.

Every month got rid of many Neuro symptoms. Started to see improvement.

Never have been able to combat the pain or fatigue though.

Now with IC bladder pain, I have deteriorated. Still fight and continue treatment and protocols.

But honestly, if it wasn't IC bladder, it would be something else breaking down.

My questions:

Has anymore else stopped all treatment ?
For how long ?
Did it cause more damage and other setbacks ?
Were you able to get a better understanding of progress made?
DID YOU FEEL ANY BETTER ?????

Common sense tells me to take a break, regroup, and get back on the horse when I can think clearly.

I have the upmost respect for my LLMD and follow all her instructions.

I don't know what to do. [confused]

Posts: 2057 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149

Icon 1 posted      Profile for Catgirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
I stopped treatment once and the good news was many co infections came out of the woodwork (felt terrible). Co infections I didn't even know I had. My doc tested my blood for many infections after a couple of months of feeling terrible and they turned out positive. So you may slide, but just re test your blood to find out what else you have. IMO it's a great opportunity. Stopping helped IC symptoms for me, so I feel it was all positive.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

Posts: 5418 | From earth | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

Icon 1 posted      Profile for Bartenderbonnie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks catgirl.

It's hard to walk by my meds and just ignore them, not take them.

I really don't think I could stand feeling more sicker.

I wish for 1 day a week, that the top Lyme doctors would donate their time and come to lymenet and help answer some of our questions.

We suffer so much. . .

Posts: 2057 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
ilovedogs
Member
Member # 48866

Icon 1 posted      Profile for ilovedogs     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi
I stopped when I was treating hard and it was the best thing I did.

At that point, I felt as though my body just needed a break. I could no longer tell what was lyme and co, herx, or my body just in overload.

I stopped for a few weeks. It literally took over a week for me to find my new base line. And mentally it was the best thing I could have done.

Like catgirl, I had a confection surface as well. And it was a good thing. I then went on to treat bartonella and found my path back to health.

Do what is best for you. You will find your way out of this nightmare. I never thought I would get better and I did. You can too

Posts: 88 | From new england | Registered: Oct 2016  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

Icon 1 posted      Profile for Bartenderbonnie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Just what I needed to hear ! [Cool]
Posts: 2057 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196

Icon 1 posted      Profile for Silverwolf     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi <<<<< BartenderB'>>>>>,

Do you take a couple days to a week off, now and again? It can help to rest your system for a few days.

I'm fixin' to have to take a couple days off again, and try to reassess a bit.

I keep on methyl B-12 so I don't get so much myclonus activity. [Please pardon the medical word].

Keeping you in my tho'ts, and prayers!

Jus' Silverwolfi here

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3467 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

Icon 1 posted      Profile for Bartenderbonnie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks silver wolf, much good thoughts to you also.

I ve only had a 3 day break during a failed bladder distention.

So tired of opening my eyes every morning to this hell.

My bladder pain is like your rash. . . Never goes away.

Here s to better days ahead. We NEED a break !

Posts: 2057 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
bluelyme
Frequent Contributor (1K+ posts)
Member # 47170

Icon 1 posted      Profile for bluelyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bb i have been making gains pulsing everything in the book ...listen to your body ..
on the ic my nurse treated bart vinconii with o3 insufflations via catheder and bvt and hers went away

--------------------
Blue

Posts: 1538 | From southwest | Registered: Dec 2015  |  IP: Logged | Report this post to a Moderator
Bam
Member
Member # 47540

Icon 1 posted      Profile for Bam     Send New Private Message       Edit/Delete Post   Reply With Quote 
My daughter took an 8 week break and visited family, just to get away for a bit. She did fine and resumed treatment again after. Now, after 2 months of IV antibiotics, our LLMD wants her to take a few weeks off and rest, reestablish a baseline, give her immune system a break. This even though she's handling the meds allright. So, yes, i agree wit the others, take a break, or back off a bit.

I hope you resolve your bladder problems. My mom had chronic bladder infections her entire life. She's finally stable with herbs now.

Posts: 28 | From NY | Registered: Feb 2016  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

Icon 1 posted      Profile for Bartenderbonnie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Well, forget about getting off the doctor merry-go-around.

Had uro doc appoint. this morning.

Sorry blue, but o3 insufflations wouldn't touch me. Today I had 10cc of 60mg rimshot via catheder. It stung like a bee and made me dizzy.

I m a bartender by trade. I make pretty drinks.

I have never had any interest in the medical industry. And I don't want to become one of those people who constantly complain about all their ailments. Yet, here I am.

I bought Dr. H 's new book. Can't read or understand it with Neuro problems. So it collects dust.

The problem with Lyme diagnosis, is that it's never JUST Lyme.

So as much as I want a break, my body won't cooperate. It's always seeking attention for something or another.

Posts: 2057 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 1 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
Poor Bb. ^&&^%$

So sorry to hear you are still having so much pain!!! I know nothing about the bladder and what you are going thru, and have no helpful hints for you. So sorry about that!

And also sorry that of all the body parts, "THAT" part of your body wants attention now.

This is the point where I must duct tape my mouth shut....

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20300 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 1 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
OK. How about this....

Pain signals travel to the brain. The pain in brain is mostly in the plane.

FWIW- A neurologist- specially trained as a chiropractor too- may be able to help. They are called Chiropractic Neurologists.

Amazing what they can do, blah blah blah.

Here is the Doctor Locator. Just type your state's initials in the right box and it should pull up some choices.

If you call any, you have to ask if they practice the neurology part of their training. (Some don't, but the ones that do are usually great.)

They won't drug you or hurt you, but maybe they could make an easy adjustment that would relieve the pain?

My hips and pelvic region bones are eaten up from spirochetes and/or Bartonella. (Shows on X-rays.)

They are able to reduce my pain levels in "THAT" area. I know it isn't what you are describing, but maybe they could help?

Plus, they usually take insurance. Might be worth a try.

Oh, here is the link.

https://www.acnb.org/DoctorLocator.aspx

Now... I really do have to get to those dishes. Been putting it off too long now.

Feel better soon little baboon.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20300 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to the Terms and Conditions.

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.