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» LymeNet Flash » Questions and Discussion » Medical Questions » Histamines & Mast Cell & update

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Author Topic: Histamines & Mast Cell & update
Mvdr
LymeNet Contributor
Member # 43034

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Hello, everyone! I haven't been here in a long time. I have overcome Bart, Babs and Brucellosis but still fighting lyme. I am much better and functioning fairly normal about 5 days per week. I have done everything but attribute most of my healing to Colloidal silver, treating parasites, yeast, diet and exercise.

I think I have a Mast cell disorder or at least a histamine intolerance. I live on Benedryl and herbal supplements for allergies. I am just learning about HI and MC. I can't find too much on it. Where do I begin?

Where can I find diet info or sample diets? Thank you all! Be well!

Posts: 143 | From Pittsburgh | Registered: Jan 2014  |  IP: Logged | Report this post to a Moderator
hopingandpraying
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Here is a very informative thread poster Lymetoo started over in "General Support":

"Mast Cell Activation Disorder"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=036299;p=0

Posts: 8840 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
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I'm very sorry to hear this, mvdr.. but at least now you know what to avoid and how to treat it.
There is another VERY LONG thread I posted last year. You can search for it under my member #743.

Let me know if you need any more help.

The best link I've found is this one:

Mast Cell Disease 101

http://www.sneeze.com/allergy-resources/mast-cell-disease-101/

Great article for family and friends .. even for doctors.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95340 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
aklnwlf
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MVDR-Welcome to the club! I was recently diagnosed with MCAD thanks to the wonderful info posted here on Lymenet.

Good luck in your journey to health and wellness!

[Big Grin]

--------------------
Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

Posts: 5294 | From Columbus, GA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
Mvdr
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thank you all! I am learning a lot about this and already feeling better after identifying trigger foods.
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Lymetoo
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Good to hear!! I hope you have a good doctor too!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95340 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Mvdr
LymeNet Contributor
Member # 43034

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Hello, Lymetoo! I do not have a good doctor, sadly! I have a good herbalist and essentially treating myself at this point. I live in Pittsburgh and there is no one here!

I cannot tolerate traditional medicine and the doctors I've been to for Lyme just want to give me antibiotics which I feel have caused more harm than good.

I am pretty much on my own, like so many of us! Trying to find a traditional doctor to do MCAD testing but that is challenging, too.

Be Well, M

(breaking up the post for easier reading for many here)

[ 04-20-2017, 01:22 AM: Message edited by: Robin123 ]

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Christopher J
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Member # 46401

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quote:
Originally posted by Mvdr:
Hello, Lymetoo! I do not have a good doctor, sadly! I have a good herbalist and essentially treating myself at this point. I live in Pittsburgh and there is no one here!

I cannot tolerate traditional medicine and the doctors I've been to for Lyme just want to give me antibiotics which I feel have caused more harm than good.

I am pretty much on my own, like so many of us! Trying to find a traditional doctor to do MCAD testing but that is challenging, too.

Be Well, M

Without antibiotics I dont think you have a chance against Lyme. I am in cycles of many antibiotics all the time and that is the only thing that has reduced symptoms and knocked down Lyme to a manageable state.

When you first start taking them, it always seems very dark and you have a worsening of symptoms. But you should absolutely NOT use that as a justification to stop. Infact it means its working.

Over the years, the ABs will have less and less of a dramatic impact and you can pop them without thinking about it. This means the Lyme is under control.

There are so many times early on that I wanted to stop, but thats the Lyme telling your brain to ease up on the killing

(breaking up the post for easier reading for many here)

[ 04-20-2017, 01:24 AM: Message edited by: Robin123 ]

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GretaM
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Some good info on here. Also some links not working yet, but this is run by volunteers

http://www.mastocytosis.ca/

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Robin123
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Want to chime in here - there is no one-size-fits-all when it comes to treatment - we're all unique in our responses.

For some, longterm antibiotics is the answer. For others, not, like me, I'm allergic to antibiotics, and I go a natural treatment route.

Many are treating with herbs, like the Buhner herbs, Cowden protocol, Zhang herbs, etc. It's a matter of finding out what we respond to best.

I have elevated mast cells too and I have not figured it out for myself yet. I know there's many triggers for it. Hope to have more understanding some day about it.

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Lymetoo
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Christopher... for some of us the initial and MAIN problem is the mast cells, not the Lyme.

Another link:

www.tmsforacure.org

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95340 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

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