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» LymeNet Flash » Questions and Discussion » Medical Questions » New Here, Not Diagnosed Yet - NJ

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Author Topic: New Here, Not Diagnosed Yet - NJ
Coda121212
Junior Member
Member # 50234

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Hi,
I live in Northern NJ. I haven't been diagnosed. I want to get tested. Who or where would be the best place to go?

A few have said there are no good Lyme docs in NJ. I am willling to go out of state. Should I be tested by a doc here first, or go right to a good LLMD doc?

I feel I have most of the symptoms of Lyme. I haven't felt good in years, and I've spent the last 20 years camping. I don't remember getting bit or having a rash.

Thanks in advance for any help/advice.
J [Smile]

(breaking up the post for easier reading for many here)

[ 04-28-2017, 04:34 AM: Message edited by: Robin123 ]

Posts: 1 | From New Jersey | Registered: Apr 2017  |  IP: Logged | Report this post to a Moderator
Robin123
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Up for some responses from folks in/near NJ!

Good to be in Medical Questions for the testing question.

You're also welcome to post again in Seeking for doctor referrals near you.

Posts: 13068 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet! PM sent for PA, MD, & CT.

Here are some quotes from old posts about NJ:

"There are NO good LLMD's in NJ. NJ is a wasteland of bad docs. I can tell you from years of experience, unless you go with an established doc (of which there are only a few on the east coast) you will get undertreated and continue to relapse.

PLEASE TAKE MY ADVICE. NJ is a bad place for ticks and a bad place for tick doctors."

"The LLMDs in NJ are not very good based on patients' experiences. People start with them then end up going to see other LLMDs out-of-state."

"Over the years, the folks in New Jersey have said that the best Lyme doctors are not there."

"I strongly suggest that you be willing to travel outside of New Jersey to get good treatment."

"There are Lyme doctors in the area you have named, but I don't recommend any of them. To get a good Lyme specialist, you will have to be willing to travel. At least half of all Lyme patients go out of state for their care."

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewJerseyLyme/info

Maybe they can help.

Some more resources (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/NewJersey/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.

Hope this helps. God bless.

Posts: 8885 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Neko
LymeNet Contributor
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I drive 5 hours to see a Lyme Doc in Jersey. I know of two who treat late stage Lyme, but I don't believe either of them accept insurance, if that's what you are looking for.
Posts: 133 | From North Shore | Registered: Sep 2015  |  IP: Logged | Report this post to a Moderator
bluelyme
Frequent Contributor (1K+ posts)
Member # 47170

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Consider the dna connexions test no doc needed ...
welcome sorry

--------------------
Blue

Posts: 1538 | From southwest | Registered: Dec 2015  |  IP: Logged | Report this post to a Moderator
   

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