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» LymeNet Flash » Questions and Discussion » Medical Questions » Anyone else with RA? Does it ever get better?

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Author Topic: Anyone else with RA? Does it ever get better?
2young2dieMom
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I've just been diagnosed with RA. I haven't been able to get off the couch for a month. My LLMD is doing blood tests but no answers yet.

Anyone else have RA? What was your experience?

--------------------
Dxd ALS 3/2010
Dxd cllinical Lyme 4/2010
Positive for Protomyxzoa but absolutely nothing else in Igenex

Posts: 417 | From central ct | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
TF
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I have a friend who was diagnosed with RA, first by her PCP and then by a rheumatologist. Her hands swelled up like balloons. She said the pain was off the charts!

I advised her to get a doctor who believed that RA was an infection and could be cured CURED! with low dose antibiotics. Told her to go to The Road Back Foundation website for such a doc.

You see, just like with lyme, there are 2 theories of how to treat RA. The majority say it is uncurable and will give you poisons to just help with symptoms.

The minority view is that RA is caused by an infection and it can be cured with VERY low dose antibiotics (like one pill every other day) taken over a very long time. The low dose keeps the body from reacting with more inflammation.

So, she got a list of doctors from the road back and we selected one who had a good reputation for being integrative.

At the first appointment, he put her on these gigantic supplements that were a combination of about 15 anti-inflammatory herbs. They worked wonderfully for her!

He also ordered various tests to figure out what could be causing this inflammation. (Her hands would swell up about every 3 days. Unbearable.)

At the second appointment one month later, she had gotten a lot of improvement and was no longer in crisis at all. No more RA flares. Her blood test results showed that she was allergic to a number of common foods--corn, wheat, eggs, etc.

The doc told her to avoid the 4 that she was most allergic to. By doing that, her RA went away. Eventually, she was able to avoid just the 3 most allergic foods. That's it.

The doc said he would have treated her with antibiotics also, but in her case it was not necessary.

I think you will get a lot of peace by reading The Road Back Foundation's page. It is here:

http://www.roadback.org/

I knew about this alternate treatment for RA based on a doctor's radio program that I used to listen to. This doc had cured many people of RA, including a woman who was totally bedridden for at least a year.

It took a few years before her inflammation factor went down into the normal range. Once it did, she no longer needed the antibiotics.

The doc eventually married this patient. He was an exercise freak and she went with him on 30 mile bike rides, etc. She was truly cured and went on to live a very active life.

So, do not despair. It is not a death sentence at all. But, no mainstream doctor will agree with any of this.

By the way, my friend eventually stopped at the rheumatologist's office to pick up her medical record. (She had only had the one appointment with this doctor. She told him she did not want to pursue his planned treatment but would try something else first instead.)

The doctor asked her to come into his office. He wanted to know how she was doing. This was about 18 months after her RA diagnosis.

She told the doc what she did and how her RA disappeared, and she said that he seemed truly interested and hopefully would look into this other way of treating, and curing, RA since he could not offer her any cure whatsoever.

I also have a friend that has an advanced nursing degree and a high level nursing position. She went the standard RA treatment route. She told me once that she got the best results from an old antibiotics that her doc put her on.

Still, her doc has told her to do everything she wants to do in her life because she can't look forward to a future in which she can do these things.

She soaks in tubs, tries to be active, positive attitude, etc. There is no sense trying to tell her that her "very best doctors that medicine can provide" are wrong. She has an "in" with top doctors because of her position in medicine, so she believes she is getting the very best treatment there is for RA.

Write to me privately if you want to know more or if I can help you further in any way.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
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That's amazing, TF!

--------------------
--Lymetutu--
Opinions, not medical advice!

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jsnyde2
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My 2nd (and latest) Lyme infection, which caused migrating joint pain and swelling, was attributed to RA by (hold the) Mayo doctors. My imflammation factor was very high, and they diagnosed me with Lupus and RA.

I wasn't buying the diagnosis so went to my previous Lyme doc. She treated, and it's WAY gone.

Posts: 351 | From La Crosse, WI | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Mayo ... They just can't do much right these days.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95978 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Badtick
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Like many here, I had a diagnosis of RA at one point. I did not find this diagnosis particularly helpful. Kind of like telling a person with a brain tumor that they have headaches. They do, but...

If you can figure out and correct what is overloading your immune system, the RA will resolve. Mine did.

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Brussels
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I just want to add here, that I had been having some osteoarthritic symptoms on my right thumb for years, after lyme went to remission.

It was not bad, but I can see the deformed joint easily.

Then came a more overall chronic arthritis (other fingers, right shoulder, most toes...). This is about at least 3 years old.

I think it's a candida arthritis or something alike.

Yesterday I realized that I started describing the arthritic problem in the past tense!

I think it's finally gone (or almost gone!), after at least 5 years active (when pain started on my right thumb). [Smile]

I do believe most joint problems are either allergic, or infectious.

And toxins are always involved: joints attract toxins like nerves attract toxins.

I know that, because all chelation protocols I do, my joints scream of pain!


I think that what has worked is cannabis and GcMaf.

I only take these in imprinted forms, not the real chemicals. But I kept herxing in these arthritic joints for weeks on these stuff!

And not only on the problematic joints, in many other joints I had no symptoms too (like elbows, wrists, hips, knees...)

It reminded me of lyme treatment, long ago. Wwhen I took cats claw, all my joints were screaming, the ones with symptoms, the ones without too!

Now I think I'm no longer herxing, but I just noticed I have no more pain!!!

Posts: 6196 | From Brussels | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
Robin123
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I just finished watching the medical cannabis summit called The Sacred Plant. I think they are going to unlock all 7 episodes for viewing soon.

Many of the programs mentioned medical cannabis being used to successfully treat RA pain. See my notes in General Support in Tincup's thread on the series.

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Christopher J
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Probably the easiest segment of Lyme for me to deal with when they finally acknowledged my Lyme was the arthritis part.

It goes away SO MUCH with proper strong antibiotic combos. In fact just how it responded to antibiotics was like the main proof to me I had lyme because it was so dramatic.

My joints were so screwed up that every time I moved I clicked. I couldnt get out of my office chair every day (and I was young dude) without massive pain and effort. My lower back killed me.

All gone now. The CNS and neuro symptoms on the other hand, those are a lot harder

(breaking this up for easier reading for many here)

[ 06-15-2017, 02:08 AM: Message edited by: Robin123 ]

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foxy loxy
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My Bro-in-law was diagnosed with RA a very young age. Finally in his middle age, he began to get very tired.

He tested for lyme and bingo!!! He takes ivermectin and it works like a CHARM for him. He has to stay on it though...

Also LDN might be an option for you.

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Brussels
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Christopher, there is lyme-arthritis and other types of arthritis. They are NOT the same.

I had BOTH lyme arthritis, which reacted very fast with MANY anti-Borrelial treatments such as cats claw, andrographis, astragalus, Japanese knotweed, doxy, etc...

... AND about 5 years AFTER lyme was gone, I started having joint symptoms, mild, sometimes no pain at all, just stiffness or calcification that we can VISUALLY see (on my right thumb).

These are age-related joint problems (I'm 50). In my case it is still INFECTIOUS, I think, because I test it energetically (and I get 'candida' as the culprit).

There are candida-arthritis too, that will NOT react with lyme-treatment.

So lyme-arthritis will be better with lyme treatment, I agree.

But candida-arthritis, staph arhtritis, osteo-arthtris, psoriatic arthritis, etc etc will not react much with lyme treatment (even though, there can be some double layering, I believe)

All joint-related problems, in my opinion, have to do with toxin accumulation in the joints, which make them prone to get problems.

Even food intolerance or allergies can 'cause' some arthritic symptoms - like the very well known connection between arthritic inflammation and MILK products.

In no way such pains will get better with lyme treatment, if you see what I mean...

So, my non-lyme-arthritis (stiff joints, some pain but not horrible like Borrelia-pain, slow decay of joints...) got better with cannabis and GcMaf.

I literally herxed in my joints after taking both formulas. Cannabis is much milder, very soothing, it feels like joints are getting oiled, softer...

GcMaf was more violent, so I took it on and off.

I still continue on these supplements, specially the cannabis, which is very nice! The GcMaf, I'm taking less and less...

Posts: 6196 | From Brussels | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
Brussels
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Lyme-arthritis could be classified as one of the several 'septic arthritis':

http://www.webmd.com/arthritis/septic-arthritis-symptoms-diagnosis-and-treatment#1

In adults and children, common bacteria that cause acute septic arthritis include HAEMOPHILUS INFLUENZA, STAPHYLOCOCCUS and STREPTOCOCCUS.

These foreign invaders enter the bloodstream and infect the joint, causing inflammation and pain.

Other infections, such as those caused by VIRUSES and FUNGI, can also cause arthritis.

Viruses include:

Hepatitis A, B, and C
Parvovirus B19
Herpes viruses
HIV (AIDS virus)
HTLV-1
Adenovirus
Coxsackie viruses
Mumps

FUNGI that can cause arthritis include:

HISTOPLASMA, COCCIDIOMYCES and BLASTOMYCES.

These infections are usually SLOWER to develop than bacterial infections.

Posts: 6196 | From Brussels | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
bluelyme
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Bvt helped my myco bart lyme whatever arthritis considerably. After wasting began i was all clicky like christopher described ..

--------------------
Blue

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