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» LymeNet Flash » Questions and Discussion » Medical Questions » Fine in paper, yet having my worst days

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Author Topic: Fine in paper, yet having my worst days
stefi42
LymeNet Contributor
Member # 48591

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Hello everyone,

I've been in a bit of a thought spot lately. My treatment has plateaued and I'm not making any progress. I even started experiencing some symptoms I thought we got rid of, again.

My bloodwork looks fine. Even my Lyme titers show one band reactive. But I'm just not feeling any bit close to better. Not sure what to do or even where I stand.

Has anyone gone through this?

For the record I've done: rocephin, ozone, mino, biaxin, flagyl, tindamax, dozy, plaquenil, zithro, cefdinir, diflucan, and a bunch more that I can't remember at the moment

Posts: 111 | From Hollywood, Florida | Registered: Aug 2016  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

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Yes. I experienced this when I was treating lyme. It happened because I had a lousy doctor. He was not treating me properly.

I got to ask Dr. Burrascano a question at a lyme meeting. I asked "What do you think of a patient on high-dose antibiotics who develops a new symptom--trigeminal neuralgia?"

His reply was "If the therapy is inadequate, the disease will continue to progress."

He was so right. So, it seems to me that you need a better doctor. A better doctor will know what to do if the patient plateaus or stops making progress or an old symptom comes back.

In my case, I was on just one antibiotic. I switched doctors and was put on 2 antibiotics including a cyst buster. In 2 months time, I was done treating lyme. Then, the new doc went on to treat me for babs and bart.

That's how I got cured. I never gained anymore symptoms. Instead, I just got rid of symptoms. In 8 months I was totally symptom free with this doc's treatment.

The doc is the key to getting rid of this disease. Can't emphasize that enough. Many doctors treat lyme disease, but only a very few know enough to cure a person of it.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Christopher J
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Another approach you and your LLMD could take is keep cycling the antibiotics. I find that works pretty well in dealing with plateaus. Like you use one regimen of like 3 antibiotics, then you switch off to another 3, and back and so forth. Like Amoxi, Zithro, and flagyl in one round for example. Then maybe Ceftin, Doxy, Tinidazole. Etc.
Posts: 173 | From USA | Registered: Aug 2015  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
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-
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/91327?#000036

Topic: How did Burrascano cure himself?

See all THREE posts here by Pamela Weintraub (who is a LL journalist who recovered from lyme - and write about her entire family dealing with it in "Cure Unknown" book )
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
shoeless joe
LymeNet Contributor
Member # 45835

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you've done a lot of meds.

have you ever stopped everything and seen what happened?

All that is brutal on your gut,do you notice symptoms are food or gut related?

Posts: 227 | From fairhaven ma | Registered: May 2015  |  IP: Logged | Report this post to a Moderator
   

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