LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Post Lyme Disease Syndrome

 - UBBFriend: Email this page to someone!    
Author Topic: Post Lyme Disease Syndrome
J Mathis
Junior Member
Member # 51646

Icon 1 posted      Profile for J Mathis     Send New Private Message       Edit/Delete Post   Reply With Quote 
Caught my Lyme disease two weeks after being bit. Finished up a 3-week course of doxycycline a couple weeks ago. But more recently I’m starting to have what I have found as described as “post Lyme disease syndrome”. I’m having some joint aches, especially in my knees. And had neck and back stiffness yesterday. Still having some insomnia and fatigue. I was just wondering how common this is and if I should see a doctor to see if the bacteria is still present?
Posts: 1 | From Raleigh, NC | Registered: Sep 2018  |  IP: Logged | Report this post to a Moderator
tickbite666
LymeNet Contributor
Member # 43399

Icon 1 posted      Profile for tickbite666     Send New Private Message       Edit/Delete Post   Reply With Quote 
This is very common. 3 weeks of Doxy is no way long enough and most like they gave you 200 mg per day which is too low of a dose.

You need 400 mg of Doxy per day and treat for two months after symptoms have resolved. You should also have take a cyst buster such as Tindamax or Flagyl to treat the dormant form of the lyme bacterial.

Did you test CDC positive on a Western Blot test?
Get to a lyme Literate MD as soon as you can

Posts: 118 | From ground zero | Registered: Mar 2014  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 1 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
Welcome to LymeNet!

So sorry you are having more, or a continuation of the same symptoms.

While you are in the early stages it would be wise to get to a doctor who is NOT an infectious disease "specialist" so they can test you for possible coinfections, and/or provide additional treatment if they feel it is necessary.

I STRONGLY advise you do this ASAP.

If you have any other questions please feel free to ask!

Feel better soon!

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20325 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
map1131
Frequent Contributor (5K+ posts)
Member # 2022

Icon 1 posted      Profile for map1131     Send New Private Message       Edit/Delete Post   Reply With Quote 
No need to ask a doctor if you still have Lyme. You are still having symptoms, therefore you still have an active infection.

Post Lyme Disease Syndrome is a LIE, it is ignorance, it will destroy your life if you don't seek the truth now.

If you are going to see a doctor, make sure you are seeing a Lyme literate medical doctor aka LLMD.

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

Posts: 6402 | From Louisville, Ky | Registered: Jan 2002  |  IP: Logged | Report this post to a Moderator
t9im
Frequent Contributor (1K+ posts)
Member # 25489

Icon 1 posted      Profile for t9im   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi J:

Welcome and you need to realize there is a controversy in the Medical Community on diagnosing and treating Lyme and Tick Borne Diseases.

Without writing a novel you need to realize the Centers for Disease Control and the Lyme Committee of the Infectious Disease Society are on one side of the controversy and they control the treatment guidelines our normal MD's adhere to. On the other side is the ILAD's group which has grown up / developed since the early 80's as many of their patients have treatment failures under the normal course of 3 weeks of Doxy (or 4 months treatment if it is considered neuro Lyme).

First see if you MD will prescribe another 3 week course.

Second check to see if you can see an MD or DO that is a member of ILAD's. They will be more informed.

Good luck.

--------------------
Tim

Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
You're saying you caught it within 2 weeks, you treated for 3 weeks, and that was a couple weeks ago. I think you're still in the window of time to beat it, but you need to move fast for this not to become chronic. You need triage treatment right now, to head it off. This is not post - this is current.

Either you get the upped doxy as tickbite666 is suggesting, or you can post in Seeking a Doctor for LLMD referrals - Lyme-literate medical doctors, and go see one immediately. If you wait, this can go chronic.

Posts: 12984 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by map1131:
No need to ask a doctor if you still have Lyme. You are still having symptoms, therefore you still have an active infection.

Post Lyme Disease Syndrome is a LIE, it is ignorance, it will destroy your life if you don't seek the truth now.

If you are going to see a doctor, make sure you are seeing a Lyme literate medical doctor aka LLMD.

Pam

-Amen-- find an LLMD right away.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94693 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.