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» LymeNet Flash » Questions and Discussion » Medical Questions » VAGUS NERVE and LYME

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Author Topic: VAGUS NERVE and LYME
daystar1952
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I am wondering how many folks have had trouble with their vagus nerve?

Years ago when I first had Lyme I had POTS and panic attacks associated with digestion.

After years on antibiotics it got much much better, in fact now I just started having a spurt of really high blood pressure.

I got rebitten by a tick in early summer and now have fairly big problems when I eat anything.

It basically happened all of a sudden one day.

It's like it just sits in my stomach and causes gas and weakness and breathlessness at times.

I am wondering if others have seen these symptoms improve on antibiotics?

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Keebler
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With high blood pressure and the connection to high glucose and high insulin surges, are you checking your blood sugar periodically?

That might be a good step. If it goes high 30, 60 or 120-minutes after a meal, then assess the foods and adjust next time to keep blood glucose from rising / dropping.

LECTINS, though, also jump out for attention, from where I sit and what I've been through with my Vagus issues.

I used to pass out hundreds of times a week with NMH, similar to POTS. My vagus nerve seemed to seize as much as my brain then started to.

I stared a ketogenic diet 1 & 1/2 years ago but it's only been in recent months, going carnivore that I don't feel like I'm going to have a seizure all the time.

I was skeptical when I found others with similar experiences yet very glad to find that this may be a great move for me.

I would not have been able to go carnivore, though, without first being ketogenic for some time to become "fat adapted" properly and safely.


Thinking back, and sorry for the editing jumps,

My blood sugar would drop like a rock many times a day.

I was on a vegetarian diet (which requires high carbohydrates that turn to sugar) then and never even thought to test my blood sugar.

so, you might want to be sure to test your blood sugar and see that it's stable. DiaThrive is an inexpensive home meter.

My lower gut "seized" a lot, too, back then in so many ways. That's all behind me now. Whew! Who knew all that green fiber might have been a large part of my problem? Not I. Not then.

Spinach smoothies were very bad for me but I had no clue. Same with almonds. Both sky high in oxalates.

Other nuts and beans, very high in lectins.

It's all so very interesting now that some things are better -- and so much hope from what I've been studying the past year and a half since on the ketogenic diet, which - by happenstance - addresses so many issues all at once.

A keto diet , or similar, Low Carb / High Fat just happens to be much lower in LECTINS & OXALATES from plants because, the carb intake is lower. But my gut told me to look deeper and go lower, so to speak.

And, it could be dangerous to just suddenly change drastically the way you eat. Of course, not knowing, it's hard to say where to start.

I assume you already avoid processed foods and sugar, gluten.

Yet if you consume a lot of veggies, that might be problematic with your gut.

If you are interested in considering avoiding most, it's best to first go low carb / high fat where you get between 20 and 50 or maybe 60 or 80 (?) carbs per day from veggies - along with moderate animal protein with each meal and good fats to keep the blood sugar stable.

After a a few months just going lower on lectins and oxalates, that may be enough for your body to see some help.

If you decide to go lower, the VIRTA HEALTH website has some good research and videos / FAQ.

Search there and YouTube for

"Dr. Stephen Phinney" Troubleshooting a ketogenic Diet"
Also good: Dr. Eric Westman . . .

Dr. Sten Ekberg here:

https://www.youtube.com/user/drekberg


Save this to your nutrition research file (or whatever you call it) for easy referral. It could take awhile to work your way down but I wanted to be sure you had enough of the basics.

Sorry that it's not as concise as I'd like. The excitement over content also may have me over-sharing.


https://www.youtube.com/watch?v=mjQZCCiV6iA&t=19s

Dr. Paul Mason - 'How LECTINS impact your health - from obesity to autoimmune disease'

43.38 presentation from March 2019

The VAGUS NERVE illustration here is very helpful, as is the actual slide of how toxins can travel along the vagus nerve to the brain nerve cells.

I had to watch this over many times to really absorb it all. Well worth it.

I looked up all the sources and found other lists, too, from his talk, and more, and found that lectins can be quite destructive. As can oxalates.

A low oxalate & low lectin diet has helped my gut a lot - and my vagus nerve / sense of not being so revved, I think. In various ways, I'm so much better just avoiding most plants - for now - until I really see the light of day.

Mostly I eat very fatty cuts of grass fed / finished pastured beef. It's so easy to digest. I use just a good Redmond Salt as I'm trying to avoid all seasonings for now, too. Months from now, I will add back in one thing at a time, slowly, still being clear they are low in lectins / oxalates.

Untrimmed Chuck Roast is the least expensive and easiest for me. The untrimmed gets me a little extra fat, though the Wagyu beef I get has a good amount of fat on it, much more than most meats. My local grocer carries it, yours might, too.

I do not mean to sound aloof in the kind of meat I eat for it takes a little work to source. As for cost, since I'm not eating anything else, really, that works out.

And this truly is my medicine, my best chance at some kind of life outside of my apt where seizures have landed me for so many years.

Though, take heart, if this is too much.

L. Amber O'Hearn, a leading researcher in the carnivore community suggests that most people do fine with grocery store beef, especially if it's a difference in eating beef or not.

She suggests not being too concerned, as a pragmatic matter. Though, for those of us with lyme, etc., our bodies have been put through a lot so when possible, the best nutrition we can get seems logical.

there are other meats that are good, though beef is one of the most highly nutritious foods there is.

Her various presentations in the past few years all include charts and each lecture seems to include some different charts so watching various videos of hers helps. She has a good website full of detail, too.


IF this "elimination diet" trial sounds like something you might want to try, there are doctors you can find through the website of LowCarbUSA to guide you.

If you take Rx for diabetes, blood pressure, etc. eating fewer plants and processed foods likely will result in lower blood sugar so that needs to be considered first if Rx doses need to change.


Back to finding good clean meats, Ask at your local grocers, though, and also call the office of the major FARMERS MARKETS to find the ranchers around you that can sell year long in various ways.

Wild caught salmon far better than farmed. Wild Planet Sardines are good quality.

Trader Joe's has some good Wild Caught Pacific Salmon frozen.

ButcherBox one shipper of grass fed meat . . .

another from ranches / farms in Canton, MO called US Wellness:

https://grasslandbeef.com/


Of course, attention to lyme or other tick-borne infections matters yet the right kind of nutrition for each of us has to be the foundation.

For starters, here's an excellent presentation about how certain plant lectins can excite our vagus nerve (in a bad way) and even travel along that nerve pathway to the brain and cause damage for those with Parkinson's Disease.

I think this also relates to anyone with neurological issues. And "autoimmunity" is the pivotal theme of his talk.

The slide may be hard to read, so you might want to pause for a closer look.

A overactive vagus nerve has haunted me for years and, yes, it seems to have started with lyme but also with inner ear issues that may or may not be connected to lyme.

There are techniques to soothe the vagus nerve with breathing and relaxation exercises. But avoid plant lectins seems one of the most important considerations.

For more about lectins and other plant toxins that can cause trouble for some of us -

https://www.youtube.com/watch?v=YdRBFiBWQZQ&t=3s

30-minute video - Georgia Ede MD 2012 (still current)

Little Shop of Horrors? Risks and Benefits of Eating Plants


https://www.youtube.com/watch?v=lhVkxvgaJxk

Dr. Georgia Ede June 2019 interview


https://www.youtube.com/watch?v=6M6nnKZ1vv0&t=19s

"Dr. George Diggs" - The Dark Side of Plant Foods


Oxalates, too, can irritate and especially irritate tissues, organs, systems that are already vulnerable.

Search Google: "Susan Owens" "Trying Low Oxalate"

& Search YouTube for:

"Elliot Overton" Oxalates

"Sally K. Norton" Oxalates

Also: important to AVOID ALL "Vegetable" and "seed" oils if you have trouble with your gut. This matters a lot.

Also why the grass fed / finished beef / lamb is far better than beef from cattle fed corn. The Omega 3 to Omega 6 ratio is better . . . among other things.

Food is medicine. It may not be all the medicine we need but it's the foundation for all our cells / tissue / organs, etc..

And, for decades, we've been told a lot of lies about food just so the "food" industry could make money. . A good place to start:

https://www.youtube.com/watch?v=hzQAHITIUhg

Big Fat Nutrition Policy

Nina Teicholz - author or "The Big FAT Surprise"


the work of another investigative journalist, Gary Taubes, is also good to check out regarding processed foods and lack of science, and lies, behind the govt food guidelines.

If you wonder about the perceived for fiber, both of these presenters, again, search at YouTube, well, they put that myth to rest: we do not need fiber, in fact, for many it's a painful experience.

https://www.youtube.com/watch?v=4KrmpK_Lckg

Dr. Zoë Harcombe - 'What about fiber?'

30-minutes - Low Carb Denver, March 2019

I do not recall if it's in this presentation, but Dr. Harcombe frequently states that, actually, we do need "quite a bit" of meat for our nutrition intake


https://www.youtube.com/watch?v=xqUO4P9ADI0

Dr. Paul Mason - 'From fibre to the microbiome: low carb gut health'

30-minutes - Low Carb Denver, March 2019


-----------------------

update: onebeed just posted this in another thread. Excellent link:

http://www.lowoxalate.info/

Low OXALATE Diet
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[ 11-15-2019, 09:55 AM: Message edited by: Keebler ]

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Keebler
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Some people have found wonderful relief from just this one step.

A great place to begin, or begin again:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/3/38357?#000000

Why / How "Vegetable" / Seed Oils pose such Danger & Damage. Teicholz et al

And why good sourced saturated fats are really good for us, required by nature.

For the comfort of your gut; for the health of your brain, I do think.
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[ 11-09-2019, 04:40 PM: Message edited by: Keebler ]

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daystar1952
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Keebler...you put so much work into this post.

I'm sure it will be helpful! Thank you.

I do order liverwurst and brautwurst from I think it is Grassland Meats. It comes frozen.

I did buy half a cow that is not totally grassfed but is pastured.

I will look up your links. It's really weird. My stomach feels all tight right now which makes me not want to eat.

I know that if I have a beer or two it relaxes my stomach and that tightness goes away and I can eat. However, I know that is not good in the long run.

I wonder if Chamomile tea would work?

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Keebler
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Yeah, I enjoy the Grasslands Braunschweiger. I've not yet tried their Liverwurst but it's on my wish list for next time.
I might also try a slice warmed up now that it's cold outside. In summer, it was great to not have to cook it.
As for your tight belly / insides:

a heating pad on your belly might help relax it.

Magnesium, too.

Sadly, beer has more than a double whammy since it contains gluten and that can take six months to settle back down again after exposure . . . and gluten causes "leaky gut" issues.

and, sadly, too, beer / alcohol can trigger blood glucose surgers / drop and insulin surges, too, which leads to more inflammation and potential nerve damage from the insulin.

You might explore the work of master herbalist Stephen Buhner for things to help your gut relax.

Diaphramatic breathing, too. Humming. Singing. Gentle belly self massage. Warm water & you might study this one:

https://www.herb-pharm.com/product/skullcap-alcohol-free/

Skullcap, Alcohol-Free

(Scutellaria lateriflora) [not to be confused with other types]

Traditional relaxing herb

https://www.chrysalisnaturalmedicine.com/scullcap-skullcap-scutellaria-laterifolia/

SCULLCAP (Skullcap / Scutellaria laterifolia)

From "The One Earth Herbal Sourcebook" Tillotson, et al

Excerpt:

. . . Scullcap tincture is an excellent and extremely reliable nervine. It relaxes and strengthens the nervous system in a manner that can be felt within thirty minutes. . . .


https://www.ncbi.nlm.nih.gov/pubmed/?term=Scutellaria+lateriflora

PubMed search for: Scutellaria lateriflora - 46 abstracts
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[ 11-09-2019, 07:32 PM: Message edited by: Keebler ]

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Keebler
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From my experience, CORDYCEPS . several times a day is very centering and stabilizing to my vagus issues (likely because it's so good for the adrenals, too). You can look that up in the same links as post above.

DanShen (Salvia miltiorrhiza) also very relaxing and so helpful to me in the past. It calms the "startle reflex" - I can attest to help in that regard.

Still, might be best to see what Stephen Buhner's work has in store for you. If you can find a good LL ND, better yet.

I so hope you can go gluten free as that likely is key to help the vagus nerve and gut permeability, too. But it takes a while. Even a trace can cause a long set back by loosening the tight junctions in the gut lining and then all bets are off. Just pick back up, though since it's so important.

Be careful to avoid vagus nerve / Vasovagal stimulation, though. You do not want to stimulate it. Balance is the key.

Avoiding the plant lectins that stimulate it has helped many.

Oh, I may have suggested ginger above somewhere. Tillotson writes in "The One Earth Herbal Sourcebook" that Ginger can stimulate the vagus nerve - yet it does help calm my vertigo if I take it with Berberine it seems in balance.

. He recommneds something else to calm it on his "Ginger" page.

Good luck.
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LisaK
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Yes!!!! I have this!!! and I have had a heck of a time trying to explain this to drs (for like 8 years?) and it drives me abolutely insane! because it gives me fight or flight sense and makes me feel so horrible.

every time I eat.

one thing halped me so far and that was GlycoPan-Tox.

but... a crazy horrible "dr" RX it for me and since has gone insane and left me high and dry for it. very very wrong and left me shattered becasue it was the only thing that helped me thus far.

it even helped my urinary spasms. they (my sx) were all connected to this. she said it was my blood suguar , but not in the way I was thinking.

too bad that "dr" had to be such a mess. I tried to find the GlycoPan-Tox, but it is only via a dr rx or else a lot of money to ship from Europe.

maybe its worth it.

I get an attack every single time I eat. it is NOT "blood sugar" like diabetes or something. it is something with an inability to process insulin the right way.

I also do think my vagus nerve is messed up. I read somewhere that gargling helps realign it. it does seem to make me feel better when I gargle.

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

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daystar1952
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Keebler...just ordered the scullcap. I have the cordyceps but haven't taken it in a while so will start again.

I was on a gluten free diet for quite several years but didn't seem to do anything.I also started making reishi tea again from the reishi mushroom slices.

That always seems to help. I do go to an integrative doc who specializes in Lyme but it is in another state so I only go about once a year.

Will also look up dan shen. Thanks!

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Keebler
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In Dr. Paul Maon's LECTIN vidoe (linked above) he spends quite a bit of time explaining why gluten always matters and how it can damage the "tight junctions" of the epithelial layer of the GI tract . . . in anyone, not just those with gluten.

It's difficult with so many symptoms to see that giving up gluten helps - and that it causes so very many symptoms beyond just the gut . . . it might be helpful to go over that part of his presentation a few times and really study the illunstrations.

I found it helpful to pause the video many times just to really look over the slides.

There are also those who have more neurological symptoms from gluten than gut pain. Gluten cause cause "leaky brain" so to speak in addition to causing "leaky gut"

I think this is mentioned in some of the presentations by Dr. Georgia Ede.

Of the things I recommend, some might help a little bit in the meantime to calm symptoms - maybe - but, and I don't mean this to sound harsh, but none will really help much to correct the situation unless gluten is out of the picture.

And none will really help much if lectins and oxalates are still on the table, either - for those who can be more sensitive to them and that's usually anyone with history of "leaky gut" or likely to develop it due to infections, medications that destroy the gut lining, etc.

Again, I do not want to sound harsh and I certainly found over time that not doing certain things was often more important than loading on either Rx or supplements to address symptoms. when certain foods were the cause of such symptoms.

While all this can be daunting and it takes time to watch, study and maybe watch again some of the lectin and oxalate videos and see what all the presenters who address such have . . .

but I know of no single actions that matter as much as eliminating gluten and lowing lectins / oxalates, these gut damaging substances from the reach of my arms.

It has helped me quite a lot. But the "repair" work can take a very long time. there is no "cheat" day for these that is not going to damage the gut lining for those prone to that.

And probiotics are not going to help at all - not at all - regarding gluten, lectins, oxalates. Avoidance is the key.

It's only been recently, though, that the importance of avoidance has been emphasized and the videos & names linked in posts above are just a few of the best I've found in the past year.

I wish I had known all this decades ago. It could have saved a lot of pain, inflammation that caused so many other symptoms and damage. Inflammation is a cause of so much illness, so much pain, even contributes to diabetes.

Now, one can't totally eliminate all lectins or oxalates, or stop all histamine & mast cell reactions but, after studying the various charts of Low Lectin / Low Oxalate . . .

I hope you can build your "safe food list"


Dr. Mason mentions that there are lectins in meat, though they are different from the lectins from the plant world. I think it took watching his video about 4 or 5 times before I really captured all his points.


Still, back to gluten -- their is no "low" approach for the way the gut & brain membranes react is different. Even a trace, just a trace (I know . . . sigh!) can cause damage.

Please take this in the manner in which it is extended - to help. I'm emphasizing not to point a finger at you when you are trying so hard and have done so much already . . .

and a lot - a whole lot of people - often say they tried giving up gluten for a while but they did not think it helped. I encourage anyone who still had any healthy issue to go back and examine that.

Gluten can cause so many different issues and the damage, when perhaps possible to minimize, might never really be "fixed" - or it could take a long time.

. . . but when someone is reckoning with gluten, as least in my experience, it can take a long for this total avoidance thing to settle in.

I used to think spelt has less so I'd be okay. It took seizure after seizure before I connected those dots that, no, spelt would never be okay for me, not even one bite.

Gluten is gluten. And my body, my brain, simply had to treat it like my kryptonite. There is no getting away with even one bite (for myself). And coming to that approach has helped in so many ways.

I hope the videos help.
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[ 11-11-2019, 11:39 AM: Message edited by: Keebler ]

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daystar1952
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Thanks Keebler
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gz
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Keebler thank you so much for posting this (and the many other informative posts that you take the time to write and organize)!

This stuff is exactly what I have been needing to see. Lectins - vagus nerve - gluten... If that combination is an issue Lyme can thrive more easily.

Daystar I hope you are able to find something that helps. I had panic attacks and POTS that improved a little with abx treatment.

At one point I think my body decided to completely reject all meds. I began experiencing nausea that progressively worsened. Nothing would stay down, very much like what happened to me in the past year.

The earlier incident was also preceeded by a sequence of stressful events. The nausea did improve with the cessation of meds that time.

I stopped tx too early, still had Lyme sx but also sick with unaddressed mold illness.

Every time I attempted to restart abx the GI sx were there instantly. So for me, antibiotics aggravated those specific symptoms.

My GI/vagus nerve sx are slowly worsening again. I watched it happen over 18 months until I crashed the last time.

What does help me is being out and away from settings that provoke anxiety. My appetite returns, and I can eat without nausea. No air hunger either.

Are your symptoms constant? Are there positions/activities/places where you may be able to notice symptoms aren't as evident, maybe even absent. Has any modality helped (massage, acupuncture, exercise, etc)?

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LisaK
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so keebler, did I read correctly? - you ONLY eat beef??? salmon? lamb..
where did you find the information that led you to try this?? I am very curious because I am having such a hard time and I really do not crave many vegetables at all.

but I thought it is bad for me- and I have gastroparesis that is v active most of the time.

my diet is so limited, but I do cheat sometimes. and I forgot about lectins. I have to read more about them.

--------------------
Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen

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Keebler
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LisaK:

The idea is for those with troubles with food / gut issues to eliminate what seem to be offending foods for a trial period.

It's not advisable to just make such a sudden shift all at once. First, I suggest studying up on lectins and oxalates and going low in both with which foods you enjoy and work for you, along with eggs, ruminant meats and enough fat.

After about six months some who have not found great relief have made the shift to carnivore but only after first becoming fat adapted on a low carb diet and then going a bit lower to ketogenic. FAT is key, here, though. There must be enough fat in the diet to be safe.

Look up "rabbit starvation" so as to avoid that dangerous condition. But the kind of fat in our diet matters:


http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/3/38357?#000000

Why / How "Vegetable" / Seed Oils pose such Danger & Damage.


If one is on certain medications, it may be vital to have medical guidance as some can become too strong if carbs are lowered.

VIRTA HEALTH website is the place to begin ot get an idea of a "properly formulated ketogenic" / low carb diet.

YouTube and Google Search:

"properly formulated ketogenic diet" "Dr.Stephen Phinney"

& "Dr.Eric Westman" "low carb" & also with "ketogenic"

The film "The Magic Pill" on Netflix, elsewhere

Go back over all my posts above and connect to each link, each person suggested.

I forget if I posted the name of Dr. Zoe Harcombe, though, her work should certainly be studied.


https://www.lowcarbusa.org/

LOW CARB U.S.A, - scan the site for basics on a low carb approach.

FIND Medical Practitioners / Doctors - by your ZIP code

Also listed in a separate tab are other medical categories by zip.

a medical professional trained and certified in this approach will know how / if / when to guide you to refine the foods for your enjoyment according to the needs of your body / your reaction to certain foods.


https://www.youtube.com/results?search_query=carnivorycon+2019

YouTube: CarnivoryCon 2019 - Ideally, you would want to watch each of these presentations and both Q and A sessions a couple of times and take notes for reference.

Some of the presentations, I found I needed to watch 3 or 4 times to really understand the nuances.

Then, I suggest finding each speaker's website for works they've written, research they present over the past few years at various other conferences.

But, a carnivore diet is certainly not right for everyone - though, for some, it has really helped with certain issues.

Some find after a while, they can slowing reintroduce certain foods. A few have found they feel so much better and continue on. First, though, most were on a low carb diet for 6 months to one full year before refining it for their needs.

You really need to have your one glucose meter at home at first. I hope the links are of help as you study up on the variations that might be employed.

https://www.youtube.com/watch?v=J7U8Qv_0Lrk

Kelly Hogan's Zero Carb Diet (Benefits & Success Story)


https://www.youtube.com/watch?v=RT86U6_tRns

Dr Ken Berry MD Carnivore Diet Success Story (+ Tips)
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Keebler
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gz,

thanks for your post. I'm so glad the links are helpful to you. I find such value to them and am excited to share for others who may be in a tight place, not knowing about some of this.

Good luck.
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LisaK
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keebler, yes, I alrady eat pretty limited .. I also have glucose meter and it is never really anything worrisome . - rarely.

I eat mostly meat now. I usually just eat what I crave and it seems to work on a lot of days. I just have mystery sx no one seems to understand .

I don't have high bloodpressure, but i have the weird stomach lurch and then extreme hot flash and urinary spasm immediately. I get extreme fight or flight and then it goes away sometimes lasting a minute or hours. it really is horrible and I hate it.

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Keebler
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Glad to hear you have a glucose meter - I think every home should have one but glad to hear you are good in that department.

I hope that maybe, you might find a doctor at the LowCarbUSA.org website.

The work of

https://www.diagnosisdiet.com/

Dr. Georgia Ede

might also be particularly interesting to you. She had all kinds of trouble with her gut that caused reactions throughout her body that she finally figured out had to do with certain plant foods.

Just be sure to include enough real animal fat, too, whichever approach you take. I can't say how much for that can vary person to person, for various reasons.

A LCHF / ketogenic professional would be best to consult, if at all possible.

Fat is probably just as important as meat, if not more so, some think. One clinic in Hungary which has seen some good success for various conditions, PaleoMedicina, uses a ratio of 80% fat to 20% meat, of various ruminant animals as they are the most nutritious.

Just mentioning that, not suggesting it. That is a little higher than the Charlie Foundation's approach to the ketogenic diet for help against epilepsy. Even they, though, have various levels that patients can consider.

& for some more thoughts on this topic as it's good to get various views. And, in someone's essay, there may be some things that really resonate while other things might not, depending upon a person's condition.

If some kind of reaction to any food, consider not just the source but what all goes into that whether ingredients or an animal's diet, environment.

And spices & seasonings, too. For some who do a trial elimination, it might take a month, maybe two or three months of just certain fish / meat that you know work and then just a good "ancient" mined sea salt, such as Redmond Real Salt. That comes from salt mines in the Southwest.

Salt from today's actual ocean waters sadly contain a lot of microplastic particles (as do many of the fish. Sigh.)


https://www.lowcarbusa.org/

Again, the Low Carb USA.org website has listings for health professionals to help guide folks along to the diet that works best for their individual needs.

If you can't find a doctor or other practitioner, see names, watch videos, get their articles, books, etc. And share with some of the medical folks near you that they might also learn more.
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[ 12-08-2019, 11:32 AM: Message edited by: Keebler ]

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Keebler
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BELOW, AN AMAZING INTERVIEW that relates to everyone - not just someone with cancer concerns. So much great detail here about the ability to process toxins, certain fats, etc.

And she reminds me that too much glutamate / glutamine can be a concern with too much animal protein. That the glucose reaction to meat, while lower than with carbs, can still be an issue with tumor management.

And that some people can't manage saturated fats so need more of the olive oil, avocado oils.

She uses "Nutrition Genome" for testing as she says it is much more comprehensive than "23&me"

Also on the topic of higher fat being important for blood glucose and insulin stability throughout the day,

I have some concerns about some things she says, such as such low protein when some folks really do need the nutrition from a good bit of meat, not just for protein but for all the other key nutrients, too. Fat has benefits but it is not nutrient dense.

Another concern is that she does not address the matter of lectins or oxalates or that some folks cannot tolerate certain vegetables, even soft greens.

For those people, they cannot extract the nutrients of greens if they have trouble with lectins or oxalates causing leaky gut. they may require more meat than she normally recommends.

Still, there is much good detail in her presentation. And, she often states that each person's plan is individualized. And, in one hour interview she certainly cannot speak to all matters.

She has a book, too. Though at her website, I was saddened to see the cost of that and of further investigation. Of course, it's top notch work, with years of training behind that and update.

Many will be able to afford what are likely reasonable fees, considering all involved. Though many cannot and that makes me very sad, indeed. Still, it's really nice to be able to see some of the interviews / presentations, etc.

Maybe some day, regular medicine will catch up to all those like her who are certainly going farther in their research and practice.


https://www.youtube.com/watch?reload=9&v=635iP8Vgam4

Diet Doctor Podcast #25 — ALISION GANNETT

1:06:42 video interview -- Jul 30, 2019

Though an oncology diet coach who incorporates the ketogenic diet in her approach, She speaks to

Therapeutic Keto

and the very specific parameters and aspects & measures that matter most.

Information here is really good for anyone thinking about cancer - and just for everyone, too. Detail about blood sugar & insulin stability is important.

And, my note here, the carnivore approach in videos early in this thread may be helpful for figuring out the "leaky gut" / intestinal permeability causes / triggers . . .

I don't recall if she talks about some of the plant toxins that some people have trouble with & leaky gut from some of those but she does consider leaky gut as a risk factor.

And, it may be that some of the information on lectins & oxalates is still emerging. I still think Dr. Georgia Ede is the top expert for those with gut trouble & plants.

Yet, it is important to listen to various interviews, read lots of different approaches. So many complement each other with the links I usually share.

Back to Alison Gannet above . . . however, she has a point for everyone that when a lot of protein is consumed, that can trigger glucose to rise but more importantly, the insulin can elevate then, too, when large amounts of protein are consumed at one time.

She also suggests that higher fat is vital to health. Don't just take this as instruction, so be sure to listen to the full interview.

She recommends for her oncology patients 5-9 cups of vegetables limited to total carb count of 20 grams . . . per day. She also aims for 85% fat, 10% protein and 5% carbs.

Though, later on, she also discusses that, according to a patient's APO-E "numbers" that might not be right for some pateints and needs to be tailored to their genetics, etc.

Below, I've not yet watch this, however, Alison Gannett mentions that she worked with the doctor below so here's a link to an interveiw with her:

https://www.youtube.com/watch?v=SUFHLOy7bPM

Kick Cancer’s Ass with Keto: Dr. Nasha Winters #528

TURN VOLUME DOWN BEFORE LISTENING. For those with hyperacusis, the opening music is rather lively.

1:12:34 video interview -- Sep 21, 2018 , , , Metabolic Approach to Cancer . . .

. . . The reason Dr. Winters is on the podcast is to talk about ketones and metabolism, which is a significant part of her practice. Funny enough, all of us have metabolisms, so you will likely find this to be a highly relevant episode.
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[ 11-15-2019, 12:02 PM: Message edited by: Keebler ]

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LisaK
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UGH , thank you Keebler!!!!,

but, am I the only tick disease person that has trouble reading one lines "phrases"???

when everyone breaks up their posts on here it is always like one line which makes it impossible for me to read. my eyes start to lose their place and I cannot connect my thoughts. it really is not good.

it ends up looking like zebra stripes to me and nothing else.
sigh

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Keebler
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Yes, you do say the "one line phrases" - I also find them terrible and others have commented, too.

I have trouble with one line sentences / single spacing. And anything over 3.5 lines and it all swirls to me like an octopus in a murky ocean.

When I post links, the style I use to set apart title / authors / interviews often comes out that way. If it is these single line parts that are hard to read, I can rework how I post those since I do post so many links

I cannot go back over what I've posted but I will try in further to re-configure link detail. It's still going to be hard not to have occasional one-sentence paragraphs, though. To keep one point from spilling over into another.

I just tried to figure out how to post link detail, and with the URL landing right over the title, that makes it impossible to read . . . I will have to give some though to how else to do this so that the words don't collide. Thanks for mentioning it.

I also sometimes use a one-line phrase to accentuate a thought or point. I will try to avoid that - though that habit may be harder to break than the way I compose my Link detail.

Otherwise, and you may also find this to be true . . . I have trouble with all words here because there are no serifs. My eyes really need serifs. So, sometimes, I just copy the whole post and then paste to a word page, change the typeface and the font size to read.

You many need to reassess your MAGNESIUM. If you have nystagmus, that can make the sentences swirl about. That's part of my problem, the nystagmus - the spasms my eyes do -- connected to my inner ear issues but also can be due to low magnesium.

I also arrange the webpage so that I'm not looking at the whole page when reading just one post. That might help.

If you find reading typeface with serifs better, keep that in mind. There are all kinds of dyslexia and, for most with any degree or "kind" usually reading is much easier for text in serif typeface.

Lyme can create a bit of dyslexia in various ways, too. Often gets better though it can take a while and differ according to various factors, even the weather, the amount o light in the room, etc.

Avoid all fluorescent lights. But LEDs are not great for me, either. I try to use the old style of lightbulb but the computer light is really round, too.

With serifs, the embellishments on some of the letters "weigh" it down so it does not fly around the page, so to speak. There is also a

https://www.bbc.com/future/article/20171204-the-typeface-that-helps-dyslexics-read

The Typeface that Helps Dyslexics Read -- BBC.com - Dec. 2018
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Lymetoo
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"Panic attacks" POTS and digestion problems sound like MCAS is mixed in with this.

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Lymetoo
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quote:
Originally posted by LisaK:
UGH , thank you Keebler!!!!,

but, am I the only tick disease person that has trouble reading one lines "phrases"???

when everyone breaks up their posts on here it is always like one line which makes it impossible for me to read. my eyes start to lose their place and I cannot connect my thoughts. it really is not good.

it ends up looking like zebra stripes to me and nothing else.
sigh

Me too, Lisa. Drives me batty.

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Cass A
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Regarding a ketogenic diet, I have found this VERY helpful!! For fat, I use coconut cream concentrate as a "dessert"---eat tablespoons of it! It is sometimes called "coconut butter." Organic, of course.
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LisaK
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keebler, THANK YOU!!! it is NOT you, it is the whole thing on here. "breaking up posts" . I think I used to be needing more of that, but now the oposite is true. God only knows why. drives me batty, but thank you for being such a good sport as to help me!!!

I WILL check in to the dyslexia thing - all 5 of us in this house have dyslexia. I am starting to think it is from mold.!

Daystar, have you ever had allergy testing / shots??
Lymetoo, so POTS can be MCAS???? well, that would explain so much ..
What I think right now , for me, is that I am having Bart SX along with mold... fun fun.

I read something helpful though, that allergy shots can help! and then I got to thinking..... I USED to get shots!! and I stopped becasue I felt so good and like I didn't need them, but I am extremely allergic to mold and now I am thinking maybe shots (immuno therapy) would help my mold SX?? wow, that really would be something!

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LisaK
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that is weird....
my post above is jumbled up and not the order I sent it!


[bonk]

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Lymetoo
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LISA .. POTS is not necessarily MCAS but there is a HUGE subset of patients who have both.

Some have the Trifecta... POTS, MCAS and EDS.

Sometimes it is hard to distinguish POTS symptoms from MCAS symptoms.

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Cass A
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keebler--

I really wanted to sincerely THANT YOU for all the years of your research and posting on LymeNet!! You've been of great personal help to me over the years!!

I can't tell you how happy I am that you've finally found and are using things that have rally dramatically improved your personal situation! This is so wonderful!!

I'm going to really delve into the links in your most recent postings on this thread---not just for myself, but for others who're not active on LymeNet.

Thanks again!

Love,

Cass A

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Lymetoo
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By the way, it may be helpful to note that if you have taken fluoroquinolones even for short periods of time, you will be severely deficient in the gut bacteria you need in order to digest foods with oxalates.

So .. stay away from cipro, levaquin, avelox at all cost.

The gut bacteria cannot be replaced. They are working on supplements that would replace it, but for now it is not a stable bacteria that can be marketed.

https://www.sciencedirect.com/science/article/pii/S0065216410720037

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LisaK
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thanks Lymetoo! interesting info.

ugh, I have such a bad gut!!!

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Keebler
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Cass A:

Well, Golly. Thanks a bunch for your kind note. Love back to ya!

I also love the fact that you feel free to share lins I post, that really helps. I just saw another great interview with

https://www.youtube.com/watch?v=8kmo5UcGPXo

"Dr. Paul Mason" on "Biohackers" -- Are Lectins Bad for You? (+ How to Avoid Them) • Dr Paul Mason

March 2019 [recorded the same weekend as his presentation linked above, though this is much more conversational and what I learned is that

emulsifiers also compromise our gut lining. I check the NOW MagnewsiumTABLETS I got by mistake instead of capsules and one ingredient in there (I had to look up) but it is an emulsifier. So, back to the drawing board.

There is also a new Sally K. Norton interview - it's very good.


https://www.youtube.com/watch?v=EQaK6o_aMjw

Oxalate Toxicity - Interview with Sally K. Norton

1 hour and a half. Mercola
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Keebler
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LymeToo . . . Thanks for your note about Fluoroquinolones. Adding to that, another reference source:


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=131279;p=0

FLUOROQUINOLONE cautions - Links set

Over 40 different pharmaceuticals

also consider all the OTHER NAMES a drug goes by, and also the generics.

Some fly under two or three different names or "nick names" depending upon the pharmaceutical company.
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Lymetoo
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I hope they can get a viable probiotic soon.

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Keebler
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Probiotics are vital against the kinds of damage that many antibiotics can cause especially with good bacteria killing and resultant fungi overgrowth in the gut

and, yep, not all are the same or work in the way one might need regarding specific antibiotics. Probably good to have on board to address one kind of damage / support yet . . .

However, for those new to all this, probiotics are not the band aid one size fits all to all gut aches. Just to be clear.

as for gut damage from other things, probiotics are not really much help at all, if any.

The offending agents are best to avoid or limit for anyone with leaky gut damage, whether Rx side effects (NSAIDS, & other Rx)

damage from lectins, oxalates, emulsifiers - or other plant toxins or food / Rx / supplement additives . . .

Of course not all people are affected by plant toxins and some thrive on various plants as part of their plan, though, anyone could be clobbered if their gut lining is compromised.
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