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» LymeNet Flash » Questions and Discussion » Medical Questions » on rochephin

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overlyme
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Member # 43455

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i am at 8 weeks and all my neuro symptoms are much

worse..my head is swimming, nervous and off balance..

but not achey..is that normal to not feel achey just

much worse neuro symptoms? 2 grams twice a day..

blood pressure was up and down for months and seems to

be getting better just so eratic..

--------------------
been there done that!

Posts: 88 | From ny | Registered: Mar 2014  |  IP: Logged | Report this post to a Moderator
bluelyme
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what else are u on? picc or port ?are you pulsing 4 day a week 1 g or 2 ? what are you ob for encysted borrelia?pathogens run to areas of less circulation to avoid termination when mic levels are not strong enough...rocephin is a great anti inflammatory and my extreme bone pain was relieved with that and zithromax...

--------------------
Blue

Posts: 1538 | From southwest | Registered: Dec 2015  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Well, I guess it's a whopper of a herx??

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94530 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
still winning
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I'm remembering back to 1995 and 1996. Yes, after my first two weeks of being on Rocephin and feeling like nothing was happening, then the misery started.

Every inch of me hurt. I felt horrible. I figured that my body had become like a battlefield on which a powerful bacteria,the spirochete, and a powerful antibiotic, Rocephin were fighting it out.

After being on Rocephin for a period of time, and from memory, even though I still felt bad, my brain improved tremendously. But then sometimes my brain would also decline.

Overall, I think Rocephin is fantastic......

But I have a modern take on antibiotics (of which I'm still on all these years, and need them to function).

I think something is not quite right with some of our best antibiotics today. I have had the same prescriptions filled back-to-back, one month the prescription is fine, the next month something is not right with the prescription.

So I am not trying to worry you, but possibly the efficacy of the Rocephin is not always the best, as, I suspect, is the issue with some of our other medications today.

I have no answer.

But I do wish you feel better and improve. Somehow keep smiling.

Oh, one more bit of information. I did find that intramuscular ceftriaxone (the generic of Rocephin), that is shots, is just as effective as getting it intravenously (through a mediport or the like).

I hope I've been helpful at all. We're all behind you.

Still Winning

Posts: 55 | From Maryland | Registered: Aug 2014  |  IP: Logged | Report this post to a Moderator
overlyme
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my blood pressure was really high in the last 4 months

like it would go up and down..160/100 or 110 over 170

now after 2.5 months of iv my blood pressure is 120/80

all the time....if you ask me i believe that orals

cannot cross the blood brain barrier..you need iv

that is my opinion and i am NOT a doctor..

--------------------
been there done that!

Posts: 88 | From ny | Registered: Mar 2014  |  IP: Logged | Report this post to a Moderator
   

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