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» LymeNet Flash » Questions and Discussion » Medical Questions » CNS relapse after 5 years of remission

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Author Topic: CNS relapse after 5 years of remission
crazyhavanese
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Member # 42617

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I was doing really well after many years of every kind of treatment imaginable;

IV Rocephin, IM Bicillin,Tindamax,
Many oral abx,mepron, Homeopathic remedies etc.

Have been relapsing for about 2 months now.

Any suggestions?
Started treating with herbs,Alinia and Biaxin.
Want to hit this hard and fast!
Thank you!

Posts: 17 | From Long island | Registered: Oct 2013  |  IP: Logged | Report this post to a Moderator
marie
LymeNet Contributor
Member # 3980

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Did you have to have a positive test to be re-created.
Posts: 475 | From southern new jersey | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
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Member # 49177

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So very sorry to hear crazyhavanese, it's heartbreaking when it rears it ugly head. And it's so hard to have to go through it all over again.

My symptoms came back slowly, sneaky, subtle, trying to trick me almost into NOT reality, you know like maybe it will go away. It will not go away without treatment, that is the reality.

So I thought with my knowledge over the past 6 1/2 years of researching, I could successfully treat myself. Honestly, I just couldn't afford a LLMD so I ordered the needed meds except Mepron and Malarone (couldn't find any). Key symptoms pointed to re-activation of Babs and Bart. I substituted Alina, Zhang's Artemisinin, Clindy, and numerous others to NO avail.

Summoned up my inner strength and got to my LLMD. On my 3rd month, feeling 50% better in symptom reduction. But still struggling greatly.

So my advise to you would be to get to a LLMD as soon as possible.
Do not wait too long as it will quickly disable you.
Do not treat yourself.
Tell yourself you have done this before, you will conquer once again. You are a strong warrior 💚

Posts: 2280 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
overlyme
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Member # 43455

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stress causes relapse..very true

--------------------
been there done that!

Posts: 92 | From ny | Registered: Mar 2014  |  IP: Logged | Report this post to a Moderator
   

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