My son had Lyme Meningitis when he was 3. He had extremely high fevers, rash, fatigue, body weakness, etc. He was on a medication through a Picc line for 2 weeks and that was it. He is now 15 with Autism Spectrum Disorder and ADHD. He has and continues to suffer from migraines and over the years has developed pain in his legs. He has been to several neurologists when he was younger and nothing came of those appointments.
With this leg development issue my husband brought back up the Lyme of possibly being the culprit. No doctor thinks this is a possibility but they say no without testing. Should I take their word for it or pursue it? Not to mention, I have no clue who to go to, to pursue it. Thanks for reading this and any and all advice you can give.
Posts: 1 | From Philadelphia | Registered: Jul 2020
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My advice to you would be to get an evaluation from a Lyme Litterate Medical Doctor (LLMD).
Please read "The Lyme Wars" which describes how regular doctors follow the Infectious Disease Society (IDSA) guidelines instead of following the International Lyme Disease and Associated Disease (ILADS) guidelines;
Lymenet is an invaluable asset for those searching for answers. It is a community that constantly gives back to others who find themselves stuck in the medical Lyme maze. We have all experienced it first-hand.
You should reach out to your area's Lyme support group. This is one that is close to you;
Your son needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
It took six years to find out what was wrong with our son, and he has been ill for twenty years now! You must be your son's health care advocate!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do this click the "Edit Post" icon, make your changes, then click "Edit Post". Thanks.
Posts: 8670 | From Illinois | Registered: May 2006
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