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» LymeNet Flash » Questions and Discussion » Medical Questions » Babesia testing

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Author Topic: Babesia testing
lymewreck36
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Member # 4395

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I have been having a tug of war with my primary care over her wanting to see the babs test result from a test ordered at Duke. While Igenex and symptoms still find me very ill with Babs, Duke’s test was negative because it was only IgM positive.

I don’t want any of that passed to other care providers. So I did not release the test result to my primary care. I’ve had 17 years of positive tests from different countries, states, and laboratories.


I did ask primary care for a,standing CMP blood work to keep track of organ function and just went to execute it. Little did I know that amoung the orders she ordered was a blood smear to detect anything in the blood, and cams back negateve on that little blood sample.

Primary care has now, for the first time, written in my records that there is nothing in my blood, including parasites, and underlined “no”

I’m sick, angry and want to throw myself over a large building. !,

Please help me locate any medical literature on failings of babs testing, that it frequently is no circulating in peripheral blood, and so forth.

After a seven year relationship with my primary care doc, I can’t stand to see her again. I need your assistance. I’m lying in bed with five broken vertebrae for months now, new diagnosis of osteoarthritis and degenerative disk disease, so I am not able to sit up and dig in cyberspace, nor do I have brain function ( prescribed pain killers) to sort what I’m reading. I’m too tired and so forth.

Please assist if possible. Thank you to everyone and stay safe.

Posts: 1009 | From North Carolina | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
lymenotlite
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When I tested positive with lyme 12 years ago, bart was a clinical diagnosis. You need a good LLMD.

I was looking around at stem cell therapy in the past year. Hard to find much that is reliable but Regenexx is supposed to have a good reputation. Some physicians are using stem cell for arthritis and osteo problems. If I find anything I'll post it.

Posts: 670 | From WA state | Registered: Jul 2011  |  IP: Logged | Report this post to a Moderator
lymewreck36
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There is a clinic in Mexico You can PM me.
Posts: 1009 | From North Carolina | Registered: Aug 2003  |  IP: Logged | Report this post to a Moderator
LehighLyme
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First off the doc doesn't sound like she knows what she is doing because Babesia tests can be hit or miss. DO you have a positive Igenex test? If not run another and make sure it is the Igenex FSH.I have been suffering with Babs for over 20 years because docs didn't catch it. I even test IGM positive on a standard Quest or LabCorp test.

Also maybe search for other llmd's in your area. If you want to get well unfortuanately I don't think this is the doc to get your there..

Posts: 11 | From Bethlehem PA | Registered: Aug 2013  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
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If you are depending on a primary or infection disease doc to diagnosis and treat you properly, it will not happen.

But even though your lastest test came back negative, it still does not mean you don't have Babesia. According to the CDC's own website, multiple blood smears may be needed and sent to specialty labs!
https://www.cdc.gov/parasites/babesiosis/health_professionals/index.html#dx

Here is Dr H on Babesia testing;
https://m.youtube.com/watch?v=aLAbnh-2iS0

Another great link on Babesia;
https://sites.google.com/view/marylandlyme/tick-borne-diseases/babesiosis

Babesia testing by Dr S;
https://www.townsendletter.com/July2015/babesia0715_2.html

More on Diagnosis from NIH;
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4557163/#sec1-3title

Knowledge is power.
You can argue your case with your primary but it doesn't sound like she/he has their listening ears on.

Posts: 2078 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
   

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