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» LymeNet Flash » Questions and Discussion » Medical Questions » new conditions towards "end" of Lyme treatment?

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Author Topic: new conditions towards "end" of Lyme treatment?
paleogal
LymeNet Contributor
Member # 45991

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Like everyone, I've had kind of a rough year. Not to mention the pandemic, in the past ~16 months I've been diagnosed with:

-POTS
-C diff (been off abx for more than a year now!)
-mast cell disorder of some kind
-small fiber neuropathy
-uterine fibroids (and had surgery)


and of course, still dealing with Lyme (since ~2011), Babesia (since 2004?), Bartonella (since....?), mold illness (since 2008), etc. Lyme feels mostly under control (based on symptoms).

I have confirmatory tests for everything except the mast cell issue right now - for that I just have some wild photos of rashes on my face and other systemic issues after eating.

I'm not even really sure why I'm posting other than to hear others' stories...I thought I was on the heading-toward-remission pathway, and then everything blew up this year. Has anyone else had this experience?

I'm wondering if Lyme/mold and co set off an autoimmune disorder, which I know happens, but I don't know how to figure out which one.

Or maybe it was all the stress of the last year?

Or maybe I always had all this stuff, just finally peeled the onion back enough that we can "see" them and diagnose them?

With the new small fiber neuropathy diagnosis, I *might* qualify for IVIG, if I have some autoimmune issue that is actually diagnosable.

Anyway, I'll take any kind of advice, words of support, etc. I always end up here when I'm not sure what to do next, and I appreciate this community so much for the knowledge and kindness I always find here.

Posts: 233 | From Southern Arizona | Registered: Jun 2015  |  IP: Logged | Report this post to a Moderator
daisys
LymeNet Contributor
Member # 11802

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The only feedback I can give is about C. Diff. I take saccharomyces boulardii—otherwise known as Sacca bou.

I hear it kills C. Diff and occupies the same places, so there’s no room for the C. Diff. to get established. There’s a third reason, but I can’t think of it off hand.

It’s found in health food stores.

Posts: 449 | From New Mexico, USA | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Member # 743

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I think over the years, this is what has been causing so many chronic lyme patients to say they have "neuro" Lyme. I believe that in many cases it is POTS, MCAS, etc that is tacked onto Lyme.

Then there's the auto-immune.

I hear ya, paleogal!! It's not fun!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94838 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

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