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» LymeNet Flash » Questions and Discussion » Medical Questions » Hot and tomato red face and ears

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Author Topic: Hot and tomato red face and ears
Nancy Loube
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I have chronic lyme and developed a symptom - sudden onset of very red and hot face, sometimes ears too.

I also have HSV1 and I am wondering if either or both could be the culprit.

The red hot face was so severe one time a rash started down my arms. Eventually doctors told me to get checked for carcinoid syndrome. Fortunately the test for that came back negative.

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Bartenderbonnie
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Check out the BEST collection of Lyme rashes anywhere.

https://photos.google.com/share/AF1QipPCghqfePpqXpT0idln_kuFl82Q8NrezteAzVozBrfyNXvLJ_F7ld8GgwJPRwrvPQ?key=VUV5R1hEZUViR2tsbjgtUDR0dkRMS1BHUHItb0dn

Scroll down to Borrelial Lymphocytoma of the earlobe.

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Lymetoo
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Check out the info in this thread. It could be Mast Cell Activation Syndrome.

Many of us have it from Lyme.

https://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=036299;p=0

(One of the things they try to rule out is carcinoid syndrome .. so you got that part done!)

--------------------
--Lymetutu--
Opinions, not medical advice!

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Nancy Loube
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quote:
Originally posted by Bartenderbonnie:
Check out the BEST collection of Lyme rashes anywhere.

https://photos.google.com/share/AF1QipPCghqfePpqXpT0idln_kuFl82Q8NrezteAzVozBrfyNXvLJ_F7ld8GgwJPRwrvPQ?key=VUV5R1hEZUViR2tsbjgtUDR0dkRMS1BHUHItb0dn

Scroll down to Borrelial Lymphocytoma of the earlobe.

Thank you for your reply. I looked at the photo that you referred to. My ear doesn't swell but for years I've had the burning hot and redness in my ears that goes away after an hour or so. It's so hard to see photos of what people go through with this despicable disease(s).
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Nancy Loube
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quote:
Originally posted by Lymetoo:
Check out the info in this thread. It could be Mast Cell Activation Syndrome.

Many of us have it from Lyme.

https://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=036299;p=0

(One of the things they try to rule out is carcinoid syndrome .. so you got that part done!)

Thank you for your reply, Lymetoo. I started reading the links in the thread you recommended. This sure does seem like what is going on with me.
When I have one of these episodes I can't find a correlation to what triggered my symptoms although I suspected emotional stress seemed to play into it, but other times I couldn't sort it out. Exercise, heat, food, they could have all been the culprit. Now after reading a bit I realize that any of those plus more things could be triggers.

Based on one of the articles, it is best to look for an allergist that is familiar with it. I will be doing that for sure.

(I was so glad to have the carcinoid syndrome test come back negative. Even the allergist that recommended I see an endocrinologist and my LLMD were relieved.)

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Lymetoo
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Yes, emotional stress will do it .. and foods you didn't realize you were reacting to.

Exercise and heat are big triggers for me.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94958 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

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