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» LymeNet Flash » Questions and Discussion » Medical Questions » Who has gotten the vaccine?

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Author Topic: Who has gotten the vaccine?
LymeNet Contributor
Member # 20847

Icon 1 posted      Profile for TxLymie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Just curious about how the vaccine affects those of us with Lyme. Looking to hear the positive and negative experiences so I can make an informed decision

Which vaccine did you get?
What were your symptoms if any and how long did they last?
If you haven't gotten the vaccine, why not?

IgM - Postive bands 23 and 41

Other dx: 2000: Endometriosis 2009: Chronic EBV, Mycoplasma infection, HHV6, H.pylori

Posts: 297 | From Houston | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
LymeNet Contributor
Member # 51857

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Hello. Yes I got it.

I was very nervous of it. You can ask ask my friends and family all last year and up to a few months ago I was petrified of getting it or thinking I'd be forced to at my job. 2 years ago I was injured by a vaccine that throw my Lyme and Co's from 0-60.

There were nights I literally wouldn't sleep because of this. Would I be discriminated against for not like traveling, going to a concert, a ballpark etc.

I started a new job 6 months ago which I absolutely love after being out of the workforce for so long from Lyme. I was afraid my hesitancy on vaccines would interfere with my job. I work in a hospital. My boss and coworkers have been so understanding!

I did my own research and talked to other people in the Lyme community who received one ( all 3 kinds) and other non/Lyme acquaintances who had autoimmune issues and they were all fine. My LLMD even said it was a good idea.

At the end of the day however it was MY decision and mine only. It should be yours too. It's your body. I refuse to get bullied into getting it or shamed for taking it either way. I did say summer the earliest I would start thinking about it.

I got the Phizer. I was fine and even cried after with relief and prayed so much right before that it wouldn't trigger something and make me sicker, or worse. I got my 1st dose on May 14th and my 2nd on June 4th. Both times minimal side effects.

The 2nd dose the sore arm lingered a bit longer but it was certainly tolerable. I had a bruise and a rash that now has disappeared (I was told this is normal happened to some of my coworkers and their family members).

I don't regret it, nope. 💚

Posts: 248 | From Massachusetts | Registered: Mar 2019  |  IP: Logged | Report this post to a Moderator
LymeNet Contributor
Member # 2151

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I'm an old-timer around here, but have been in remission for over a decade after a decades long battle with LD & co-infections. I was nervous about the vaccine, but got it because I lost a family member to Covid 19 last year and have elderly parents.

My husband (also in remission with LD) and I both got Moderna because it was the first we could find. I had what they call the Moderna Flu symptoms with immune activation. He did also to a lesser degree. It was astonishing how all the worrisome symptoms shut off 48 hours after they started, as if someone turned off a faucet.

I would have preferred to get Pfizer because typically it seems to have fewer side effects in autoimmune patients based on what medical professionals have told friends, including one with severe MS. She had both her Pfizer without setback.

It is so nice to get back to living normally. I still shop with a mask on and wear a mask when working with transport or the clinics that do vetting. With close friends who have been vaccinated, I don't worry about it unless they have symptoms of colds or flu.

Posts: 467 | From USA | Registered: Feb 2002  |  IP: Logged | Report this post to a Moderator
LymeNet Contributor
Member # 11802

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I went with the Moderna vaccine because it was the first one available to me.

I checked with LLMDs, and the one thing that stood out is that there may be a set back with the vaccine, but that's nothing compared to getting Covid-19

A friend who works in our local hospital, and so is in the middle of treating the pandemic, told me that even surviving it, it's far worse than the vast majority of those who have reactions to the vaccine.

This friend and I had decided not to get the vaccine right away. But by the time it was available, we both got it without hesitation.

People are still dying every day from this virus. Some of my healthy friends who got covid-19, and weren't sick enough to go to the hospital, are still noticing problems.

I also was reminded that LD causes the immune system to go into overdrive. So, getting the vaccine may cause reactions because the vaccine is effective.

I felt a little worse for a few days--fatigue, body aches and headaches. It wasn't anything I'm not used to. I even wondered if it was just me, and not the vaccine causing it.

We don't know if problems will show up down the road with the vaccine. But, we do know that this virus has killed many.

I respect the decision that a person makes about getting the vaccine, or not, because they know their own situation the best. They also will be the one who lives with their decision.

I'm glad I got vaccinated.

Posts: 456 | From New Mexico, USA | Registered: May 2007  |  IP: Logged | Report this post to a Moderator

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