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» LymeNet Flash » Questions and Discussion » Medical Questions » Small fiber neuropathy punch test question

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Author Topic: Small fiber neuropathy punch test question
6Hypnone
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Just wondered if it hurts a lot.
My neuro said the shots would hurt as much as the emg.... Which was confusing since emg is electrical shocks (which I did not tolerate). So he's full of **** (what ekse is new w msm)
I have a lot of nerve symptoms, including stabs, but he said my description did not sound like neuropathy.

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Lymetoo
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I guess she means it's as painful as the EMG. If so, I would not be on board with that.

UGH.

I found that when I stepped up my B12 shot schedule, I had less stabbing pain. I also upped my B1.

Neuropathy is part of my picture.

--------------------
--Lymetutu--
Opinions, not medical advice!

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Garz
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its a 2mm punch normally - so a v v small wound - may give you an idea of what to expect

i am pretty sure they give local anaesthetic also - so more likely to be a case of it just being a bit sore afterward while healing

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6Hypnone
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Thanks. I am on several b vits. Dunno if doing much. And yah I meant the shot from the anesthetic. He said that hurts. So it hurts more than a normal shot does? Say from getting a blood test? I assume the 3 mm punch does not hurt.
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Garz
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sounds strange to me

every time i have had a local anaesthetic the needle is extremely fine and you hardly feel it....

i really would not worry about it

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6Hypnone
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I hope you're correct!
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Rumigirl
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Garz is right; it's not a big deal IME.

Here again you ARE talking about neuropathy (I answered your more recent post). Why is the doctor saying that's not neuropathy?? It is! And it only gets worse if you don't address the cause and pronto!

Doh, doctors, sometimes they don't know what they're talking about!

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6Hypnone
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I had gone to do the test but she said ok were doing it in the left leg. I said why the left? She said bc that's where the issue is according to your neuro. I said no, the stabbing is much more often in the right leg in the toe.
So I had to reschedule another appt w my neuro and another w the punch test Dr.

What a tard.

Anyway, when I had told the punch test Dr this, she said just be sure, bc the anesthesia shots will hurt and burn a lot.

??

I did read that but ppl here saying no, it's nbd. Once again , I'm confused and dunno what to think.

And neuro said I dont have neuropathy I guess bc I dont present the typical way... Eg, "numbness and tingling" that are constant.
Those are not the only ways nerve issues can present. Dumbass! If you'd get out of the pharma-crook poison box, and actually THINK and RESEARCH and do critical thinking, you might LEARN SOMETHING! He has no idea lyme related infections could cause nerve pain. Wtf use are you assh*?

No wonder, as he suggested, everyone w nerve issues gets put on gabapentin... Bc who gives a f about the cause? "I'm a Dr... I'm not supposed to THINK..."

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Rumigirl
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It sounds like you could use a better neurologist, unless you think that perhaps you could get somewhere with him first.

But to say that that isn't neuropathy?? What does he think it is pray tell? But I suppose they often will only recognize it when there is numbness and burning, which is a more advanced case of it.

As I said, it you don't address the cause (TBDs) pronto, you are left with permanent damage, which is extraordinarily painful.

Btw, I wouldn't expect the neuro to know that Lyme can cause neuropathy. Yes, they should know, but it's unlikely they will.

Did he say anything about what he would recommend after the biopsy? They used to rx IVIG for small-fiber neuropathy. But it's not covered for that anymore, sadly.

It can be covered immunological deficits, however.

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marie
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quote:
Originally posted by 6Hypnone:
Just wondered if it hurts a lot.
My neuro said the shots would hurt as much as the emg.... Which was confusing since emg is electrical shocks (which I did not tolerate). So he's full of **** (what ekse is new w msm)
I have a lot of nerve symptoms, including stabs, but he said my description did not sound like neuropathy.


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marie
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My neur mentioned test but didn't order it. he said a podiatrist would do it? also he said wounds would be the size of a quarter- 3 down the entire leg
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Rumigirl
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quote:
Originally posted by marie:
My neur mentioned test but didn't order it. he said a podiatrist would do it? also he said wounds would be the size of a quarter- 3 down the entire leg

Whaat?? I would not have a podiatrist do it; it should be a neurologist!

Wounds the size of a quarter and 3 down the leg?? It sounds like you need a new neurologist! I forget if there were more than one, but there weren't 3 (years ago, mind you). Find someone more up to the task.

Also, as I said above, what are they going to do with the results of the test? Not that it's useless, but it no longer qualifies you for IVIG to my knowledge, sadly.

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hiker53
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No good podiatrist would perform that test down the leg. At least my good podiatrist wouldn’t.

https://socalmusclenerve.com/skin-biopsy-procedure/

The website shows how the procedure is done.

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

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6Hypnone
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My lyme Dr thinks cause is bart. No way to know for sure. Arent we lucky. I'm already treating that.

It's not a quarter it's I believe 4 or 3 mm. Info on it here:
And yes it's 3 areas on the leg.
https://my.clevelandclinic.org/health/diagnostics/17479-skin-biopsy-for-small-fiber-sensory-neuropathy

It was my idea to do the SFN test. He asked me why. It's just good he agreed to do it since us obviously clueless. So treatment would probably come from my lyme Dr bc he's useless.

Somethung I read on lyme disease.Org:
"The results of the study are striking. All 10 participants tested positive for SFN and decreased blood flow to their brains.

Notably, all 10 participants were shown to have normal large nerve fiber functions. This means that standard nerve conduction velocity tests—which measure how fast an electrical impulse moves through a nerve—will not be a good diagnostic tool for these patients.

Dr. Novak says he had anticipated finding some SFN, but was surprised by the reduced velocity in cerebral blood flow found in all 10 participants.

Based upon the “horrible pain” reported by these patients, Novak explains, “we expected them to have damage of the nerves. But we were surprised with the low cerebral blood flow measured with the Doppler test, which was significant.”

-lymesci. Lyme disease. Org"

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